A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system

Abstract

Background: Parents of chronically ill children are at risk for a lower Health Related Quality of Life (HRQoL). Insight in the dynamics of factors influencing parental HRQoL is necessary for development of interventions. Aim of the present study was to explore the influence of demographic and disease related factors on parental HRQoL, mediated by employment, income, leisure time, holiday and emotional support in a comprehensive model.

Measurement Properties of the Arabic Lebanon Version of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales for Young Child (5 - 7 years), and Child Aged 8 - 12 Years: Quality of Life of in Urban and Rural Children in Lebanon

“…This is in concordance with previous study in Lebanon using SF-36 (Sabbah et al, 2003). Prior research has shown that the family members influence each other mutually (Hatzmann et al, 2009;Panepinto et al, 2009;Duhamel, 2007), therefore, the family with children who have a chronic disease may have greater family burden, and need social support (Hatzmann et al, 2009;Panepinto et al, 2009). As has been reported in several studies (Dean et al, 2010;Abdel Hai, Taher, & Fattah, 2010;Farnik et al, 2010), it is well established that children with chronic conditions have significant impairments in HRQoL.…”

“…International studies on HRQOL in children are needed to gain a better understanding of the impact of public policies, interventions, therapies (Schmidt, Wenninger, Niemann, Wahn, & Staab, 2009), evaluation of interventions, and the prediction of health and social care need (Sabbah et al, 2003;Hatzmann, Maurice-Stam, Heymans, & Grootenhuis, 2009;Panepinto, Hoffmann, & Pajewski, 2009).…”

Perceived Stress and Coping Styles among Malay Caregivers of Children with Learning Disabilities in Kelantan

“…Ha et al (25) suggested the detrimental impact on mental health of parents is reduced when parents had more positive support from family members. Other studies also reported that more emotional support was related with better cognitive and social functioning (26) and health-related quality of life of the parents (14). When under stress, an individual might turn to religion for many reasons as religion serves as a source of emotional support, a vehicle for positive reinterpretation and growth, or a tactic of active coping with a stressor (18).…”

“…Care dependency was defined as the number of life domains on which their child needs care (eight items-physical, mobility, eating and drinking, medication use, coping with devices/ tools, entertaining, contact with other children, education). This scale ranges from 0 to 8, where 0 indicates that the child does not need support at all, and score 8 indicates that the child needs full support (14). The pilot study showed that this scale had good internal consistency reliability with Cronbach's alpha = 0.86.…”

Children with Special Health Care Needs: Comparison of the Effects of Home Care Setting, Prescribed Pediatric Extended Care Setting, and Long-Term Care Setting on Child and Family Health Outcomes and Health Care Service Use

“…A single score is attributed to each combination. Scores of each subscale are normalized to a scale ranging from 0 to 100, with higher scores indicating better health and functioning (Hatzmann, Maurice-Stam, Heymanus & Grootenhuis, 2008).…”