‘A living death’: a qualitative assessment of quality of life among women with trichiasis in rural Niger

Palmer, Stephanie L.; Winskell, Kate; Patterson, Amy E.; Kadri, Boubacar; Ibrahim, Fatahou; Namata, Ibrahim; Oungoila, Tahirou; Kane, Mohamed S.; Hassan, Adamou Sabo; Mosher, Aryc W.; Hopkins, Donald R.; Emerson, Paul M.

doi:10.1093/inthealth/ihu054

Cited by 31 publications

(31 citation statements)

References 12 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Outcomes studies are in agreement with the perception that patients who underwent TT surgery have their symptoms alleviated and avoid vision loss, and others have shown improvements in quality of life [19–22]. Additionally, women tend to be more affected by TT than men, since women traditionally care for and therefore gain more exposure to infected children [7, 23].…”

Section: Discussionsupporting

confidence: 69%

Identifying Patient Perceived Barriers to Trichiasis Surgery in Kongwa District, Tanzania

Bickley

Mkocha²,

Muñoz

et al. 2017

PLoS Negl Trop Dis

View full text Add to dashboard Cite

BackgroundTrachomatous trichiasis (TT), inturned eyelashes from repeated infection with Chlamydia trachomatis, is the leading infectious cause of blindness in the world. Though surgery will correct entropion caused by trachoma, uptake of TT surgery remains low. In this case-control study, we identify barriers that prevent TT patients from receiving sight-saving surgery.Methodology/Principal FindingsParticipants were selected from a database of TT cases who did (acceptors) and did not (non-acceptors) have surgery as of August 2015. We developed an in-home interview questionnaire, using open and closed-ended questions on perceived barriers to accessing surgical services. We compared responses between the acceptors and non-acceptors, examining differences in reasons for and against surgery, sources of TT information, and suggestions for improving surgical delivery. 167 participants (mean age 61 years, 79.7% females) were interviewed. Compared to acceptors, non-acceptors were more likely to report they had no one to accompany them to surgery (75.3% vs. 42.6%, p<0.0001), they could manage TT on their own (69.9% vs. 31.5%, p<0.0001), and the surgery camp was too far (53.4% vs. 28.7%, p = 0.001). Over 90% of both acceptors and non-acceptors agreed on the benefits of having surgery. Fear of surgery was the biggest barrier stated by both groups. Despite this fear, acceptors were more likely than non-acceptors to also report fear of losing further vision without surgery.Conclusions/SignificanceBarriers included access issues, familial and/or work responsibilities, the perception that self-management was sufficient, and lack of education about surgery. Fear of surgery was the biggest barrier facing both acceptors and non-acceptors. Increasing uptake will require addressing how surgery is presented to community residents, including outlining treatment logistics, surgical outcomes, and stressing the risk of vision loss.

show abstract

Section: Discussionsupporting

confidence: 69%

Identifying Patient Perceived Barriers to Trichiasis Surgery in Kongwa District, Tanzania

Bickley

Mkocha²,

Muñoz

et al. 2017

PLoS Negl Trop Dis

View full text Add to dashboard Cite

show abstract

“…It is fitting that Guinea worm disease translates to ‘the disease of the empty granary’ in Bambara, spoken by Dogon people in Mali, since the peak transmission period coincides with the harvesting season [36]. In addition, trichiasis and onchocerciasis prevents women from working, including fulfilling their traditional role as primary food providers due to visual impairment [37], making it difficult to work, socialise and even to walk beyond their homes [38]. …”

Section: Main Textmentioning

confidence: 99%

The cross-cutting contribution of the end of neglected tropical diseases to the sustainable development goals

et al. 2017

View full text Add to dashboard Cite

The Sustainable Development Goals (SDGs) call for an integrated response, the kind that has defined Neglected Tropical Diseases (NTDs) efforts in the past decade.NTD interventions have the greatest relevance for SDG3, the health goal, where the focus on equity, and its commitment to reaching people in need of health services, wherever they may live and whatever their circumstances, is fundamentally aligned with the target of Universal Health Coverage. NTD interventions, however, also affect and are affected by many of the other development areas covered under the 2030 Agenda. Strategies such as mass drug administration or the programmatic integration of NTD and WASH activities (SDG6) are driven by effective global partnerships (SDG17). Intervention against the NTDs can also have an impact on poverty (SDG1) and hunger (SDG2), can improve education (SDG4), work and economic growth (SDG8), thereby reducing inequalities (SDG10). The community-led distribution of donated medicines to more than 1 billion people reinforces women’s empowerment (SDG5), logistics infrastructure (SDG9) and non-discrimination against disability (SDG16). Interventions to curb mosquito-borne NTDs contribute to the goals of urban sustainability (SDG11) and resilience to climate change (SDG13), while the safe use of insecticides supports the goal of sustainable ecosystems (SDG15). Although indirectly, interventions to control water- and animal-related NTDs can facilitate the goals of small-scale fishing (SDG14) and sustainable hydroelectricity and biofuels (SDG7).NTDs proliferate in less developed areas in countries across the income spectrum, areas where large numbers of people have little or no access to adequate health care, clean water, sanitation, housing, education, transport and information. This scoping review assesses how in this context, ending the epidemic of the NTDs can impact and improve our prospects of attaining the SDGs.Electronic supplementary materialThe online version of this article (doi:10.1186/s40249-017-0288-0) contains supplementary material, which is available to authorized users.

show abstract

“…Whilst we are used to the concept of collateral damage, the SAFE strategy comes with considerable collateral benefits. Such benefits include the improved quality of life associated with surgery, particularly for patients who are yet to suffer loss of vision [1]. An annual dose of azithromycin increases child survivorship by reducing mortality from common ailments like malaria, bacterial respiratory tract infections, and diarrhea, the three of which remain the primary killers of children living in poverty—children who do not have routine access to antibiotics [2, 3].…”

Section: The Problem Of Trachomamentioning

confidence: 99%

Progress and projections in the program to eliminate trachoma

Emerson

Hooper

Sarah³

2017

PLoS Negl Trop Dis

Self Cite

View full text Add to dashboard Cite

‘A living death’: a qualitative assessment of quality of life among women with trichiasis in rural Niger

Cited by 31 publications

References 12 publications

Identifying Patient Perceived Barriers to Trichiasis Surgery in Kongwa District, Tanzania

Identifying Patient Perceived Barriers to Trichiasis Surgery in Kongwa District, Tanzania

The cross-cutting contribution of the end of neglected tropical diseases to the sustainable development goals

Progress and projections in the program to eliminate trachoma

Contact Info

Product

Resources

About