A Partial Picture, Without a Frame: Measuring Quality of Life in Cystic Fibrosis Caregivers

Nesser, Whitney; Yi, Eun-Hye; Wotring, Amy; Hutchins, Matthew D.; Snyder, Scott W.

doi:10.1080/19325037.2023.2186984

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2023

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Cited by 2 publications

References 54 publications

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The Impact of Crises on Older Adults’ Health and Function: An Intergenerational Perspective

Nesser,

Nesser

2023

Sustainable Neighbourhoods for Ageing in Place

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The Impact of Crises on Older Adults’ Health and Function: An Intergenerational Perspective

Nesser,

Nesser

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Sustainable Neighbourhoods for Ageing in Place

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Factors associated with quality of life for cystic fibrosis family caregivers

Nesser,

Snyder,

Driscoll

et al. 2023

Discov Ment Health

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Cystic Fibrosis (CF) is a genetic and chronic disease affecting 32,100 people in the United States as of 2021, with a life expectancy of 56 years for people with CF (PwCF) born between 2018 and 2022. While there is extensive literature about cystic fibrosis, there are few studies examining the complexity and challenges experienced by family caregivers for PwCF. The aim of this study was to examine the Caregiver Quality of Life Cystic Fibrosis (CQOLCF) scale using data (N = 217) from two separate studies that used the scale to determine if its items represent multiple factors relevant to CF family caregiver QoL. Factor analysis was conducted on the Seven distinct factors were found with analysis of the CQOLCF. Factors were Existential Dread (12%), Burden (11%), Strain (7%), Support (7%), Positivity (6%), Finance (5%) and Guilt (3%). Study findings indicated it is important for healthcare providers and researchers who use the CQOLCF to be knowledgeable and aware of the multiple factors associated with quality of life in this population in addition to an overall quality of life score.

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A Partial Picture, Without a Frame: Measuring Quality of Life in Cystic Fibrosis Caregivers

Cited by 2 publications

References 54 publications

The Impact of Crises on Older Adults’ Health and Function: An Intergenerational Perspective

The Impact of Crises on Older Adults’ Health and Function: An Intergenerational Perspective

Factors associated with quality of life for cystic fibrosis family caregivers

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