A Paucity of Code Status Documentation Despite Increasing Complex Chronic Disease in Pediatrics

Battisti, Katherine A; Cohen, Daniel M.; Bourgeois, Tran; Kline, David; Zhao, Songzhu; Iyer, Maya S

doi:10.1089/jpm.2019.0630

Cited by 7 publications

(12 citation statements)

References 30 publications

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“…The year of publication, country, study methods, type of institution, and population of the 32 studies included in our review are summarized in Table 3. The majority of the studies were conducted in Europe (n = 19)(8, 10, 11, 20-34), followed by 7 from the USA (35)(36)(37)(38)(39)(40)(41). Studies conducted in Asia were not included.…”

Section: Countries and Research Methodsmentioning

confidence: 99%

“…All the quantitative studies were descriptive or observational (cross-sectional, retrospective, or cohort studies). Thirteen of the studies were conducted in medical settings such as palliative care units or hospices (10,11,23,24,27,31,32,35,39,41,42,45,47), ten were conducted by academic societies or professional teams (22,25,28,30,33,34,38,43,46), and two were conducted over the telephone or at health centers for people living in speci c areas (29,44). Other publications were reviews or case studies that did not specify the facility where they were conducted.…”

Section: Countries and Research Methodsmentioning

confidence: 99%

“…In addition, speci c factors were described for each category. The factors of background complexity were sex (30,33), race(38, 41), language (10), age(8, 10,25,31,38,41,44,45), living situation (10,11,29,44), family burden(8, 10, 24, 29, 44-46), resources (10,20,22,23,27,32,37,42,43), treatment (11,21,33,35,39,40), decision-making (10,22,27,33,36,37), communication (10,11,27,32), prognosis (8,11,23,(25)(26)(27)45), disease (10, 11, 29, 30, 32-34, 39, 41, 44, 45), and comorbidities/multimorbidity(8, 11,24,…”

Section: Factors Of Complexity In Palliative Carementioning

confidence: 99%

“…Disease included progressive diseases such as heart failure, dementia, psychological disorders such as schizophrenia, and drug addiction (10, 11, 29, 30, 32-34, 39, 41, 44, 45). Moreover, the presence of these diseases as comorbidities or multimorbidity was also a factor of complexity (8,11,24,25,27,31,38,39,41,44,45,47). However, the studies reported multiple types and numbers of comorbidities and multimorbidity, ranging from two to ve.…”

Section: Factors Of Complexity In Palliative Carementioning

confidence: 99%

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Complexity In The Context of Palliative Care: A Scoping Review

Ohinata

Aoyama

2021

Preprint

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Background: Understanding the factors of complexity of patients in palliative care is very important for healthcare providers in addressing the care needs of their patients. However, the healthcare providers’ perception of the factors of complexity in palliative care lacks a common understanding. This study aimed to determine the scope of research activities and specific factors of complexity in the context of palliative care.Methods: A scoping literature review was performed, following the methods described by the Joanna Briggs Institute. We conducted an electronic literature search in MEDLINE (Ovid), PsycINFO, Web of Science Core Collection, and CINAHL, examining literature from May 1972 to 2020.Results: We identified 32 peer-reviewed articles published in English before 2020. The target literature mainly originated in Europe and the United States. The research methods included quantitative studies (n=13), qualitative studies (n=12), case studies (n=3), and reviews (n=4). We reviewed 32 studies and summarized the factors of complexity into three levels: the patient’s level, the healthcare setting level, and the socio-cultural landscape level. We identified factors affecting patient-specific complexity, including sex, race, age, living situation, family burden, resources, treatment, decision-making, communication, prognosis, disease, and comorbidity/complexity. Other factors identified as contributing to patient complexity were the interaction of physical, psychological, social, and spiritual categories, as well as the healthcare providers’ confidence and skills, and the socio-cultural components.Conclusions: This scoping review shows specific factors of complexity and future challenges in the context of palliative care. Future research should include the factors of complexity identified in this review and conduct longitudinal studies on the interactions among them. In addition, it is necessary to examine specific complexity factors in patients from various social and ethnic backgrounds.

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Section: Countries and Research Methodsmentioning

confidence: 99%

Section: Countries and Research Methodsmentioning

confidence: 99%

Section: Factors Of Complexity In Palliative Carementioning

confidence: 99%

Section: Factors Of Complexity In Palliative Carementioning

confidence: 99%

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Complexity In The Context of Palliative Care: A Scoping Review

Ohinata

Aoyama

2021

Preprint

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“…The year of publication, country, study methods, type of institution, and population of the 32 studies included in our review are summarized in Table 3. Thirteen of the studies were conducted in medical settings such as palliative care units or hospices (2,4,14,15,20,22,26,28,31,33,(37)(38)(39), nine were conducted by academic societies or professional teams (7,18,19,23,27,29,30,35,40), and two were conducted over the telephone or at health centers for people living in specific areas (25,32). Other publications were reviews or case studies that did not specify the facility where they were conducted.…”

Section: Research Populationmentioning

confidence: 99%

Complexity in the context of palliative care: a systematic review

Ohinata¹,

Aoyama²

2022

Ann Palliat Med

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Background: People receiving palliative care have complex, wide-ranging, and changing needs, not just physical distress, but also psychosocial, practical, and spiritual. Influences on complexity in palliative care are different among healthcare providers and may depend on diverse aspects of the patient's condition, time, and environment. Therefore, this study aimed to integrate and describe the perspective of complexity in palliative care. Methods:We used an integrative review, which is a method of compiling, summarizing, and analyzing existing insights from previous studies. We conducted an electronic literature search in MEDLINE (Ovid), PsycINFO (EBSCOhost), Web of Science Core Collection, and CINAHL (EBSCOhost), examining literature from May 1972 to September 2020 and updated in December 2020. Subsequently, synthesis without meta-analysis of the findings was completed.Results: We identified 32 peer-reviewed articles published in English. The included literature mainly originated in Europe and the United States. The research methods included quantitative studies (n=13), qualitative studies (n=12), case studies (n=3), and reviews (n=4). We identified 29 that influenced complexity in palliative care, 25 perceptions of the patient, including background and physical, psychological, social, and spiritual; two perceptions in the healthcare setting; and two perceptions in the socio-cultural setting. Above all, the perceptions of complexity in palliative care included younger age, prognosis, and spirituality.In addition, we added the identified perceptions of complexity with references to the complexity model in palliative care.Discussion: Although this review was limited in its search strategy and some data sources may have been overlooked, it still provided perceptions that influenced complexity in palliative care. These complex influencing perceptions are necessary for patients to receive appropriate palliative care at the right time and for health care providers to conduct a multi-disciplinary team approach. Furthermore, longitudinal prospective data are needed to examine the changes and relationships among complexity over time.

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