“A little bit of a guidance and a little bit of group support”: a qualitative study of preferences, barriers, and facilitators to participating in community-based exercise opportunities among adults living with chronic pain

Dnes, Natalie; Coley, Bridget; Frisby, Kaitlyn; Keller, A.M.; Suyom, Jezreel; Tsui, Cindy; Grant, Gillian; Vader, Kyle; Hunter, Judith

doi:10.1080/09638288.2020.1742801

Cited by 16 publications

(14 citation statements)

References 58 publications

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“…Improvements up to two times greater than those of unsupervised training can be observed, however without necessarily being maintained for the long-term at 1 year (45). A recent study has explored the experience of the transition from a supervised exercise in the hospital to a community-based unsupervised program in prostate cancer patients, emphasizing the importance of a structured, accompanied and over time monitored relay (46). Dnes et al (47) identified the barriers and facilitators to participating in community-based exercise opportunities from the perspective of adults with chronic pain, including FM.…”

Section: Discussionmentioning

confidence: 99%

“…A recent study has explored the experience of the transition from a supervised exercise in the hospital to a community-based unsupervised program in prostate cancer patients, emphasizing the importance of a structured, accompanied and over time monitored relay ( 46 ). Dnes et al ( 47 ) identified the barriers and facilitators to participating in community-based exercise opportunities from the perspective of adults with chronic pain, including FM. The main factors identified were participation in groups with similar levels of capabilities, delivered by an instructor able to tailor exercises to chronic pain and recommended by their healthcare provider.…”

Section: Discussionmentioning

confidence: 99%

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Efficiency of an Optimized Care Organization in Fibromyalgia Patients: The From Intent to Move (FIMOUV) Study Protocol of a Randomized Controlled Trial

Colas

Goutte

Créac’h

et al. 2021

Front. Public Health

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Introduction: Fibromyalgia (FM) is characterized by multiple symptoms including pain, fatigue, and sleep disorders, altering patient's quality of life. In the absence of effective pharmacological therapy, the last European guidelines recommend a multidisciplinary management based on exercise and education. Thus, our main objective was to measure the effectiveness of a healthcare organization offering a specific program of adapted physical activity combined with a therapeutic education program for FM patients.Methods and Analysis: The From Intent To Move (FIMOUV) study will recruit 330 FM patients randomized into two groups: test and control. The test group will benefit from a 1-month mixed exercise training program supervised at the hospital, followed by 2 months in a community-based relay in a health-sport structure. In addition, each of the two groups will benefit from therapeutic patient education sessions. The main endpoint is the measurement of the level of physical activity by accelerometry at 1 year. The secondary endpoints concern adherence to the practice of physical activity, impact on lifestyle, state of health, and physical capacity, as well as an estimate of the budgetary impact of this management strategy.Discussion: This interventional research will allow us to assess the evolution of behaviors in physical activity after an FM syndrome management based solely on patient education or based on a supervised and adapted practice of physical activity associated with this same therapeutic education program. It seems to be the first study evaluating the impact of its intervention on objective data for measuring physical activity and sedentary behavior via accelerometry among FM patients.Trial registration:ClinicalTrials.gov NCT04107948.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Efficiency of an Optimized Care Organization in Fibromyalgia Patients: The From Intent to Move (FIMOUV) Study Protocol of a Randomized Controlled Trial

Colas

Goutte

Créac’h

et al. 2021

Front. Public Health

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“…31 Furthermore, participants' emphasis on facilitating patient connections with community resources not only aligns well with a chronic disease management approach, 32 but is specifically supported by Dnes and colleagues' research highlighting that adults with chronic pain want their healthcare providers to make connections with community-based exercise programming. 33 Previous work by Hutting and colleagues has described the role of physiotherapists in promoting the use of self-management strategies for people with chronic musculoskeletal disorders. 34 Within our study, participants indicated that they strive to support and empower their patients to implement various chronic pain self-management strategies, including physical, mindbody, and behavioural strategies.…”

Section: Discussionmentioning

confidence: 99%

“… 32 Furthermore, participants’ emphasis on facilitating patient connections with community resources not only aligns well with a chronic disease management approach 33 but is specifically supported by Dnes and colleagues’ research highlighting that adults with chronic pain want their health care providers to make connections with community-based exercise programming. 34 …”

Section: Discussionmentioning

confidence: 99%

Exploring physiotherapy practice within hospital-based interprofessional chronic pain clinics in Ontario

Thacker

Walsh

Song

et al. 2021

Canadian Journal of Pain

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Background: Chronic pain affects one in five persons and is a leading contributor to years lived with disability and high healthcare costs. In 2016, the Government of Ontario increased public funding for pediatric and adult hospital-based interprofessional chronic pain clinics (HICPCs) in Ontario, Canada, expanding the role of physiotherapy in chronic pain management in the province. This role has yet to be described in the literature. Aim: To explore physiotherapy practice within HICPCs in Ontario. Methods: We conducted an interpretive description qualitative study based on semistructured interviews with physiotherapists employed in pediatric and adult HICPCs in Ontario. Interviews were audio recorded, transcribed verbatim, and reviewed for accuracy. We analysed interview data using thematic analysis. Results: Ten physiotherapists who practiced in pediatric and adult HICPCs (n=4 pediatric; n=6 adult) in Ontario were interviewed between February and April 2020. We constructed five themes related to physiotherapy practice in this setting. Themes included: (1) contributing a functional lens to care; (2) empowering through pain education; (3) facilitating participation in physical activity and exercise; (4) supporting engagement in self-management strategies; and (5) implementing a collaborative approach to whole person care. Conclusions: Our results illuminate how physiotherapy practice within HICPCs in Ontario focuses on providing a collaborative and whole person approach to care, with an emphasis on supporting patients to increase their functional capacity by promoting engagement in active chronic pain management strategies.

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“…20 21 CBE has been well established and researched in other populations of individuals living with chronic conditions. [22][23][24][25] CBE can cultivate social interaction, encourage regular exercise and facilitate self-management strategies in PLWH to independently manage health challenges. [26][27][28][29] Additionally, CBE can provide physical health benefits in PLWH such as a decrease in lipid profile, waist circumference, diastolic and systolic blood pressure, and an increase in upper and lower body muscular strength.…”

Section: Introductionmentioning

confidence: 99%

Considerations for Developing and Implementing an Online Community-Based Exercise Intervention for Adults Living with HIV: a qualitative study

Lau

Sharma

Manku

et al. 2021

Preprint

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ObjectivesTo describe the need for and utility of online community-based exercise (CBE) interventions with adults living with HIV and identify factors to consider in developing and implementing an online CBE intervention with adults living with HIV.DesignQualitative descriptive study using web-based semi-structured interviews.ParticipantsWe recruited adults representing at least one of five stakeholder groups with experience in CBE and/or HIV: 1) adults living with HIV, 2) rehabilitation professionals, 3) fitness personnel, 4) educators with eLearning experience, and 5) representatives from HIV community-based organizations (CBOs).Data CollectionWe asked participants to describe their experiences with online CBE, need and utility for online CBE, and factors in developing and implementing online CBE interventions. We analyzed data using group-based content analytical techniques.ResultsAmong the 11 participants, most had experience working with adults living with HIV (73%) or with tele-health/rehabilitation/coaching in HIV or other chronic conditions (91%). Participants identified the need and utility for online CBE interventions to increase accessibility and continuity of care with adults living with HIV. Six factors to consider in developing and implementing online CBE included: 1)person-specific considerations (episodic nature of HIV, stigma, HIV disclosure), 2)accessibility of program (physical space to exercise, reliable internet, access to devices, digital literacy), 3)program delivery and technology (live versus pre-recorded online classes, multiple online platforms for delivery, physical activity tracking, troubleshooting technology), 4)attributes of program personnel (working with CBOs, relatable instructors, diverse staff), 5)program content and design (tailored exercise classes, educational sessions) and 6)building community (shared experiences, peer support, social opportunities).ConclusionsThere is a need and utility for online CBE in the context of HIV. Considerations for development and implementation span individual, structural and technical, and community dimensions. Results can inform the future development and implementation of online CBE with adults living with HIV and other chronic episodic conditions.STRENGTHS & LIMITATIONS OF THIS STUDYTo our knowledge, this is the first qualitative study exploring the perspectives of key stakeholders in developing and implementing an online community-based exercise (CBE) program for adults living with HIV.Insights gained from this study can help to inform future online community-based exercise programming for adults living with HIV and other chronic and episodic conditions.We used the Model for ASsessment of Telemedicine applications (MAST) framework as a conceptual foundation to design the interview guide, which enabled us to comprehensively explore diverse aspects of telemedicine services in relation to information, communication and technology.All interviews were conducted online with participants who had access to technological devices and reliable internet, therefore, results may not be transferable to individuals or contexts without access to technology.Most participants were living in Canada, hence, it is unclear how results may be transferable to other geographical contexts.

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“A little bit of a guidance and a little bit of group support”: a qualitative study of preferences, barriers, and facilitators to participating in community-based exercise opportunities among adults living with chronic pain

Cited by 16 publications

References 58 publications

Efficiency of an Optimized Care Organization in Fibromyalgia Patients: The From Intent to Move (FIMOUV) Study Protocol of a Randomized Controlled Trial

Efficiency of an Optimized Care Organization in Fibromyalgia Patients: The From Intent to Move (FIMOUV) Study Protocol of a Randomized Controlled Trial

Exploring physiotherapy practice within hospital-based interprofessional chronic pain clinics in Ontario

Considerations for Developing and Implementing an Online Community-Based Exercise Intervention for Adults Living with HIV: a qualitative study

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