A preterm lifeline: Early discharge programme based on family‐centred care

Brødsgaard, Anne; Zimmermann, Renathe; Petersen, Mette

doi:10.1111/jspn.12120

Cited by 40 publications

(90 citation statements)

References 35 publications

(70 reference statements)

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“…It is also stated that the stress expressed by mothers regarding the birth and hospitalization of their PNI in NICUs is more intense and may impact the way they relates to the infants. In addition, a higher level of stress is related to the need for mediation between professional activities and sharing with parental care, the prolonged stay of these mothers with their PNI in the NICU, as well as their biological and social role (4) .…”

Section: Introductionmentioning

confidence: 99%

Stress experienced by mothers of preterm newborns in a neonatal intensive care unit

Froes

Mendes

Pedroza

et al. 2020

Rev. Gaúcha Enferm.

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Objective: To evaluate the stress level of mothers of preterm infants with gestational age ≤34 weeks, hospitalized in neonatal intensive care. Method: A cross-sectional study with 74 mothers of premature infants in neonatal intensive care, who answered the “Parental Stress Scale: Neonatal Intensive Care Unit” instrument, validated in Brazil. Results: The mean stress level was 4.41 (± 0.77) and the general stress level was 4.36 (± 0.76), with a significant difference (p <0.001) between the subscale "Alteration in parental roles” and other subscales, meaning that mothers were in a very stressful situation. Conclusion: All items in the subscale "Alteration in parental roles” of the “Parental Stress Scale: Neonatal Intensive Care Unit” were identified as the main source of stress experienced by mothers. This study suggests carrying out further studies with other methodologies to increase the knowledge of maternal stress in the national context, applying care interventions involving the parents.

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Section: Introductionmentioning

confidence: 99%

Stress experienced by mothers of preterm newborns in a neonatal intensive care unit

Froes

Mendes

Pedroza

et al. 2020

Rev. Gaúcha Enferm.

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“…Even when outcome domains were common to both quantitative and qualitative reviews, the nature of information from qualitative and quantitative studies differed. One example of this is found in trials utilizing the gastrointestinal health system domain: while quantitative studies (n = 61) tended to use a standardized outcome tool such as Bell staging for necrotizing enterocolitis to measure a specific outcome, the qualitative studies (n = 24) focused on the duration and meaning of feeding with such quotes as “I fully breastfed for four months, 100%, and I am so proud of that.” (p234)…”

Section: Resultsmentioning

confidence: 99%

Adding value to core outcome set development using multimethod systematic reviews

Brunton

Webbe

Oliver

et al. 2020

Research Synthesis Methods

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Trials evaluating the same interventions rarely measure or report identical outcomes. This limits the possibility of aggregating effect sizes across studies to generate high‐quality evidence through systematic reviews and meta‐analyses. To address this problem, core outcome sets (COS) establish agreed sets of outcomes to be used in all future trials. When developing COS, potential outcome domains are identified by systematically reviewing the outcomes of trials, and increasingly, through primary qualitative research exploring the experiences of key stakeholders, with relevant outcome domains subsequently determined through transdisciplinary consensus development. However, the primary qualitative component can be time consuming with unclear impact. We aimed to examine the potential added value of a qualitative systematic review alongside a quantitative systematic review of trial outcomes to inform COS development in neonatal care using case analysis methods. We compared the methods and findings of a scoping review of neonatal trial outcomes and a scoping review of qualitative research on parents', patients', and professional caregivers' perspectives of neonatal care. Together, these identified a wider range and greater depth of health and social outcome domains, some unique to each review, which were incorporated into the subsequent Delphi process and informed the final set of core outcome domains. Qualitative scoping reviews of participant perspectives research, used in conjunction with quantitative scoping reviews of trials, could identify more outcome domains for consideration and could provide greater depth of understanding to inform stakeholder group discussion in COS development. This is an innovation in the application of research synthesis methods.

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“…Traditionally, after stabilization in the NICU, neonates stayed in special care units until they were fully breast-or bottle-fed and were then discharged into the care of their families. 6 In 1989, a formalized program of Neonatal Early Discharge (NED), also referred as an Early Discharge Program (EDP) was recommended in the United Nations Convention of the Rights of the Child (United Nations Human Rights, 1989). Such programs were thought to unite families sooner, allowing for earlier establishment of bonds and family adaptation.…”

Section: Introductionmentioning

confidence: 99%

“…Such programs were thought to unite families sooner, allowing for earlier establishment of bonds and family adaptation. 6 A NED program is an opportunity for a smoother transition between the neonatal unit and home. 5 In contrast to standard discharge from the NNU, preterm infants on NED programs go home requiring gavage feeding or supplemental oxygen therapy.…”

Section: Introductionmentioning

confidence: 99%

Understanding the Effects of Neonatal Early Discharge on Parents

Setiawan

Mannix

Sweet

2019

Journal of Perinatal &Amp; Neonatal Nursing

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Problem: A Neonatal Early Discharge (NED) program is a supported process where preterm infants leave hospital before they have established full sucking feeds, and are gavage fed by their parents while they transition to breast and/or bottle feeds. While there is some evidence in the literature describing the outcomes of this process for preterm infants, there is even more limited evidence of the effects and outcomes of these NED programs on parents. Objective: To summarize and critically appraise the literature regarding the effects of neonatal early discharge on parents. Method: A literature search was conducted for English language publications since 2007 using Medline, Cumulative Index of Nursing and Allied Health Literature (CINAHL), PsycINFO and Google Scholar. A total of 20 primary articles met the inclusion criteria for the review. Conclusion: An integrative thematic synthesis identified four themes: establishing parenting skills/confidence, bonding with the newborn, psychological distress, and the need for support and resources. Findings suggests that parents have various concerns regarding discharge from the neonatal unit, and therefore support from health professionals and family play a crucial role during the experience. There were also various external factors such as socioeconomic status and cultural differences which impact on parents differently, and it is therefore challenging to draw definite conclusions. This warrants further research in the area.

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A preterm lifeline: Early discharge programme based on family‐centred care

Abstract: An early discharge programme based on family-centred care has been implemented and integrated into our neonatal intensive care unit that could be implemented by other hospitals.

Cited by 40 publications

References 35 publications

Stress experienced by mothers of preterm newborns in a neonatal intensive care unit

Stress experienced by mothers of preterm newborns in a neonatal intensive care unit

Adding value to core outcome set development using multimethod systematic reviews

Understanding the Effects of Neonatal Early Discharge on Parents

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