A Multi-Method Assessment of Satisfaction with Services in the Medical Home by Parents of Children and Youth with Special Health Care Needs (CYSHCN)

Wood, David L.; McCaskill, Quimby E.; Winterbauer, Nancy L.; Jobli, Edessa; Hou, Tao; Wludyka, Peter; Stowers, Kristi; Livingood, William C.

doi:10.1007/s10995-008-0321-9

Cited by 43 publications

(29 citation statements)

References 39 publications

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“…Our results, as well as those of other studies [25][26][27], showed that the CSQ-3 items have a good internal reliability for measuring general satisfaction of parents. A common phenomenon of the surveys evaluating satisfaction, including ours, is to produce highly skewed distribution of the satisfaction towards higher levels of satisfaction [14,16,17,25]. This ceiling effect could have occurred in our study because the range of the four-point Likert scale used with the CSQ-3 was probably not broad enough to detect satisfaction variations among individuals with high levels of satisfaction [29].…”

Section: Discussionmentioning

confidence: 88%

“…Less is known about the parent and child features which could influence satisfaction with care. Several studies suggested that satisfaction with services might be influenced by parental distress, type and severity of the child's disability and the child's lack of improvement [15][16][17]. The aim of this study was to identify parent and child characteristics which could influence parent satisfaction with preventive services designed to detect SL delay early in life.…”

Section: Introductionmentioning

confidence: 99%

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Factors influencing parent satisfaction with preventive health services for the early detection of speech and language delay in preschool children

Bairati¹,

Meyer²,

Gueye³

et al. 2011

OJPM

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The aim of this study was to identify parent and child characteristics which could influence parent satisfaction with preventive health services designed to detect preschool children with speech and language (SL) delay. This study was conducted on 101 children aged 18 to 36 months who participated in an organized SL delay early detection program. Validated instruments were used to assess children's and parents' characteristics. Satisfaction was evaluated using the client satisfaction questionnaire for the three activities of the program: 1) a public information session about SL development, 2) parent training sessions for parents concerned by their child SL development, and 3) a child's SL assessment. Multiple logistic regressions were used to identify all independent factors (p < 0.05) associated with satisfaction and to estimate the odds ratios (OR) for satisfaction. Economically disadvantaged parents were less prone to participate in the first two activities of the early detection program. Older parents were more satisfied with the public information session (OR = 1.33 for 1 year increment; p = 0.001). Distressed parents were less satisfied with both the parent training sessions (OR = 0.28; p = 0.009) and the SL assessment (OR = 0.43; p = 0.046). Parents whose child had health problems at birth were less satisfied with the public information session (OR = 0.14, p = 0.03) and the SL assessment (OR = 0.33, p = 0.036). There is a need to better adapt the delivery of preventive services for the early detection of SL delay, especially for disadvantaged and distressed parents and for those whose child had suffered from health problems at birth.

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Section: Discussionmentioning

confidence: 88%

Section: Introductionmentioning

confidence: 99%

Factors influencing parent satisfaction with preventive health services for the early detection of speech and language delay in preschool children

Bairati¹,

Meyer²,

Gueye³

et al. 2011

OJPM

View full text Add to dashboard Cite

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“…29 Care coordination conducted as a standard of pediatric practice resulted in increased family satisfaction with the quality of care and also decreased barriers to care. 30 Other data have suggested that the PFCMH represents a process of care that may help families manage the daily demands of caring for children with special health care needs through family-centered care, provider-to-provider communication, and provision of care coordination. 31 A 2011 study in children and youth with special health care needs and their families who received care coordination and individualized care plans via a Medicaid managed care plan study reported improved satisfaction with mental health services and specialized therapies and participants were observed to have a decline in unmet needs, improved satisfaction with specialty care, and improved ratings of child health and family functioning.…”

Section: Benefits Of and Evidence For Care Coordinationmentioning

confidence: 99%

Patient- and Family-Centered Care Coordination: A Framework for Integrating Care for Children and Youth Across Multiple Systems

Turchi¹,

Antonelli²,

Norwood³

et al. 2014

Pediatrics

256

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Understanding a care coordination framework, its functions, and its effects on children and families is critical for patients and families themselves, as well as for pediatricians, pediatric medical subspecialists/ surgical specialists, and anyone providing services to children and families. Care coordination is an essential element of a transformed American health care delivery system that emphasizes optimal quality and cost outcomes, addresses family-centered care, and calls for partnership across various settings and communities. High-quality, cost-effective health care requires that the delivery system include elements for the provision of services supporting the coordination of care across settings and professionals. This requirement of supporting coordination of care is generally true for health systems providing care for all children and youth but especially for those with special health care needs. At the foundation of an efficient and effective system of care delivery is the patient-/family-centered medical home. From its inception, the medical home has had care coordination as a core element. In general, optimal outcomes for children and youth, especially those with special health care needs, require interfacing among multiple care systems and individuals, including the following: medical, social, and behavioral professionals; the educational system; payers; medical equipment providers; home care agencies; advocacy groups; needed supportive therapies/services; and families. Coordination of care across settings permits an integration of services that is centered on the comprehensive needs of the patient and family, leading to decreased health care costs, reduction in fragmented care, and improvement in the patient/family experience of care. Pediatrics 2014;133:e1451-e1460

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“…5 Despite recent efforts to provide comprehensive care to CSHCN that would maximize health outcomes and improve quality of care, [6][7][8] the effects on satisfaction and family-centered care are unclear. [9][10][11] In addition, although individual characteristics such as race and ethnicity influence reports of satisfaction and family-centered care, 1,[12][13][14] it is unclear how state child health policies and the health care system affect these quality measures.…”

mentioning

confidence: 99%

“…19,20 Insurance also influences satisfaction 10,15,21 and may also influence family-centered care. 6,7,9 One pivotal study of CSHCN revealed that underinsurance and uninsurance predicted lower satisfaction versus CSHCN with insurance, 4 yet it is not well understood how satisfaction varies across insurance types.…”

mentioning

confidence: 99%

The Impact of Insurance on Satisfaction and Family-Centered Care for CSHCN

Thompson¹,

Knapp

Saliba³

et al. 2009

Pediatrics

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BACKGROUND:Children with special health care needs (CSHCN) have worse health outcomes and satisfaction compared with children with typical needs. Although individual characteristics influence satisfaction and family-centered care, additional effects of health insurance and state child health policies are unknown. OBJECTIVES:To determine if satisfaction and family-centered care varied among CSHCN, after adjusting for individual characteristics, according to insurance type and state child health policies. METHODS:We performed descriptive and multivariate analyses by using demographic, insurance, and satisfaction data from the 2006 National Survey of Children With Special Health Care Needs (N ϭ 40 723). Additional state data included Medicaid and State Children's Health Insurance Program (SCHIP) characteristics and the supply of pediatricians. We supplemented the national findings with survey data from Florida's SCHIP comprehensive care program (CMS-Duval ["Ped-ICare"]) for CSHCN (N ϭ 300). RESULTS:Nationally, 59.8% of parents were satisfied with their child's health services, and two thirds (65.7%) received family-centered care. Adjusting for individual predictors, those uninsured and those with public insurance were less satisfied (odds ratios [ORs]: 0.45 and 0.83, respectively) and received less family-centered care (ORs: 0.43 and 0.80, respectively) than privately insured children. Of note, satisfaction increased with state Medicaid spending. Survey data from Ped-I-Care yielded significantly higher satisfaction (91.7%) compared with national levels of satisfaction in the SCHIP (54.2%) and similar rates of family-centered care (65.6%). These results suggest that satisfaction is based more on experiences with health systems, whereas familycentered care reflects more on provider encounters. CONCLUSIONS:Insurance type affects both satisfaction and familycentered care for CSHCN, and certain state-level health care characteristics affect satisfaction. Future studies should focus on interventions in the health care system to improve satisfaction and patient encounters for family-centered care. Pediatrics 2009;124:S420-S427

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A Multi-Method Assessment of Satisfaction with Services in the Medical Home by Parents of Children and Youth with Special Health Care Needs (CYSHCN)

Cited by 43 publications

References 39 publications

Factors influencing parent satisfaction with preventive health services for the early detection of speech and language delay in preschool children

Factors influencing parent satisfaction with preventive health services for the early detection of speech and language delay in preschool children

Patient- and Family-Centered Care Coordination: A Framework for Integrating Care for Children and Youth Across Multiple Systems

The Impact of Insurance on Satisfaction and Family-Centered Care for CSHCN

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