A National Survey of Genetic Counselors’ Personal Values

Pirzadeh, Sara; Veach, Patricia McCarthy; Bartels, Dianne M.; Kao, Juihsien; LeRoy, Bonnie S.

doi:10.1007/s10897-007-9108-1

Cited by 40 publications

(64 citation statements)

References 32 publications

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“…They also found correlations between value profiles and other factors, such as caring for the underserved (Eliason et al 2000). Pirzadeh et al (2007) also used the Schwartz value survey to assess the value hierarchies of genetic counsellors in the US. They found significant correlations between value rankings and gender, religious practice and parental status (Pirzadeh et al 2007).…”

Section: Values and Health Carementioning

confidence: 99%

Genetics in the medical and psychosocial practice: on the role of value hierarchies in counselling

2016

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Aim Values and value hierarchies play an important role in different health and counselling settings. Since personal values underlie our actions, guide our decisions and influence interactions, they can be assumed to influence doctor-patient relationships and therefore especially counselling situations. The aim of our study is to provide a sound empirical contribution to the increasing literature on values in health care settings. Subject and methods This article focusses on the personal values of professional groups involved in the medical and psychosocial care of patients or clients with genetic concerns. Results from 120 survey respondents who completed the Schwartz value survey reveal differences between the professional groups in their value hierarchies. Results There is a widespread, pan-cultural similarity regarding value hierarchies. Our results are in accordance with this universal hierarchy but show slight differences between the professional groups of the sample: Medical professionals ranked achievement and power values significantly higher. Psychosocial professionals, on the other hand, ranked universalism and hedonism values significantly higher than medical professionals. Conclusion Values motivate actions and serve as standards to evaluate them. As they can be presumed to influence the doctor-patient relationship and health care decisions, it is worth discussing differences in values and value hierarchies. Particular attention to that topic might be of interest for training and further education.

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Section: Values and Health Carementioning

confidence: 99%

Genetics in the medical and psychosocial practice: on the role of value hierarchies in counselling

2016

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“…By doing health education for the pregnant mother, the improvement of health services and health access will be able to change the behavior of the pregnant mother (Wilkinson and McIntyre, 2012). must meet the essence of teaching and counseling, embedded in the knowledge and the respondents' attitude with non-directive approach (Roter et al, 2006;Pirzadeh, 2007;Meiser et al, 2008). In the context of antenatal counseling, the function of this counseling is called as health education and support in taking decisions (Martin et al, 2013).…”

Section: Al (2013) That State That Giving Health Education Throughmentioning

confidence: 99%

“…While the mortality data by 2010, it increased again to 121 cases. By 2011, the maternal mortality reached 116 cases (Sudarianto, 2010). For Gowa Regency, the number of maternal deaths in 2010 was 12 or 93.4 per 100.000 KH.…”

Section: Introductionmentioning

confidence: 99%

“…Based on the estimation, more or less 50.000 women all over the world die every year because o f preeclampsia. According to the Health Ministry o f Republic of Indonesia in 2004, the maternal mortality due to hypertension in the pregnancy is 14.5-24% (Sudarianto, 2010). The nutritional intake of pregnant mother does affect the baby's growth.…”

Section: Introductionmentioning

confidence: 99%

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An Intervention Study on Antenatal Class Plus for the Improvement of Healthy Pregnancy and Safe Childbirth in Gowa Regency, Indonesia

Thaha¹,

Maria²,

Usman³

2015

Pakistan J. of Nutrition

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Abstract:Complication of pregnancy and childbirth becomes the main cause of maternal mortality in the developing countries. The aim of the research was to analyze the influence of Antenatal Class Plus on the improvement of healthy pregnancy and safe childbirth in Gowa Regency by 2015. This research used quasi experiment with randomized pre-test post-test control group design. The sample consisted of 7 0 respondents. They are Somba Opu Health Center, Pallangga Health Center and Bajeng Health Center. The sample was selected by using purposive sampling method. The data were obtained by using questionnaires and were analyzed by using paired t-test and independent sample t-test. The results of the research indicate that there is an influence of Antenatal Class Plus on the healthy pregnancy (77.1%) and safe childbirth (97.1%). There is a difference of knowledge (p = 0.000), attitude (p = 0.000) and practice (p = 0.000) before and after the intervention of Antenatal Class Plus. Additionally, there is a difference of knowledge (p = 0.000), attitude (p = 0.000) and practice (p = 0.000) between the intervention group and the control group. This means that Antenatal Class Plus is more effective to increase the pregnant mothers' behavior to the improvement of healthy pregnancy and save childbirth in Gowa 2015.

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“…With few exceptions [Pirzadeh et al, 2007;Reis et al, 2007], the genetics literature has overlooked the role of religious beliefs and personal faith in the professional lives of genetics service providers. Most of the literature on religion or spirituality in genetics has focused on theological debates regarding advances in reproductive and genetic technologies (e.g., prenatal diagnosis and abortion, PGD, somatic cell nuclear transfer, and embryonic stem cell research) [Harris et al, 2004;Connelly et al, 2006;Evans, 2006;Zoloth, 2008]; public attitudes about whether genetic interventions are tantamount to ''playing God'' [Tambor et al, 2002], and the degree to which patients rely on religion, faith, or prayer to explain the development of disease, to cope with adverse outcomes or to aid in decisionmaking [Schwartz et al, 2000;Quillin et al, 2006;White, 2006].…”

Section: Introductionmentioning

confidence: 99%

The role and impact of personal faith and religion among genetic service providers

Geller

Micco

Silver

et al. 2009

American J of Med Genetics Pt C

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This paper describes the impact of genetic service providers' personal faith and religious values on their experiences interacting with colleagues and patients. We surveyed 480 clinical geneticists (MDs), genetic counselors (GCs), and genetic nurses randomly selected from their professional associations, and then interviewed a sample of survey respondents. Outcomes included religiosity, coping with distress through spiritual beliefs, and personal value conflicts (PVCs). Two hundred fourteen providers completed the survey out of an estimated 348 eligible (61% response rate). Importance attributed to regular attendance at religious services ranged from 39% (not at all important) to 27% (very important). Reliance on religion and spiritual beliefs as a source of comfort ranged from 48% (never) to 33% (sometimes or often). Religiosity varied by discipline with 58% of nurses thinking regular attendance at religious services was moderately or very important as compared to 47% of GCs and 30% of MDs (P = 0.006). Ten percent of respondents had difficulty reconciling their own faith with being a genetics professional, 14% felt the need to hide their own faith from their colleagues or patients, 7% thought their professional stance was not consistent with their personal values, and 4% felt ostracized by the genetics community because of their personal beliefs. The experience of such PVCs was positively correlated with religiosity (r = 0.35; P < 0.0001). GCs were more likely to experience PVCs than MDs or nurses (P = 0.013). Data from the interviews (N = 54) support these findings. A significant minority of genetic service providers are religiously observant and rely on their religious values to cope with distress. These individuals often experience difficulty reconciling their religious beliefs with the expectations of their profession, and sharing their beliefs with their colleagues and patients. Efforts should be made to prevent or reduce the secrecy surrounding personal faith and religion among genetics professionals.

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A National Survey of Genetic Counselors’ Personal Values

Cited by 40 publications

References 32 publications

Genetics in the medical and psychosocial practice: on the role of value hierarchies in counselling

Genetics in the medical and psychosocial practice: on the role of value hierarchies in counselling

An Intervention Study on Antenatal Class Plus for the Improvement of Healthy Pregnancy and Safe Childbirth in Gowa Regency, Indonesia

The role and impact of personal faith and religion among genetic service providers

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