A Model of Positive Behavioral Support for Individuals with Autism and Their Families

Becker-Cottrill, Barbara; McFarland, Jennifer; Anderson, Vicki

doi:10.1177/108835760301800205

Cited by 16 publications

(14 citation statements)

References 30 publications

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“…Parents have an intense need for regular communications, and they place high value on and trust in professionals who remain positive and open-minded. Whether professionals become involved with the family at the point of diagnosis or many years afterward, it is clear that services best meet their needs when there is consistent and reliable communication, sensitivity to family routines, greater access to and coordination of services, better interagency collaboration, and family participation in interventions and decision making about their children's services (Becker-Cottrill, McFarland, & Anderson, 2003;Kohler, 1999;Sperry et al, 1999).…”

Section: Discussionmentioning

confidence: 98%

Family-Centered Care for Children With Autism Spectrum Disorders: A Review

Gabovitch

Curtin

2009

Marriage & Family Review

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Much has been written about family-centered care (FCC) as a best practice for children with special health care needs. There is limited research on the extent to which children with autism spectrum disorders and their families receive FCC or to delineate what elements of FCC are particularly important to meet their needs. We will examine the extant literature on FCC as a collaborative and empowering practice, the perceptions of parents of children with disabilities about FCC in both the healthcare and education fields, and will review the limited research on the specific needs of families that have a child with ASD. As part of this review, we will identify future directions for research and practice in caring for children with ASD and their families.KEYWORDS autism spectrum disorders, children with special health care needs, family-centered care, medical home, parents Of all the challenges a parent may ever face, caring for a child with special health care needs is among the most life changing. Children with special health care needs (CSHCN) are children who have or who are at risk for ''chronic physical, developmental, behavioral, or emotional conditions and who require health and related services of a type and amount beyond that required by children generally'' (McPherson et al., 1998, p. 138). Over the years a growing body of literature has pointed to the importance of caring for CSHCN in the context of the family and including family members as equal partners in care. This approach, commonly referred to as family-centered care (FCC), acknowledges and values the central role families play in children's health and well-being and encourages collaboration, information sharing, empowerment, and joint decision making

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Section: Discussionmentioning

confidence: 98%

Family-Centered Care for Children With Autism Spectrum Disorders: A Review

Gabovitch

Curtin

2009

Marriage & Family Review

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“…It is well documented that parents (particularly, mothers) of children with disabilities experience greater levels of parenting stress than parents of typically developing children (e.g. Milgram & Atzil 1988;Wolf et al 1989;Olsson & Hwang 2002;Becker-Cottrill et al 2003). Possible links between parenting stress, sense of competence and satisfaction with intervention services warrant further consideration and research.…”

Section: Discussionmentioning

confidence: 99%

Mothers’ Satisfaction with a Home Based Early Intervention Programme for Children with ASD

Rodger

Keen

Braithwaite

et al. 2007

Research Intellect Disabil

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Background Early intervention services adopting a family-centred approach are considered important for ensuring parent satisfaction. This study investigated the satisfaction of two mothers with an early intervention programme for young children with autistic spectrum disorder. Materials and Methods While 16 mother-child dyads participated in a larger study, two mothers who reported considerably lower satisfaction with the programme than the rest of the mothers were the focus of this paper. Using descriptive case studies, various child, parent and service delivery factors that may have influenced satisfaction are described. Results Child and parent factors that may have lessened satisfaction for these two mothers included the child's lack of improvement, child's goal performance postintervention, parenting stress and decreased parenting competence. Both mothers also had decreased perceptions of the family-centredness of the service and expressed difficulties with establishing collaborative partnerships. Conclusion This paper proposes that parental satisfaction may be influenced by numerous factors relating to the child, parent and service. Relationships with service providers appear to be particularly important.

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“…Shifting treatment from expert-driven or provider-based models which are child-centered to models emphasizing a collaborative team approach, in which families are integral members, is gaining attention. 15 Such family-centered models consider family concerns and quality of life in developing treatment plans. The findings reported here support and inform the need to consider family effects in planning for services of children with autism.…”

Section: Discussionmentioning

confidence: 99%

The Relationship Between Autism and Parenting Stress

et al. 2007

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OBJECTIVE. We assessed associations between parenting a child with autism and stress indicators.METHODS. In the 2003 National Survey of Children's Health, parents or other knowledgeable adult respondents for children aged 4 to 17 years reported their recent feelings about their life sacrifices to care for their child, difficulty caring for their child, frustration with their child's actions, and anger toward their child. Responses were compiled in the Aggravation in Parenting Scale. Parents of children reported to have autism (N ϭ 459) were compared with parents of: (1) children with special health care needs including emotional, developmental, or behavioral problems other than autism that necessitated treatment (children with other developmental problems [N ϭ 4545]); (2) children with special health care needs without developmental problems (N ϭ 11 475); and (3) children without special health care needs (N ϭ 61 826). Weighted estimates are presented.RESULTS. Parents of children with autism were more likely to score in the high aggravation range (55%) than parents of children with developmental problems other than autism (44%), parents of children with special health care needs without developmental problems (12%), and parents of children without special health care needs (11%). However, within the autism group, the proportion of parents with high aggravation was 66% for those whose child recently needed special services and 28% for those whose child did not. The parents of children with autism and recent special service needs were substantially more likely to have high aggravation than parents of children with recent special service needs in each of the 3 comparison groups. Conversely, parents of children with autism but without recent special service needs were not more likely to have high aggravation than parents of children with other developmental problems.CONCLUSIONS. Parenting a child with autism with recent special service needs seems to be associated with unique stresses.www.pediatrics.org/cgi

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A Model of Positive Behavioral Support for Individuals with Autism and Their Families

Cited by 16 publications

References 30 publications

Family-Centered Care for Children With Autism Spectrum Disorders: A Review

Family-Centered Care for Children With Autism Spectrum Disorders: A Review

Mothers’ Satisfaction with a Home Based Early Intervention Programme for Children with ASD

The Relationship Between Autism and Parenting Stress

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