A Parentʼs Guide to Cleft Lip and Palate

Moller, Karlind T.; Starr, Clark D.; Johnson, Sylvia M.

doi:10.1097/00006534-199102000-00026

Cited by 4 publications

(3 citation statements)

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“…Books written by experienced doctors, despite the fact that they are routinely recommended by health care professionals, were considered hard to read by an adult based on the readability scores, as compared to US national literacy averages. Dr Berkowitz’ “The Cleft Palate Story” [ 28 ], for instance, had the reading level of at/or above college level, while Dr Moller’s book, “Parent’s Guide to Cleft Lip and Palate” [ 29 ], scored at an 11th grade level. Likewise, highly recommended and used booklets from the Cleft Palate Foundation scored high on the readability test.…”

Section: Discussionmentioning

confidence: 99%

Readability of Information Related to the Parenting of a Child With a Cleft

Felippe¹,

Kar²

2015

Interact J Med Res

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BackgroundMany parents look to various sources for information about parenting when their child has a cleft lip and/or palate. More than 8 million Americans perform health-related searches every day on the World Wide Web. Furthermore, a significant number of them report feeling “overwhelmed” by the language and content of the information.ObjectiveThe purpose of this study is to determine the readability of information related to parenting a child with cleft lip and/or palate. It was hypothesized that the readability of such materials would be at a level higher than 6th grade.MethodsIn February of 2012, a Web-based search was conducted using the search engine Google for the terms “parenting cleft lip and palate.”ResultsA total of 15 websites, 7 books, and 8 booklets/factsheets (N=30) entered the readability analysis. Flesch-Kincaid Grade Level, Fog Scale Level, and Simple Measure of Gobbledygook (SMOG) index scores were calculated. The reading level of the websites and books ranged from 8th to 9th and 9th to10th grade, respectively. The average reading level of the booklets/factsheets was 10th grade. Overall, the mean readability of the media resources analyzed was considered “hard to read.” No statistically significant mean difference was found for the readability level across websites, books, and booklets/factsheets (Kruskal-Wallis test, significance level .05).ConclusionsWhen considering websites, books, booklets, and factsheets analyzed, the average readability level was between 8th and 10th grade. With the US national reading level average at 8th grade and the general recommendation that health-related information be written at a 6th grade level, many parents may find the text they are reading too difficult to comprehend. Therefore, many families might be missing out on the opportunity to learn parenting practices that foster optimal psychosocial development of their children.

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Section: Discussionmentioning

confidence: 99%

Readability of Information Related to the Parenting of a Child With a Cleft

Felippe¹,

Kar²

2015

Interact J Med Res

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“…The most common sequelae that require monitoring and/or treatment include the physical cleft, feeding, hearing, dental growth, and speech development (Moller, Starr, & Johnson, 1990). Another area of concern is cognitive development and language skills.…”

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confidence: 99%

Neuropsychological Functioning in Children with Non-Syndromic Cleft of the Lip and/or Palate

Conrad

Richman

Nopoulos

et al. 2009

Child Neuropsychology

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Objective Evaluate neuropsychological functioning in children with non-syndromic cleft of the lip and/or palate (NSCL/P) through profile variance within type of cleft and comparisons to controls. Methods Children ages 7 to 17 years participated; 66 had a diagnosis of NSCL/P and 87 were healthy controls. Neuropsychological tests of language, visual-perceptual, executive functioning, and memory skills were administered. Between- and within-group differences were assessed. Results Within cleft types, children with NSCLP had an even profile with equal Verbal and Performance IQ (VIQ and PIQ, respectively). Children with non-syndromic cleft palate only (NSCP) had significantly lower VIQ than PIQ, while children with non-syndromic cleft lip only (NSCL) showed a nonsignificant trend for higher VIQ than PIQ. Overall, subjects with NSCL/P performed lower on measures of expressive language and verbal memory than controls. Conclusions While deficits in verbal and memory skills for children with NSCL/P remain apparent, there is still uncertainty around the possible influence of cleft type on the pattern of deficits.

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“…Devido às alterações anatômicas, tais como ósseas e musculares, apresentadas pelas crianças portadoras de fissura transforame incisiva, os dentes poderão ser irregulares no tamanho, formato e posição (MOLLER; STARR; JOHNSON, 1973 A atuação da enfermeira ocorre em conjunto com a fonoaudióloga na identificação das dificuldades apresentadas pela criança e encaminhamento para nova avaliação, quando necessário.…”

Section: Problemas Ortodônticos / Dentiçãounclassified

Os agentes de autocuidado e a utilização de orientações disponíveis no cenário do processo cuidativo da criança portadora de fissura lábio-palatal

Mondini¹

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O presente estudo teve como objetivo identificar como a mãe e/ou pessoa significativa (aqui designada como Agente de Autocuidado -AAC) para a criança, fazem uso das orientações recebidas por ocasião da alta hospitalar, por meio da identificação dos requisitos universais da criança e das habilidades referidas pelo AAC em realizar os cuidados. Baseado na Teoria do Déficit de autocuidado de Dorothea Orem. Visa ainda, contribuir e oferecer subsídios para a melhoria da qualidade da assistência prestada, dentro do programa de orientação desenvolvido pela equipe interdisciplinar.É um estudo exploratório, descritivo com abordagem qualitativa segundo BARDIN (1977). Foram realizadas 30 entrevistas com os AAC da criança portadora de fissura lábio-palatal, em dois momentos distintos; a primeira realizada após a cirurgia antes da alta hospitalar e a segunda no período de 8 a 10 dias após a alta hospitalar realizada por meio de telefonema do AAC para a pesquisadora ou da pesquisadora para o AAC, Após a análise das entrevistas emergiram subcategorias relacionadas aos aspectos emocionais e a habilidade do agente de autocuidado para realizar os cuidados com a

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A Parentʼs Guide to Cleft Lip and Palate

Cited by 4 publications

References 0 publications

Readability of Information Related to the Parenting of a Child With a Cleft

Readability of Information Related to the Parenting of a Child With a Cleft

Neuropsychological Functioning in Children with Non-Syndromic Cleft of the Lip and/or Palate

Os agentes de autocuidado e a utilização de orientações disponíveis no cenário do processo cuidativo da criança portadora de fissura lábio-palatal

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