2022
DOI: 10.1056/nejmp2209491
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A Hidden Crisis

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Cited by 4 publications
(5 citation statements)
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“…Our findings align with the realities of dealing with these types of health issues in family members, as they require intense attention and devotion to support in managing daily duties; in making decisions, choices or taking action throughout the day, attending healthcare visits and maintaining their treatment or medication regimens and personal safety 6. Our findings again correlate with several others who found a higher burden for care of parents, spouses and children than for siblings 1 6 10 11 14 33…”
Section: Discussionsupporting
confidence: 87%
“…Our findings align with the realities of dealing with these types of health issues in family members, as they require intense attention and devotion to support in managing daily duties; in making decisions, choices or taking action throughout the day, attending healthcare visits and maintaining their treatment or medication regimens and personal safety 6. Our findings again correlate with several others who found a higher burden for care of parents, spouses and children than for siblings 1 6 10 11 14 33…”
Section: Discussionsupporting
confidence: 87%
“…Moreover, people with dementia are more likely to have do‐not‐resuscitate orders which have been associated with increased mortality and reduced rehospitalization 14,15 . While many with dementia have ACP documentation, many do not, leaving care partners and clinicians to grapple with what to do when crises arise 9 . PCI may be the best treatment plan for the patient, but not the best plan for the care partner.…”
Section: Figurementioning
confidence: 99%
“…7,8 People with ADRD and their care partners routinely face complex decisions before PCI regarding: employment and finances; where to live; who gives assistance with instrumental activities of daily living (including transportation and medication management) and activities of daily living; and whether to go to the emergency department or be admitted to the hospital. 9 To better define success, we need to first understand the person's values and what matters most to them, and then determine if the potential risks and benefits of PCI align with their values and health priorities (Figure 1).…”
mentioning
confidence: 99%
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“…[4][5][6] At our institution, we have used illustrated case studies to thematically tie together a longitudinal, interprofessional programme spanning preclinical to clinical curricula. These illustrated case studies have allowed our learners to explore complex issues such as care coordination, 7 the importance of interprofessional communication, 7 caregiver burden 8 and medical error (see Figure 1).…”
Section: Introductionmentioning
confidence: 99%