Patients regularly request to take possession of their human tissues after they have
become surgical pathology specimens. To date, few formal research studies have examined
the prevalence of this practice or the reasoning patients’ request that their specimens to
be returned to them. This study interviews patients from 2015 to 2017 at one US academic
medical center who requested their surgical pathology specimens. Of the 22 eligible
patients, 8 patients agreed to be interviewed. Interviews lasted 10 to 30 minutes and
included 5 questions. The questions were: (1) What motivated your decision to obtain your
surgical pathology specimen, (2) What, if anything, did you do with your specimen, (3)
What were positive aspects of your experience, (4) What were negative aspects of your
experience, (5) What can the pathology department change to better support patients who
request their surgical pathology specimens? Verbatim transcripts were generated and a
mixed-methods analysis was performed. The type of specimens included products of
conception, placenta and cord, costal cartilage and ribs, loop explant recorder,
pacemaker, below knee amputation, and cervix, uterus, Fallopian tubes, and ovaries. The
dominant themes included adversity, medical interest, souvenir, cultural beliefs, and
curiosity. Subthemes included becoming whole in the afterlife, preservation, my body,
restoration, honoring, and regret. In conclusion, pathologists can expand their role as
patient advocates and advance patient-centered pathology by supporting patient’s
individual needs, motivations, and goals, when they request their surgical pathology
specimens.