A Pilot Study of the Association Between Sleep Disturbance in Children With Liver Transplants and Parent and Family Health-Related Quality of Life

Abstract

There are significant relationships between symptoms of SRBD and RLS/PLMS in children with liver transplants and family HRQOL. Behavior problems may account for these strong relationships.

Fatigue in pediatric liver transplant recipients and its impact on their quality of life

“…However, fatigue occurs in up to two‐thirds of adult patients with chronic cholestatic liver disease and biliary cirrhosis and persists even after LT . Considering that sleep quality is a known predictor of fatigue and sleep problems may contribute to fatigue, the results of three studies on sleep problems after PLT indicate that fatigue frequently occurs in PLT recipients. Furthermore, a recent review reported lower HRQL scores in PLT recipients with sleep disturbances …”

Psychologische Grundlagen der pädiatrischen Lebertransplantation

“…Es wurden entweder Instrumente zu Schlafstörungen eingesetzt oder nicht standardisiert nach Fatigue gefragt. In der Übersichtsarbeit von Parmar et al [17] identifizierten die Autoren bisher nur 3 Studien [34][35][36], die Schlafstörungen bei Kindern nach Lebertransplantation untersucht haben. Die Kinder, die an Schlafstörungen litten, wiesen eine niedrigere HRQoL auf.…”

Southeastern United States Parental Perspectives to Promote Adolescent Sleep Health

“…Similarly, weight management among teens provided greater benefit using family-focused approaches that used healthy diet and exercise (Santa Maria et al, 2014). Researchers concluded parents noted higher rates of sleep disturbances and periodic limb movement during sleep routines of adolescent with liver transplants (Andersen et al, 2014). Within the literature, a gap existed for specific parental strategies to promote and influence better sleep habits for adolescents.…”

“…Sleep health standards are relevant for restoration and healthy lifestyles including improved sports performance, academic achievement, and career success later in life (Zhu et al, 2013). Parental perceptions may prove significant to the adolescent health discipline, specifically for promoting healthy eating and physical activity at home (Andersen et al, 2014). (Moustakas, 1994).…”

“…Although the field of sleep medicine has progressed in terms of understanding the underlying physiology and anatomy of sleep disturbance and related adolescent behaviors, the current literature did not provide an in-depth understanding of parental perspectives as a means of promoting adolescent sleep health (Andersen, Dore-Stites, Gleit, Lopez, & Fredericks, 2014). Of the literature about this field of sleep disorders, researchers do not understand parental insights and how these perspectives might influence behavior changes (i.e., change in nutrition, fitness, and other health habits) as a means to contribute to improved adolescent lifestyles (Hart et al, 2013).…”