A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments

France, Emma; Noyes, Jane; Forbat, Liz; Uny, Dr Isabelle; Jordan, Abbie; Caes, Line; Turley, Ruth

doi:10.1002/14651858.cd014873

Cited by 3 publications

(7 citation statements)

References 63 publications

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“…The tool (using various pilot versions) has already been used in Cochrane reviews [12,29,31,[51][52][53][54]. The pilot tools helped to systematize the process and make the underlying judgments more transparent [12,29,31,33]. The use of the pilot assessment tools in published QESs added a layer of systemization to the sampling process.…”

Section: Discussionmentioning

confidence: 99%

“…After publication, two other review teams further developed the assessment tool for use in meta‐ethnographies (Pilot 2 and Pilot 3). France et al [32, 33] piloted a three‐point tool to assess data thickness/richness drawing on Ames' approach and theoretical work by Popay et al [6] (Supporting Information S2: ). Drawing on theoretical work by Sandelowski and Barroso [8], Cooper et al [31] piloted a five‐point tool focusing on the assessment of conceptual richness of studies meeting the inclusion criteria for their meta‐ethnography (Supporting Information S1: ).…”

Section: Methodsmentioning

confidence: 99%

“…We first present the methods and processes for developing and piloting three initial versions of the tool. In the findings section, we present Version 1 of the assessment tool, which was developed based on four pilot tools [12,29,31,32]. We also provide guidance to review authors on how to use and implement the data thickness/richness tool in their QES.…”

Section: Introductionmentioning

confidence: 99%

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Assessing qualitative data richness and thickness: Development of an evidence‐based tool for use in qualitative evidence synthesis

Ames,

France,

Cooper

et al. 2024

Cochrane Evidence Synthesis and Methods

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BackgroundWell‐conducted qualitative evidence syntheses (QESs) can provide invaluable insights into complex phenomena. However, the development of an in‐depth understanding depends on the analysis of rich, thick data from the included primary qualitative studies. Sampling may be needed if there are too many eligible studies. Data richness and thickness are among several criteria that can be taken into consideration when sampling studies for inclusion. However, existing tools do not address explicitly the assessment of both data richness and thickness in the context of QES.MethodsTo address this gap, we have developed, piloted, and conducted initial user testing of a richness and thickness assessment tool. The tool has been in development since 2014. Three pilot versions from three review teams have been used in six Cochrane reviews. Key members from the original three review teams subsequently came together to create a consensus‐based definitive version 1 of the tool. Four review authors piloted the version 1 tool, which has been subject to initial user testing. The version 1 assessment tool consists of two components: assessing the thickness of contextual data and assessing the richness of conceptual data. The accompanying guidance emphasizes the importance of assessing data that addresses the review question.ResultsThe paper provides guidance on how to apply the tool, emphasizing the importance of reaching a consensus among review authors and fostering a shared understanding of what constitutes rich and thick data in the context of the review. The potential challenges related to the time and resource constraints of this additional review process are acknowledged.ConclusionVersion 1 of the tool represents a significant development in QES methodology, filling a critical gap and enhancing the transparency and rigor of the sampling process. The authors invite feedback from the research community to further test, refine and improve this tool based on wider user experiences.

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Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Assessing qualitative data richness and thickness: Development of an evidence‐based tool for use in qualitative evidence synthesis

Ames,

France,

Cooper

et al. 2024

Cochrane Evidence Synthesis and Methods

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“…Stage 1: Each report was assessed for data richness and relevance to the review objectives, using a scale adapted by France et al 19 The CASP assessment was used to measure methodological quality. Studies were selected that were post-2010 (to give most contemporary practice), that had minor or no methodological concerns, and were assessed to have thick or very thick qualitative findings that related to the synthesis objectives.…”

Section: Methodsmentioning

confidence: 99%

“…18 Informed by Ames et al a two stage sampling framework was used to sample methodologically robust studies, with rich data that was relevant to the synthesis and that captured parents' experiences across a broad range of settings, countries and child diagnoses. 18 Stage 1: Each report was assessed for data richness and relevance to the review objectives, using a scale adapted by France et al 19 The CASP assessment was used to measure methodological quality. Studies were selected that were post-2010 (to give most contemporary practice), that had minor or no methodological concerns, and were assessed to have thick or very thick qualitative findings that related to the synthesis objectives.…”

Section: Purposive Sampling Strategymentioning

confidence: 99%

Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis

et al. 2022

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Background: An estimated 21 million children worldwide would benefit from palliative care input and over 7 million die each year. For parents of these children this is an intensely emotional and painful time through which they will need support. There is a lack of synthesised research about how parents experience the care delivered to their child at the end of life. Aim: To systematically identify and synthesise qualitative research on parents’ experiences of end-of-life care of their child. Design: A qualitative evidence synthesis was conducted. The review protocol was registered in PROSPERO (CRD42021242946). Data sources: MEDLINE, EMBASE, CINAHL, PsycINFO and Web of Science databases were searched for qualitative studies published post-2000 to April 2020. Studies were appraised for methodological quality and data richness. Confidence in findings was assessed by GRADE-CERQual. Results: About 95 studies met the eligibility criteria. A purposive sample of 25 studies was taken, of good-quality papers with rich data describing the experience of over 470 parents. There were two overarching themes: parents of children receiving end-of-life care experienced a profound need to fulfil the parental role; and care of the parent. Subthemes included establishing their role, maintaining identity, ultimate responsibility, reconstructing the parental role, and continuing parenting after death. Conclusions: Services delivering end-of-life care for children need to recognise the importance for parents of being able to fulfil their parental role and consider how they enable this. What the parental role consists of, and how it’s expressed, differs for individuals. Guidance should acknowledge the need to enable parents to parent at their child’s end of life.

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Understanding the importance of therapeutic alliance during physiotherapy treatment for musculoskeletal pain in children: a scoping review

Joslin,

Allen,

Carter

2024

Front. Pain Res.

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IntroductionMusculoskeletal pain affecting children is common. Rehabilitation and treatment effectiveness can be influenced by multiple individual and contextual factors. The need for more rigorous evaluation of physiotherapy treatment for children's pain, identification of the role of specific techniques, and exploration of the influence of the therapeutic alliance is needed. This scoping review of research aimed to examine: (1) What are the perceptions of children, parents, and physiotherapists about the importance of therapeutic alliance during musculoskeletal pain treatment? (2) What are the key characteristics of therapeutic alliance during a child's musculoskeletal pain treatment from the perspectives of children, parents, and physiotherapists? and (3) What are the perceived impacts of therapeutic alliance (positive and negative) during a child's physiotherapy treatment for musculoskeletal pain?MethodsThe scoping review, based on Arksey and O'Malley's framework and reporting was guided by PRISMA-ScR. The search strategy was based on three concept blocks: (1) Study population: Children (<18 years); (2) Medical condition: Any musculoskeletal pain (acute, chronic primary, chronic secondary); (3) Intervention: Qualitative exploration of experience of physiotherapy treatment delivered by a physiotherapist from the perspective of a child, parent, or physiotherapist. The search (no date limit) was conducted in February 2024 across Medline, AMED and CINAHL.ResultsFollowing duplicate removal and assessment of eligibility of the initial 236 articles, nine articles were included; of these, only one specifically aimed to explore therapeutic alliance and it was the only paper to directly mention therapeutic alliance. All nine articles presented the child's experience. One overarching theme “Finding resilience within me through therapeutic alliance” and three main themes: “A trusted guide through the ups and the downs of rehabilitation”; “Having a route map”; and “Take me seriously but make it fun” were identified.DiscussionTherapeutic alliance was considered important by children, parents and physiotherapist and it influenced child and parent perceptions of physiotherapy and overall treatment outcomes. Physiotherapists can foster the children's resilience when experiencing musculoskeletal pain by providing disciplinary expertise, connecting and collaborating with the child by becoming their trusted guide, and co-creating a route map for rehabilitation by helping them to learn about their body, pain and recovery timeline.

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A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments

Abstract: A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments (Protocol).

Cited by 3 publications

References 63 publications

Assessing qualitative data richness and thickness: Development of an evidence‐based tool for use in qualitative evidence synthesis

Assessing qualitative data richness and thickness: Development of an evidence‐based tool for use in qualitative evidence synthesis

Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis

Understanding the importance of therapeutic alliance during physiotherapy treatment for musculoskeletal pain in children: a scoping review

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