A new algorithm to build bridges between two patient-reported health outcome instruments: the MOS SF-36® and the VR-12 Health Survey

Selim, Alfredo J.; Rogers, William H.; Qian, Shirley; Rothendler, James A.; Kent, Erin E.; Kazis, Lewis E.

doi:10.1007/s11136-018-1850-3

Cited by 47 publications

(34 citation statements)

References 14 publications

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“…We used an NCI algorithm to create comparable subscale and summary scores to combine data for those who completed the SF-36 in 1998–2005 with those who completed the VR-12 in 2006–2013 [21]. Subscales, MCs and PCS were normed with mean of 50 and SD of 10 in the U.S general population with higher scores representing better HRQOL.…”

Section: Methodsmentioning

confidence: 99%

The prognostic value of pre-diagnosis health-related quality of life on survival: a prospective cohort study of older Americans with lung cancer

2017

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Purpose Health-related quality of life (HRQOL) after cancer diagnosis is prognostic for overall survival (OS). However, no studies have assessed if HRQOL before diagnosis is predictive for OS. The objective of this study was to determine the association between pre-lung cancer diagnosis HRQOL and OS. Methods Our prospective cohort study used Surveillance, Epidemiology and End Results linked to the Medicare Health Outcomes Survey. We included 6,290 individuals 65 years or older diagnosed with incident lung cancer from 1998 to 2013. We assessed the prognostic value of 1) Short Form 36 summary component and domain-specific scores, 2) Activities of Daily Living (ADL), and 3) two global HRQOL questions. Cox Proportional Hazards models were used to examine associations between HRQOL and OS, adjusting for demographics, comorbid conditions, and clinical characteristics. Results Worse pre-diagnosis HRQOL was significantly associated with greater risk of death across HRQOL measures. An above average physical or mental component summary score was associated with 16% and 24% decreases in the hazard of death, respectively (p<0.0001). Being unable to perform ADLs such as bathing oneself was associated with an 89% increased hazard of death (p<0.0001). Reporting “poor” versus “excellent” health was associated with a 74% increase in the hazard of death (p<0.0001). Conclusion This population-based study reinforces the importance of self-reported health status as a predictor for OS. Routine HRQOL screening may identify patients who could benefit from early interventions to improve HRQOL. Future studies should explore associations between changes in HRQOL before and after cancer diagnosis and OS.

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Section: Methodsmentioning

confidence: 99%

The prognostic value of pre-diagnosis health-related quality of life on survival: a prospective cohort study of older Americans with lung cancer

2017

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“…Survey responses from 8 individual scales (bodily pain, general health, mental health, physical functioning, role emotional, role physical, social functioning and vitality) are summarized and normed to the U.S. general population to generate aggregate scores (23). To account for the transition between survey instruments in 2006, algorithms correcting for response shifts between the SF-36 and VR-12 for the PCS, MCS, and the 8 individual scales included in each measure were developed to harmonize the scores over the different survey instrument administration eras (24).…”

Section: Outcome Measuresmentioning

confidence: 99%

Trends in Racial/Ethnic Disparity of Health-Related Quality of Life in Older Adults with and without Cancer (1998–2012)

Rincon

Smith

et al. 2020

Cancer Epidemiology, Biomarkers &Amp; Prevention

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Background: Non-White cancer survivors often report poorer health compared with Non-Hispanic Whites. Whether those disparities are changing over time is unknown. We examined changes in health-related quality of life (HRQOL) by race/ethnicity from 1998 to 2012 among older adults with and without cancer.Methods: Data from Medicare Advantage beneficiaries were obtained from the linkage between the Medicare Health Outcomes Survey and Surveillance, Epidemiology, and End Results cancer registry data (SEER-MHOS). HRQOL was assessed with the SF-36/ VR-12 Physical and Mental Component Scores (PCS/MCS) and 8 scales (Physical Functioning, Role-Physical, Bodily Pain, General Health, Vitality, Social Functioning, Mental Health, Role-Emotional). Annual average HRQOL scores, adjusting for age at survey, gender, number of comorbidities, education, and SEER registry, were compared over time. Absolute (between-group variance;BGV) and relative (mean log deviation; MLD) indices of disparity were generated using the National Cancer Institute's health disparities calculator (HD Ã Calc). Joinpoint was used to test for significant changes in the slopes of the linear trend lines.Results: Racial/ethnic disparities in MCS increased in absolute and relative terms over time for those with [BGV ¼ 15.8 (95% confidence interval [CI], 10.2-21.6); MLD ¼ 16.2 (95% CI, 10.5-22.1)] and without [BGV ¼ 19.3 (95% CI,); MLD ¼ 19.6 (95% CI, 15.2-24.0)] cancer. PCS disparities over time did not significantly change. Changes in disparities in 5 of 8 HRQOL scales were significant in those with and without cancer.Conclusions: Older adults with cancer show increasing racial/ ethnic disparities in HRQOL, particularly in mental health status.Impact: Future research should evaluate trends in HRQOL and explore factors that contribute to health disparities.

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“…Similarly, plans assessing trends in their own CAHPS scores should adjust for potential changes due to differences in survey versions. Methods for such adjustments have been presented elsewhere . If maintaining trending for absolute scores is of interest, the differences from the randomized version experiment presented in Table could be used as trending adjustments.…”

Section: Discussionmentioning

confidence: 99%

“…Methods for such adjustments have been presented elsewhere. 17,18 If maintaining trending for absolute scores is of interest, the differences from the randomized version experiment presented in Table 2 could be used as trending adjustments.…”

Section: Discussionmentioning

confidence: 99%

The effects of survey version on patient experience scores and plan rankings

Beckett

Elliott

Burkhart

et al. 2019

Health Services Research

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Objective To assess the effect of changing survey questions on plan‐level patient experience measures and ratings. Data Source 2015 Medicare Advantage CAHPS Survey respondents. Study Design Ninety three randomly selected beneficiaries in each of 40 MA plans received a revised (5.0) CAHPS survey; 38 832 beneficiaries received version 4.0. Linear mixed‐effect regression predicted CAHPS measures from fixed effects for survey version and beneficiary characteristics and random effects for plan and plan‐by‐version random slope. Principal Findings Response rates were 42 percent for both versions. Removal of “try to” from screeners increased the percentage of respondents eligible for follow‐up questions. Version 5.0 caused a small increase (1‐3 points on a 0‐100 scale, P < 0.05) in the mean of three altered measures and a moderate increase (>3 points) in one. There was a small statistically significant increase in two unaltered measures. These changes were uniform across plans, so there would be no expected change compared to results using the legacy survey in the score distributions other than uniform mean shifts, and no expected effect on summary measures. Conclusions These analyses illustrate how to assess the impact of seemingly minor survey modifications for other national surveys considering changes and highlight the importance of screeners in instrument design.

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A new algorithm to build bridges between two patient-reported health outcome instruments: the MOS SF-36® and the VR-12 Health Survey

Cited by 47 publications

References 14 publications

The prognostic value of pre-diagnosis health-related quality of life on survival: a prospective cohort study of older Americans with lung cancer

The prognostic value of pre-diagnosis health-related quality of life on survival: a prospective cohort study of older Americans with lung cancer

Trends in Racial/Ethnic Disparity of Health-Related Quality of Life in Older Adults with and without Cancer (1998–2012)

The effects of survey version on patient experience scores and plan rankings

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