A longitudinal study of mental health consumer/survivor initiatives: Part 1—Literature review and overview of the study

Nelson, Geoffrey; Ochocka, Joanna; Janzen, Rich; Trainor, John

doi:10.1002/jcop.20097

Cited by 43 publications

(33 citation statements)

References 47 publications

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“…Those with serious mental illness universally indicate that they believe peer support is one of the most helpful interventions they have experienced. Several studies have confirmed these perceptions [113][114]. Peer support groups are run by individuals with serious mental illness for others who have similar problems.…”

Section: Peer Supportmentioning

confidence: 93%

Psychosocial rehabilitation: Approach of choice for those with serious mental illnesses

Farkas¹,

Jansen²,

Penk³

2007

JRRD

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Section: Peer Supportmentioning

confidence: 93%

Psychosocial rehabilitation: Approach of choice for those with serious mental illnesses

Farkas¹,

Jansen²,

Penk³

2007

JRRD

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“…Included texts originate in many different disciplines, reflecting a lack of disciplinary dominance over this field of research. However, a number of authors are represented in several texts, which is especially noteworthy with regard to Nelson who is the co-author of six texts Nelson et al 2006aNelson et al , b, 2007Nelson et al , 2008Nelson and Lomotey 2006) and Brown who is represented as author or co-author of eight texts (Brown 2009a, b;Brown et al 2007aBrown et al , b, 2008aBrown et al , b, 2010Brown and Townley 2015). The frequent representation of US authors from community psychiatry studies potentially creates bias to issues central within that context and field.…”

Section: Categorization and The Synthesizing Processmentioning

confidence: 99%

“…MHSUOs aim to be different from traditional mental health services, often understood to be bureaucratic and oppressive (Nelson et al 2006a). Alternative organizational forms have been developed in MHSUOs, involving high levels of volunteers, processes for democratic decision making and service user-exclusive groups (Boyce et al 2010;Kleintjes et al 2013b;Tanenbaum 2012).…”

Section: Processes Of Organizational Professionalizationmentioning

confidence: 99%

“…Alternative organizational forms have been developed in MHSUOs, involving high levels of volunteers, processes for democratic decision making and service user-exclusive groups (Boyce et al 2010;Kleintjes et al 2013b;Tanenbaum 2012). These aspects are described as unique features of MHSUOs and can be analyzed as constituting a counter-discourse that challenges the values and assumptions of hegemonic organizational models (Boyce et al 2010;Brown et al 2008a;Brown and Townley 2015;Kleintjes et al 2013b;Nelson et al 2006a). Grassroots activity in popular spaces, independent of traditional mental health service systems, is an important part of MHSUOs and vital for the development of alternative organizational models (Baumann 2014;Brown et al 2007a).…”

Section: Processes Of Organizational Professionalizationmentioning

confidence: 99%

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Participatory Spaces of Mental Health Service User Organizations in the Post-deinstitutional Era: Mapping Roles and Challenges

2017

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By applying the concept of participatory spaces, this article maps and analyzes current research on mental health service user organizations (MHSUOs). We have analyzed research literature from 2006 to 2016 to examine how the role of and challenges facing MHSUOs are formulated in the post-deinstitutional era. The current situation is marked by MHSUOs parallel presence in invited, claimed and popular spaces for participation. The postdeinstitutional era is characterized by a shift in focus from gaining access to such participatory spaces, to critically examining the political opportunities available in these. We further argue that the dominance of psychiatry-specific spaces could prevent MHSUOs from fully exploring their potential for participation in broader social issues.

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“…26,27 Social support/functioning Individuals involved in peer-run services had improved social functioning compared with individuals in traditional mental health services. 28 People continuously involved in peer support programmes over three years scored significantly higher than comparison groups on a measure of 'community integration'. 29 Participants who received peer support demonstrated improved social support, enhanced social skills and better social functioning.…”

Section: Economic or Monetary Impactmentioning

confidence: 99%

The Partners in Recovery program: mental health commissioning using value co‐creation

Cheverton

Janamian

2016

Medical Journal of Australia

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strategy -Unstoppable Together -recognises that the next few years are a crucial time for mental health. We want to ensure that millions more people are able to access the mental health services that will help them recover and stay well.Engaging with mental health experts through experience is at the heart of Mind's work. We do this both nationally and through our unique network of local Minds delivering services across England and Wales.At Mind, we believe that co-production reflects our continuing work to engage meaningfully with the people who use our services. This is reflected in our values as a network and underpins our approach to service delivery. Our ambition is that co-production becomes central to the way the Mind network operates.In 2013, we commissioned nef (the new economics foundation) to carry out a review of existing evidence regarding co-production -examining when, why, and how it has been used in mental health and what impact it has had on people's lives and their recovery. What next around co-production in mental health?We will use the evidence and the recommendations from this report to drive our work on co-production in the Mind network and ensure that we are offering the best possible support to those who use our services.We also hope the findings and the case studies will reinvigorate interest and commitment to co-production in the commissioning, design, delivery, and evaluation of services, in order to truly transform services across all mental health settings. We know that much has been done already in this area but there is much more to do before co-production becomes the norm. Foreword from MindWe're Mind, the mental health charity. We want everyone experiencing a mental health problem to get the support they need and the respect they deserve. Introduction 2The project has been developed within Mind's national programme -the Network Personalisation Programme -to position the network of local Minds as market leaders of high quality, recovery focused, personalised services that individuals want to buy. This programme contributes towards the achievement of Mind's Unstoppable Together strategy (2012)(2013)(2014)(2015)(2016) with the ultimate aim of increasing the number of people with mental health problems who are able to access timely and individual support to make their own choices via the Mind network.The need for this work on co-production within the Network Personalisation Programme emerged in a time of great financial challenge, as a way of exploring additional resources to tap in to for strengthening social care and promoting a better understanding of how to engage with communities in services that promote co-operation, equity, inclusion, and well-being. MethodologyWe used an existing database of co-production literature which is kept by nef and updated regularly with new materials to identify the key literature on coproduction in mental health. We also conducted a brief internet-based search for any new materials, and sought input from five mental health co-production specialist...

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A longitudinal study of mental health consumer/survivor initiatives: Part 1—Literature review and overview of the study

Abstract: Mental health consumer-run organizations are alternatives to mainstream

Cited by 43 publications

References 47 publications

Psychosocial rehabilitation: Approach of choice for those with serious mental illnesses

Psychosocial rehabilitation: Approach of choice for those with serious mental illnesses

Participatory Spaces of Mental Health Service User Organizations in the Post-deinstitutional Era: Mapping Roles and Challenges

The Partners in Recovery program: mental health commissioning using value co‐creation

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