A Hospital-Based Online Patients Support Program, Online Adolescent and Young Adult Hiroba, for Adolescent and Young Adult Cancer Patients at a Designated Cancer Center in Japan

Hirayama, Takatoshi; Kojima, Rebekah; Udagawa, Ryoko; Yanai, Yuko; Ogawa, Yuko; Tanaka, Moeko; Kayano, Ayako; Mashiko, Yuki; Ogata, Kyoka; Ishiki, Hiroto; Satomi, Eriko

doi:10.1089/jayao.2021.0168

Cited by 5 publications

(7 citation statements)

References 15 publications

(17 reference statements)

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“…Thus, the overall NPS was 27, which was lower than the value of 52 obtained in our previous study. 18 The common demographic characteristics of the two participants who reported an NPS of 0–6 were male outpatients whose therapeutic purpose was curative.…”

Section: Resultsmentioning

confidence: 99%

“…Thus, online 18 or hybrid sessions may be more accessible to male patients in Japan for peer support participation. Outpatients and those participating online each accounted for more than half of the total (with overlap).…”

Section: Discussionmentioning

confidence: 99%

“… 16 In Japan, the AYA generation uses the internet at a high rate, both via smartphones and personal computers. 17 We named the online get-together opportunities for AYA patients with cancer, “Online AYA Hiroba.” 18 Later, as the COVID-19–related restriction eased, peer support was provided in a hybrid manner, with both in-person and online events.…”

Section: Introductionmentioning

confidence: 99%

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Preliminary Effectiveness of an In-Hospital Peer Support Program, Adolescent and Young Adult Hiroba, on Anxiety in Adolescent and Young Adult Patients with Cancer

Hirayama,

Kojima,

Udagawa

et al. 2024

Journal of Adolescent and Young Adult Oncology

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Purpose: Adolescent and young adult (AYA) patients with cancer have few opportunities to connect with patients of the same generation while hospitalized. Although anxiety is frequently reported by them, there are no reports on the psychological effectiveness of an in-hospital patient support program based on peer support. This study aimed to evaluate the effectiveness of a program, termed Adolescent and Young Adult Hiroba (AYA Hiroba), for anxiety in AYA patients with cancer. Methods: This single-center, prospective, observational study in 24 AYA patients with cancer was conducted at the National Cancer Center Hospital in Japan. The Hospital Anxiety and Depression Scale—Anxiety (HADS-A) was used to evaluate the primary outcome, anxiety. The Distress Thermometer (DT) was used to evaluate the secondary outcome, distress. The two outcomes were assessed before and after participation in AYA Hiroba. The Net Promoter Score (NPS) was used to evaluate satisfaction after participation in AYA Hiroba. Participants' free-text descriptions of the program were categorized according to similarities and differences. Results: The HADS-A and DT scores were significantly lower after the program than before ( p < 0.001), as was the percentage of AYA patients with cancer with high distress ( p = 0.04). The NPS was 27, which was lower than the value of 52 obtained in our previous study. Requests and suggestions to improve the program were grouped into three categories: content, facilitation, and online connection environment. Conclusion: This study suggests the preliminary effectiveness of the in-hospital peer support program for anxiety in AYA patients with cancer. The Clinical Trial Registration number: UMIN000045779.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Preliminary Effectiveness of an In-Hospital Peer Support Program, Adolescent and Young Adult Hiroba, on Anxiety in Adolescent and Young Adult Patients with Cancer

Hirayama,

Kojima,

Udagawa

et al. 2024

Journal of Adolescent and Young Adult Oncology

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“…Patients reported the unavailability of community-based resources, such as peer cancer support programs [ 18 ▪ ]. Although some programs were offered virtually [ 18 ▪ , 34 ], patients felt these interactions were not as meaningful as in-person [ 18 ▪ ]. However, the pandemic-imposed social isolation made virtual support programs desirable over none, particularly among adolescent and young adult patients with cancer [ 34 ].…”

Section: Resultsmentioning

confidence: 99%

“…Although some programs were offered virtually [ 18 ▪ , 34 ], patients felt these interactions were not as meaningful as in-person [ 18 ▪ ]. However, the pandemic-imposed social isolation made virtual support programs desirable over none, particularly among adolescent and young adult patients with cancer [ 34 ]. Social isolation compounded the psychological morbidity of patients/caregivers [ 24 ▪ ], most significantly for bereaved caregivers [ 35 ].…”

Section: Resultsmentioning

confidence: 99%

Palliative care delivery changes during COVID-19 and enduring implications in oncology nursing: a rapid review

Levoy

Foxwell

Rosa

2022

Current Opinion in Supportive &Amp; Palliative Care

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Purpose of reviewA rapid review was conducted to synthesize evidence of palliative care delivery changes during the COVID-19 pandemic. Changes were synthesized according to the eight domains of high-quality palliative care and enduring implications for oncology nurses beyond the pandemic discussed. Recent findingsThe most significant changes occurred in the structure and processes of palliative care (Domain 1), where increased utilization of telehealth was critical in circumventing barriers imposed by COVID-19 mitigation. The suboptimal availability of community-based psychosocial supports for patients and caregivers and inadequate health system-based psychosocial supports for healthcare providers were highlighted (Domains 3--5). The pandemic also ushered in an increased emphasis on the need for advance care planning (ACP), where integrating its delivery earlier in the outpatient setting and shifting policy to promote subsequent virtual documentation (Domain 8) were essential to ensure care preferences were clarified and accessible before health crises occurred.

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Mental health care use and related factors in adolescents and young adults with cancer

Hirayama¹,

Ikezawa

Okubo

et al. 2023

Support Care Cancer

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Purpose The actual state of mental health care use and related factors in adolescent and young adult (AYA) patients with cancer is not well understood in Japan. This study aimed to (1) examine the actual state of mental health care use among AYA patients with cancer and (2) describe socio-demographic and related factors associated with mental health care use. Methods We retrospectively reviewed the medical records of AYA patients with cancer aged 15–39 who first visited the National Cancer Center Hospital in Japan (NCCH) between January 2018 and December 2020. Logistic regression was used to analyze the association between social background characteristics and mental health care use. The association between the patient's course of cancer treatment and mental health care use was analyzed to help identify which patients might benefit from early mental health intervention. Results Among 1,556 patients, 945 AYA patients with cancer were registered. The median age at the time of the study was 33 years (range, 15–39 years). The prevalence of mental health care use was 18.0% (170/945). Age 15–19 years, female gender, urogenital cancer, gynecological cancer, bone or soft tissue cancer, head and neck cancer, and stage II–IV disease were associated with mental health care use. Regarding treatment, palliative treatment, chemotherapy, and hematopoietic stem cell transplantation were associated with mental health care use. Conclusion Factors associated with mental health care use were identified. Our findings potentially contribute to psychological support interventions for AYA patients with cancer.

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A Hospital-Based Online Patients Support Program, Online Adolescent and Young Adult Hiroba, for Adolescent and Young Adult Cancer Patients at a Designated Cancer Center in Japan

Cited by 5 publications

References 15 publications

Preliminary Effectiveness of an In-Hospital Peer Support Program, Adolescent and Young Adult Hiroba, on Anxiety in Adolescent and Young Adult Patients with Cancer

Preliminary Effectiveness of an In-Hospital Peer Support Program, Adolescent and Young Adult Hiroba, on Anxiety in Adolescent and Young Adult Patients with Cancer

Palliative care delivery changes during COVID-19 and enduring implications in oncology nursing: a rapid review

Mental health care use and related factors in adolescents and young adults with cancer

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