A multi-step approach to develop a “storytelling” intervention to improve patient gout knowledge and improve outpatient follow-up

Jackson, Lesley E.; Chiriboga, Germán; Lemon, Stephenie C.; Allison, Jeroan J.; Mudano, Amy S.; Rosas, Giovanna; Foster, Pamela Payne; Danila, Maria I.

doi:10.1016/j.conctc.2023.101149

Cited by 3 publications

(4 citation statements)

References 58 publications

(116 reference statements)

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“…Recently, a novel intervention has been developed using patients as “story-tellers” to improve gout knowledge and medication adherence. 16 The development of such innovative modalities for improvement in gout care, particularly those that provide individualized and culturally appropriate material, are required.…”

Section: Discussionmentioning

confidence: 99%

Gout Knowledge: A Survey of Australian Outpatients with Gout

Chin,

Adams,

Gill

et al. 2024

OARRR

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Background The prevalence of gout has increased in the Western societies due to ageing and increasing BMI. Recently, lifestyle and dietary factors have been linked in epidemiological studies with an alteration of the risk of gout; however, there remains a lack of data on patient knowledge of these factors. The purpose of this survey-based study was to determine the knowledge of gout and its treatment both in the community and specialist care settings. Methods Participants were recruited from a hospital rheumatology outpatient department, consumer organization and a random sample of participants from a population-based cohort who had self-reported gout in South Australia. Participants completed a survey regarding basic demographics, the Single Item Literacy Screener, use of medication and diet for treatment of their gout and knowledge of gout. Results Seventy-four people were recruited (87% male) with a mean age of 66 years (range 35–88). The mean duration of gout was 16.6 years (range 0–60). On screening with SILS, 19.0% were identified as having limited reading ability. Most gout was managed by the family practitioner (81.1%) and/or rheumatologist (18.9%). In regard to current gout medications, 52.7% were taking allopurinol, 17.6% colchicine, 9.5% non-steroidal anti-inflammatory drugs, 6.8% prednisolone and 5.4% herbal preparations. For further information regarding gout, participants would most commonly approach their general practitioner (85.1%). Most participants correctly identified certain triggers to gout attacks and almost half of participants (41.9%) reported that they had altered their diet due to gout. Conversely, participants often incorrectly identified common risk or protective factors for gout. Conclusion Gout remains a common, yet undertreated, chronic condition. Our study highlights a lack of knowledge amongst patients of risk and protective factors in relation to gout. The increasing prevalence of gout within the population indicates a need to improve education and understanding among those with the condition.

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Section: Discussionmentioning

confidence: 99%

Gout Knowledge: A Survey of Australian Outpatients with Gout

Chin,

Adams,

Gill

et al. 2024

OARRR

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“…To the best of our knowledge, this is the first study combining an educational intervention with a quantitative analysis of prescriptions in a population of chronic patients. Previous studies [22][23][24][25][26][27] using narrative approaches have focused only on the educational part to explore patients' motivators and perception towards a more active disease management.…”

Section: Discussionmentioning

confidence: 99%

“…Several studies [21][22][23][24] tested narrative approaches as tools to understand patients' beliefs in order to improve disease management. These interventions are particularly important for patients with chronic diseases requiring polypharmacy, a condition which increases the risk of medication-related problems and the difficulty of managing complex regimens.…”

Section: Introductionmentioning

confidence: 99%

Identification of Barriers for Active Disease Management and of Medication-Related Problems through Therapeutic Patient Education in Older Home-Care Patients

Grigolo,

Bruschi,

Di Masi

et al. 2024

Healthcare

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Combining therapeutic patient education (TPE) with a medication review service could foster the adoption of appropriate lifestyles by patients and support care-providers in identifying strategies to improve the quality of prescribed care. This study aimed to identify barriers experienced by patients in managing their diseases and medication-related problems. This was a monocentric, case series, observational study involving home-care patients from the Local Health Authority ASL TO4. Patients were enrolled for a TPE intervention where drug therapies and patient habits were collected through narrative interviews. Medication review was performed to identify potentially inappropriate prescriptions (PIPs). Twenty patients (13 females) with a mean age of 74.7 years were enrolled. Patients had an average of 4.3 diseases and 80.0% of them were treated with ≥5 daily medications. The main PIPs involved ibuprofen, furosemide and pantoprazole. The qualitative analysis of the interviews identified seven macro-themes relating to different aspects of medication management: therapy; diseases; patient; patient journey; professionals; family and caregivers; drug information. The results of this study revealed some critical aspects related to the treatment path and healthcare professionals. These results will be used to plan educational interventions for polypharmacy patients to improve medication adherence and the understanding and management of diseases.

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“…Further, while some may find emotional catharsis beneficial, it may induce others to provide unfavourable feedback or behave rudely, and even reinforce disinformation [36]. Moreover, while stories may confer dignity to the tellers, it may also uncritically valorize the individual story and inadvertently negate the complex relationship between narrative and truth [37]. Thus, moderators should not be culturally confused as to their identity and should be emotionally ready to tell their stories [38] and evoke a responsibility to help individuals come to terms with their cognitive dissonance and transform the tensions in their lives.…”

Section: Implications For Health Policymentioning

confidence: 99%

The Risk Perception of the Chinese Diaspora during the COVID-19 Pandemic: Targeting Cognitive Dissonance through Storytelling

Leung,

Khan,

Hwu

et al. 2024

IJERPH

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The global COVID-19 pandemic in 2020 required risk communications to mitigate the virus’ spread. However, social media not only conveyed health information to minimize the contagion, but also distracted from the threat by linking it to an externalized ‘other’—primarily those appearing to be of Chinese descent. This disinformation caused the attribution of blame to Chinese people worldwide. In Canada’s Greater Toronto Area, Chinese individuals reported widespread public stigma that compounded their risk of contagion; to the degree that it was driven by cognitive dissonance, it generated experiences of social and cultural vulnerability. In this paper, we draw on the aforementioned study’s findings to explain how the risk perception and threat appraisal of Chinese diaspora individuals were impacted by different cognitive dissonance pathways. These findings explore how storytelling is a viable intervention with which to target and mitigate cognitive dissonance. Indeed, the mechanisms of cognitive dissonance can modify risk perception and mitigate social and cultural vulnerability, thereby averting potential long-term negative consequences for one’s mental health and well-being. We hope our guidance, training educators to target pathways of cognitive dissonance by drawing on storytelling (with humour), can assist them to better convey information in ways that are more inclusive during public health emergencies.

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A multi-step approach to develop a “storytelling” intervention to improve patient gout knowledge and improve outpatient follow-up

Cited by 3 publications

References 58 publications

Gout Knowledge: A Survey of Australian Outpatients with Gout

Gout Knowledge: A Survey of Australian Outpatients with Gout

Identification of Barriers for Active Disease Management and of Medication-Related Problems through Therapeutic Patient Education in Older Home-Care Patients

The Risk Perception of the Chinese Diaspora during the COVID-19 Pandemic: Targeting Cognitive Dissonance through Storytelling

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