A Model of Care for Childhood Cancer Survivors That Facilitates Research

Hudson, Melissa M.; Hester, Allison L.; Sweeney, Teresa; Kippenbrock, Sarah; Majcina, Ryan; Vear, Susan I.; Wiard, Sally; Kaplan, Stuart L.

doi:10.1177/1043454204264388

Cited by 32 publications

(23 citation statements)

References 14 publications

(13 reference statements)

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Until recently only a few studies have addressed the availability of programs or services for survivors [36-40]. At the time of our survey, 155 of 179 responding institutions in COG (87%) reported providing LE services.…”

Section: Discussionmentioning

confidence: 99%

Cancer survivorship practices, services, and delivery: a report from the Children’s Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees

et al. 2011

View full text Add to dashboard Cite

(1) Purpose To describe survivorship services provided by the Children's Oncology Group (COG), an assessment of services was undertaken. Our overall aim was 1) to describe survivorship services, including the extent of services provided, resources (personnel, philanthropy, research funding), billing practices, and barriers to care and 2) to describe models of care that are in use for childhood cancer survivors and adult survivors of childhood cancer. (2) Methods 179 of 220 COG institutions (81%) completed an internet survey. (3) Results One hundred fifty-five (87%) reported providing survivorship care. Fifty-nine percent of institutions provide care for their pediatric population in specialized late effects programs. For adult survivors, 47% of institutions chose models of care which included transitioning to adult providers for risk-based health care, while 44% of institutions keep survivors indefinitely at the treating institution (Cancer Center Based Model without Community Referral). Sixty-eight percent provide survivors with a copy of their survivorship care plan (SCP). Only 31% of institutions provide a detailed summary of results after each clinic visit, and 41% have a database to track survivor health outcomes. Survivorship care for initial and annual visits is estimated to be minimally 122 and 91 minutes respectively. The most prevalent barriers to care were the lack of dedicated time for program development and a perceived insufficient knowledge on the part of the clinician receiving the transition referral. (4) Conclusions Not all COG institutions provide dedicated survivorship care, care plans, or have databases for tracking outcomes. Transitioning to adult providers is occurring within the COG. Survivorship care is time-intensive.

show abstract

Section: Discussionmentioning

confidence: 99%

Cancer survivorship practices, services, and delivery: a report from the Children’s Oncology Group (COG) nursing discipline, adolescent/young adult, and late effects committees

et al. 2011

View full text Add to dashboard Cite

show abstract

“…The questions were modeled after the questionnaire used by CCSS in North America [10] and the questionnaire used by the British CCSS [4], as well as the questionnaire used by the After Completion Therapy Clinic (ACT) at St. Jude Children's Research Hospital [18]. The physicians in charge were responsible for recording the diagnosis, treatment, and late effects of CCSs.…”

Section: Measurementsmentioning

confidence: 99%

Mental health among young adult survivors of childhood cancer and their siblings including posttraumatic growth

et al. 2010

View full text Add to dashboard Cite

show abstract

“…This progress has engendered an entirely new subspecialty within pediatric oncology: the medical team providing care for adult survivors of childhood cancer. [1][2][3][4][5][6] Although a great deal of attention has been paid to the psychologic impact of life-threatening disease on the family of the cancer patient and its immediate aftermath, only recently has work been done to explore the effects of the experience years after treatment has been completed.…”

mentioning

confidence: 99%