A process evaluation of a home-based occupational therapy intervention for Parkinson’s patients and their caregivers performed alongside a randomized controlled trial

Sturkenboom, Ingrid H.W.M.; Sanden, Maria Wg Nijhuis-van der; Graff, Maud

doi:10.1177/0269215515622038

Cited by 20 publications

(15 citation statements)

References 19 publications

(34 reference statements)

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“…Evaluation of an individualized home-based OT intervention in which coaching was a core element, demonstrated effectiveness in increasing self-perceived performance and satisfaction in prioritized daily activities [59,60].…”

Section: Education and Coachingmentioning

confidence: 99%

“…Consequently, external cues may reduce the need to internally plan and prepare movements, taking on an executive role and decreasing cognitive load [93]. The use of cueing strategies can be exploited by both physical and occupational therapists [48,50,60]. They can help PwP to ascertain their best cueing modality, frequency and timing for the situations in which they experience problems with initiating or maintaining movements.…”

Section: Movement Strategy Trainingmentioning

confidence: 99%

“…Caregiver interventions include educating the caregiver about the effects of PD, training the caregiver in the specific skills needed to support the patient, provide information about relevant aids and adaptations that may reduce caregiver burden, and empower the caregiver to maintain or reacquire a healthy balance between personal activities and caring [50,103,119]. In a trial about homebased OT, the participating PwP, caregivers and therapists reported the benefits of actively involving the caregiver in the intervention [60]. Nevertheless, the trial showed a small positive effect on quality of life, but no effect on caregiver burden [59].…”

Section: Advice For and Training Of The Caregivermentioning

confidence: 99%

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Physical therapy and occupational therapy in Parkinson's disease

Radder

Sturkenboom

Nimwegen

et al. 2017

International Journal of Neuroscience

125

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Current medical management is only partially effective in controlling the symptoms of Parkinson's disease. As part of comprehensive multidisciplinary care, physical therapy and occupational therapy aim to support people with Parkinson's disease in dealing with the consequences of their disease in daily activities. In this narrative review, we address the limitations that people with Parkinson's disease may encounter despite optimal medical management, and we clarify both the unique and shared approaches that physical therapists and occupational therapists can apply in treating these limitations.

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Section: Education and Coachingmentioning

confidence: 99%

Section: Movement Strategy Trainingmentioning

confidence: 99%

Section: Advice For and Training Of The Caregivermentioning

confidence: 99%

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Physical therapy and occupational therapy in Parkinson's disease

Radder

Sturkenboom

Nimwegen

et al. 2017

International Journal of Neuroscience

125

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“…The support of caregivers for PD patients is important and valuable, and may delay or prevent such complications. There are data to show that home-based occupational therapy interventions can be beneficial when PD patients and caregivers participate together [40].…”

Section: Plos Onementioning

confidence: 99%

Impact of disease stage and age at Parkinson’s onset on patients’ primary concerns: Insights for targeted management

et al. 2020

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Background The concerns of people with Parkinson’s disease (PD) about their disease are often different from the objective clinical picture and subject to various influencing factors, including disease progression. Currently our understanding of these concerns is limited, particularly in Asian countries. Methods A 50-item survey on Parkinson’s Disease Patients’ Concerns (PDPC Survey) was developed by a multidisciplinary care team. The subjective greatest concerns (most commonly concerning symptoms) of patients at a specialist centre in Bangkok, Thailand, were explored and categorised according to disease stage and age at onset of PD. Results Data for 222 patients showed concerns varied widely. Motor symptoms giving the greatest concern were problems with walking and/or balance (40.5% of patients), while the most commonly concerning non-motor symptom (NMS) was constipation (41.0%). Patterns were observed amongst different patient subgroups. Early PD patients (H&Y stage 1) were more concerned about NMS than motor symptoms, while the reverse was true for advanced PD patients. Young-onset PD patients showed significantly greater concerns than typical-onset patients about motor symptoms relating to social functioning, working and stigmatisation, such as speech (p = 0.003). Conclusions This study, in an Asian patient cohort, provides an assessment of a wide range of PD patients’ concerns, encompassing not only motor symptoms and NMS, but also treatment-related adverse events, care in the advanced stage, and the need for assistive devices. Identifying the concerns of individual PD patients and implementing a patient-centred approach to care is critical to their wellbeing and optimal outcomes. The PDPC survey can help healthcare teams build a more accurate picture of patients’ experiences to inform clinical management.

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“…It is essential to discuss with the patient and family their needs for an adequate housing and environmental adaptation [151,182]. It is essential to discuss with the patient and family their needs for an adequate housing and environmental adaptation [151,182].…”

Section: Home Environmentmentioning

confidence: 99%

Movement Disorders Rehabilitation

Chien¹,

Barsottini²

2017

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A process evaluation of a home-based occupational therapy intervention for Parkinson’s patients and their caregivers performed alongside a randomized controlled trial

Cited by 20 publications

References 19 publications

Physical therapy and occupational therapy in Parkinson's disease

Physical therapy and occupational therapy in Parkinson's disease

Impact of disease stage and age at Parkinson’s onset on patients’ primary concerns: Insights for targeted management

Movement Disorders Rehabilitation

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