A Nationwide Survey of Pulmonary Sarcoidosis Clinics in the United States

Abstract

Rationale: Management of sarcoidosis patients with the potential for multi-organ involvement can be complex and require the expertise of multiple specialties.

Sarcoidosis: The Organs Involved. A Primer for Primary Care Physicians

“…A difficult question is when to refer patients to a specialized center. A minority of academic medical centers have dedicated sarcoidosis clinics, and the existence of a dedicated sarcoidosis clinic is associated with the number of sarcoidosis patients seen annually [38]. As an orphan disease there is variability in sarcoidosis practice patterns between centers, and this is also evidence in the organizational structure of dedicated sarcoidosis clinics.…”

“…As an orphan disease there is variability in sarcoidosis practice patterns between centers, and this is also evidence in the organizational structure of dedicated sarcoidosis clinics. The minority of dedicated sarcoidosis clinics used a concurrent multidisciplinary model [38]. As sarcoidosis is a systemic disease that can affect any organ system as outline above, [39] it is somewhat intuitive that a multispecialty clinic model could improve patient experience and outcomes.…”