A New Dedicated Mental Health Service for Deaf Children and Adolescents

Wright, Barry; Walker, Robert; Holwell, Andy; Gentili, Nicoletta; Barker, Mandy; Rhys-Jones, Sara; Leach, Valerie; Hindley, Peter; Gascon-Ramos, Maria; Moore, Kate

doi:10.5172/jamh.2012.2141

Cited by 5 publications

(10 citation statements)

References 1 publication

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“…These tools for ASD assessment can be available for use with deaf participants, and given the large struggles experienced by parents seeking assessment [ 33 ] and by assessing clinicians [ 6 ], this is a step forward. Whilst these assessments may be used in specialist centres, with deaf and hearing clinicians working together [ 17 ], this research has opened up new assessment possibilities. With training and the availability of these deaf adaptations, assessments could be undertaken in community child health/mental health centres supported by specialist teams, such as National Deaf CAMHS.…”

Section: Discussionmentioning

confidence: 99%

“…Recruitment was across England through contact with all schools for the deaf, mainstream schools with specialist resource bases for deaf children and special educational needs schools, and a national register of Teachers of the Deaf. The study team also contacted the 10 National Deaf Child and Adolescent Mental Health Services (CAMHS) [ 17 ] and other CAMHS services across England, and asked them to circulate details of the study to potentially eligible children and their families. Organisations such as the National Autistic Society, National Deaf Children’s Society (NDCS), the national ASD UK, and the Database of Children Living with Autism Spectrum Disorder in the North East (Daslne) databases shared study information with their members.…”

Section: Methodsmentioning

confidence: 99%

“…National Institute for Health and Care Excellent (NICE) guideline standard clinical assessments based on World Health Organisation Research Diagnostic Criteria for ASD [ 18 ], were carried out by experienced senior multidisciplinary child mental health clinicians from the UK specialist national deaf child and adolescent mental health service (NDCAMHS) [ 17 ]. The clinicians met with parents to gather a comprehensive developmental history, observed and interacted with children at home or school, and viewed additional professional reports (e.g., teacher, speech and language therapy and educational psychology), including a parent completed social communication questionnaire (SCQ) [ 19 ].…”

Section: Methodsmentioning

confidence: 99%

See 2 more Smart Citations

Diagnosing Autism Spectrum Disorders in Deaf Children Using Two Standardised Assessment Instruments: The ADIR-Deaf Adaptation and the ADOS-2 Deaf Adaptation

Allgar

Wright

Taylor

et al. 2021

JCM

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The aim was to investigate the agreement between the ADI-R Deaf adaptation and ADOS-2 Deaf adaptation overall diagnostic categorisation for autism (AUT) and a wider threshold to include autism spectrum (ASD) in a cohort of deaf children with and without ASD. We compared results of the instruments used on their own and when combined and propose standard criteria for the combined use of the ADI-R Deaf adaptation and ADOS-2 Deaf adaptation for use with deaf children. In total, 116 deaf children had a Gold standard NICE guideline assessment; 58 diagnosed with ASD and 58 without ASD, and for both groups a blinded informant based ADI-R Deaf adaptation and direct assessment using the ADOS-2 Deaf adaptation were separately completed. There was moderate agreement between the ADI-R Deaf adaptation and ADOS-2 Deaf adaptation for the wider threshold of ASD (Kappa, 0.433). To achieve the lowest number of false negatives, the most successful assessment tool approach is using the wider threshold of ASD with either ADI-R Deaf adaptation or ADOS-2-Deaf adaptation (95% sensitivity). This compares with 88% for the ADI-R Deaf adaptation alone and 74% for the ADOS-2-Deaf adaptation alone (wider threshold of ASD). To achieve a low number of false positives, the most successful assessment tool approach is a combination of ADI-R Deaf adaptation and ADOS-2- Deaf adaptation (using the narrow threshold of autism for both) (95% specificity). This compares with 83% for the ADI-R Deaf adaptation alone and 81% for the ADOS-2-Deaf adaptation (narrow threshold) alone. This combination is therefore recommended in specialist clinics for diagnostic assessment in deaf children.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Diagnosing Autism Spectrum Disorders in Deaf Children Using Two Standardised Assessment Instruments: The ADIR-Deaf Adaptation and the ADOS-2 Deaf Adaptation

Allgar

Wright

Taylor

et al. 2021

JCM

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“…These clinicians had no previous knowledge of the child and/or family; they travelled nationally to complete these assessments, and were blind to the SRS-2 Deaf adaptation scores. These NICE guideline standard clinical assessments carried out by the senior multidisciplinary child mental health clinicians from NDCAMHS [22] were based on World Health Organization Research Diagnostic Criteria for ASD [39].…”

Section: Diagnostic Proceduresmentioning

confidence: 99%

“…For these reasons, appropriate and validated screening tools, as well as ASD diagnostic assessment tools need to be available for deaf children. A UK National Deaf Child and Adolescent Mental Health Service (NDCAMHS) was launched in 2009 [22] following a successful pilot service with independent evaluation undertaken by the Social Policy Research Unit (SPRU), University of York [23]. One of the clinical services provided by NDCAMHS is specialist support for complex presentations of ASD and second opinion assessments for deaf children and young people [24].…”

Section: Introductionmentioning

confidence: 99%

Modifying and validating the social responsiveness scale edition 2 for use with deaf children and young people

et al. 2020

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A Delphi consensus methodology was used to adapt a screening tool, the Social Responsiveness Scale– 2 (SRS-2), for use with deaf children including those whose preferred communication method is sign language. Using this approach; 27 international experts (The Delphi International Expert Panel), on the topic of autism spectrum disorder (ASD) in deaf people, contributed to the review of item content. A criterion for agreement was set at 80% of experts on each item (with 75% acceptable in the final fourth round). The agreed modifications are discussed. The modified SRS-2 research adaptation for deaf people (referred to here as the “SRS-2 Deaf adaptation”) was then translated into British Sign Language using a robust translation methodology and validated in England in a sample of 198 deaf children, 76 with Autism Spectrum Disorders (ASD) and 122 without ASD. The SRS-2 Deaf adaptation was compared blind to a NICE (National Institute for Health and Care Excellence) guideline standard clinical assessment. The area under the Receiver Operating (ROC) curve was 0.811 (95% CI: 0.753, 0.869), with an optimal cut-off value of 73, which gave a sensitivity of 82% and a specificity of 67%. The Cronbach Alpha coefficient was 0.968 suggesting high internal consistency. The Intraclass Correlation Coefficient was 0.897, supporting test-retest reliability. This performance is equivalent to similar instruments used for screening ASD in the hearing population.

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Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people

Phillips

Wright

Allgar

et al. 2021

J Autism Dev Disord

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We report a Delphi Consensus modification and first validation study of the Autism Diagnostic Observation Schedule – 2 with deaf children and young people (ADOS-2 Deaf adaptation). Validation included 122 deaf participants (aged 2–18 years), 63 with an Autism Spectrum Disorder (ASD). This was compared to a National Institute for Health and Clinical Excellence (NICE) guideline standard clinical assessment by blinded independent specialist clinicians. Results showed overall sensitivity 73% (95%CI 60%, 83%); specificity 71% (95%CI 58%, 82%), and for the more common modules 1–3 (combined as in previous studies) sensitivity 79% (95% CI 65–89%); specificity 79% (95% CI 66–89%) suggesting this instrument will be a helpful addition for use with deaf children and young people.

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A New Dedicated Mental Health Service for Deaf Children and Adolescents

Cited by 5 publications

References 1 publication

Diagnosing Autism Spectrum Disorders in Deaf Children Using Two Standardised Assessment Instruments: The ADIR-Deaf Adaptation and the ADOS-2 Deaf Adaptation

Diagnosing Autism Spectrum Disorders in Deaf Children Using Two Standardised Assessment Instruments: The ADIR-Deaf Adaptation and the ADOS-2 Deaf Adaptation

Modifying and validating the social responsiveness scale edition 2 for use with deaf children and young people

Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people

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