A mindful self-compassion videoconference intervention for nationally recruited posttreatment young adult cancer survivors: feasibility, acceptability, and psychosocial outcomes

Campo, Rebecca; Bluth, Karen; Santacroce, Sheila Judge; Knapik, Sarah; Tan, Julia; Gold, Stuart; Philips, Kamaira; Gaylord, Susan; Asher, Gary

doi:10.1007/s00520-017-3586-y

Cited by 98 publications

(136 citation statements)

References 47 publications

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“…The relative gender balance of our participants differs from previous videoconferencing interventions with AYA survivors which have reflected the female predominance typically seen in psycho-oncology studies more broadly. 18,31 While to some extent, this reflects the extent that emotional distress is gendered, it also highlights the potential for online programs to overcome the barriers that prevent young men from accessing mental health support. 32 The Recapture Life trial opt-in rate was lower than expected.…”

Section: Acceptabilitymentioning

confidence: 99%

“…For example, Campo and colleagues reported an "enrolment" rate of 64% consenting AYAs (compared with our 87%) and high program completion rates (as with our trial, 92%). 18 These figures suggest that while accessing and recruiting AYAs to research may be challenging, 34,35 online interventions may be a highly engaging way for a subset of AYAs to access support.…”

Section: Acceptabilitymentioning

confidence: 99%

“…14,15 Online psychological support also appears acceptable and feasible for supporting young people with mental health problems. 16,17 Considerably less evidence is available regarding videoconferencing-based online programs, 18,19 although one meta-analysis has suggested that online interventions with more therapist input have greater effects. 17 Videoconferencing-based interventions are also a closer approximation to "real life" clinical interactions 20 and may thus be more appealing to patient users and require less adaptation on the part of the therapist.…”

Section: Introductionmentioning

confidence: 99%

“…Videoconferencing-based platforms have begun to be used internationally with AYAs with cancer. 18 While early evidence suggests that videoconferencing may be acceptable, 18 very limited data have been published, especially within AYA cancer survivors. Data are also lacking to support the safety of using online platforms for vulnerable groups, including AYA cancer survivors.…”

Section: Introductionmentioning

confidence: 99%

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Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors

et al. 2018

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Objective: Online psychological therapies provide a way to connect adolescent and young adult (AYA) cancer survivors to evidence-based support. We aimed to establish the feasibility, acceptability, and safety of Recapture life, a six-session group-based online cognitive-behavioural intervention, led by a facilitator, for AYAs in the early post-treatment period.Methods: A randomised-controlled trial compared Recapture Life to an online peer-support group control and a waitlist control. Participants could nominate a support person. Acceptability was assessed using study opt-in and retention rates, participant-reported benefits/burdens of participation, and group facilitator burden.We also assessed the feasibility (eg, frequency/impact of technological difficulties) and psychological safety (ie, occurrence of clinically concerning distress) of the program.Results: Sixty-one participants took part (45 AYAs, 51.1% female; 19 support people). The opt-in rate was 30%, the enrolment rate was 87%, and 75% of participants took part in ≥5/6 sessions. AYAs reported high benefit and low burden of participation. Overall, 95 online group sessions were conducted; few required rescheduling by group facilitators (3%), but many took place outside of office hours (~90 hours). It took 40 days on average to create online groups, but established weekly sessions commenced quickly (M = 4.0 minutes). Technological difficulties were common but had a low impact on intervention delivery. Although 54% of AYAs returned a clinically concerning distress screen at some point, none reflected acute mental health risks. Conclusions: The data largely indicate that Recapture Life is an acceptable, feasible, and safe model of evidence-based psychological support for AYAs during early survivorship, which nevertheless experienced common challenges in online/AYA intervention delivery. 28:284-292. wileyonlinelibrary.com/journal/pon KEYWORDS adolescent, feasibility, cancer, psychological interventions, oncology, online videoconferencing, survivorship, young adult AYAs High perceived benefit a post booster session / 12m-FU [N (%)] 20 (61%) / 16 (70%) 13 (59%) /12 (75%); 7 (64%) /4 (57%) Low perceived burden ‡ post booster session / 12m-FU [N (%)] 30 (91%) / 20 (87%) 20 (91%) /14 (88%); 10 (91%) /6 (86%) Support persons High perceived benefit a post booster session / 12m-FU [N (%)] 3 (25%) / 1 (11%) 1 (11%) /1 (13%); 2 (67%) /0 (0%); Low perceived burden ‡ post booster session / 12m-FU [N (%)] 12 (100%) / 9 (100%) 9 (100%) /8 (100%); 3 (100%) /1 (100%) Note: Statistics represent summary statistics across all trial arms, with the exception of homework completion. AYA = adolescent and young adult; FU = follow-up; U(x,y) = Mann-Whitney U test statistic, with n 1 = x, n 2 = y observations in each group. aComprised "quite a bit" and "very much" benefit ratings. ‡ Comprised "not at all" and "a little bit" burden ratings.

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Section: Acceptabilitymentioning

confidence: 99%

Section: Acceptabilitymentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors

et al. 2018

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“…53 Telehealth interventions have been shown feasible in delivering AYA care; patient satisfaction is high and telehealth does not affect the relationship and trust between AYAs and their clinicians. [54][55][56][57][58]…”

Section: Accessing Digital Health Information In Disparity Settingsmentioning

confidence: 99%

Evaluating and providing quality health information for adolescents and young adults with cancer

Grace

Schweers

Anazodo

et al. 2019

Pediatric Blood & Cancer

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Adolescents and young adults (AYAs, 15-39 years old) are an ideal population to benefit from the ever-expanding number and variety of cancer information and health resources available via the Internet and other digital platforms. However, the ability of individual AYAs to fully utilize such resources depends on their degree of health literacy. Across the trajectory of cancer care, an important role for the oncology clinician is assisting AYAs and caregivers in accessing quality health information consistent with their level of health literacy. Working from the premise that all AYAs with cancer and their caregivers deserve to be empowered with maximal knowledge about their condition, this review provides information to assist oncology clinicians in (1) understanding the variety of contemporary online resources that are currently available, including their strengths and limitations; (2) evaluating the quality of health information; and (3) recommending specific health information resources to their AYA patients. K E Y W O R D S adolescent and young adult, health communication, health education, health information, health literacy, health promotion, patient education

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Resilience in adolescent and young adult oncology: Problems and prospects

Rosenberg,

Salsman

2023

Cancer

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Although resilience research in adolescent and young adult oncology is promising for improving patient‐centered outcomes, it does not adequately incorporate diverse perspectives of marginalized individuals. Including the unique aspects of minoritized adolescents and young adults and incorporating cultural, community, and system‐level considerations is essential to understanding and promoting resilience in an equitable fashion.

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A mindful self-compassion videoconference intervention for nationally recruited posttreatment young adult cancer survivors: feasibility, acceptability, and psychosocial outcomes

Cited by 98 publications

References 47 publications

Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors

Feasibility, acceptability, and safety of the Recapture Life videoconferencing intervention for adolescent and young adult cancer survivors

Evaluating and providing quality health information for adolescents and young adults with cancer

Resilience in adolescent and young adult oncology: Problems and prospects

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