A “pretty normal” life: a qualitative study exploring young people’s experience of life with bronchiectasis

Blamires, Julie; Dickinson, Annette; Tautolo, El‐Shadan; Byrnes, Catherine A.

doi:10.1080/17482631.2021.2003520

Cited by 3 publications

(1 citation statement)

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“…Analysis of their day-to-day experience resulted in three key thematic elements, and 10 subthemes are reported in full within the final thesis and in a recently published article that summarises the full study (Blamires, 2020; Blamires et al, 2021). Due to the important and novel findings relating to the experiences and burden of symptoms described by the participants, this paper will elaborate more fully on the conceptual theme ‘Sore and Tired’.…”

Section: Resultsmentioning

confidence: 99%

Sore and tired. A qualitative study exploring the symptom experience of youth with bronchiectasis

Blamires

Dickinson

Byrnes

et al. 2022

J Child Health Care

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This qualitative study was conducted to explore the experiences of youth living with bronchiectasis in New Zealand (NZ). Semi-structured interviews were conducted with youth with bronchiectasis. Key themes were identified using an inductive approach through constant comparative analysis and guided by Thorne’s interpretive description (ID). Fifteen young people of mixed ethnicity (nine females and six males) aged between 13 and 23 years participated. Three key themes ‘sore and tired’, ‘life interrupted and ‘looking after self’ were identified. This paper will focus on ‘sore and tired’ and its three subthemes which describe the participants symptom experience. While there was variability in physical symptom patterns, cough, soreness and fatigue were prominent features impacting physical, emotional and social aspects of day-to-day life. All identified pervasive and profound fatigue as significant. The identification of prodromal symptoms provides opportunity for greater appreciation of the varied and personal symptom experience of young people with bronchiectasis. Early identification of these symptoms and inclusion within management plans for escalating treatment has the potential to improve outcomes, reducing delays in seeking additional medical management and preventing further exacerbation.

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Section: Resultsmentioning

confidence: 99%