A Global Collaboration to Develop and Pilot Test a Mobile Application to Improve Cancer Pain Management in Nepal

LeBaron, Virginia; Horton, Bethany J.; Adhikari, Abish; Chapagain, Sandhya; Dhakal, Manita; Gongal, Rajesh; Kattel, Regina; Koirala, Ganesh; Kutcher, Anna; Hass, Ben; Maurer, Martha A.; Munday, Daniel; Neupane, Bijay; Sharma, Krishna Sagar; Shilpakar, Ramila; Shrestha, Amuna; Shrestha, Sudip; Thapa, Usha; Dillingham, Rebecca; Paudel, Bishnu Dutta

doi:10.3389/fpain.2022.910995

Cited by 4 publications

(2 citation statements)

References 71 publications

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“…“[…] the majority of the healthcare professionals are not training [in] palliative care and pain management, but we hope that this app [one deliverable from the parent project [ 26 ]] will help them to treat the patient and to manage it.”…”

Section: Resultsmentioning

confidence: 99%

“…Another key deliverable from the parent grant was the creation of a ‘Virtual Library’–a web-based repository of research-related resources designed to support clinical investigators in resource-constrained settings [ 24 ]. Results related to the design and pilot testing of the mobile app [ 25 , 26 ] and creation of the Virtual Library [ 27 ] have been previously reported.…”

Section: Introductionmentioning

confidence: 99%

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Co-constructing collaboration: An evidence-based approach to advance and evaluate equitable global public health research partnerships

Amos,

LeBaron,

Chuong

et al. 2023

PLOS Glob Public Health

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Equitable global health partnerships are essential to promote innovative research and strengthen research capacity to address critical public health challenges, but how to optimally evaluate such collaborations is unclear. This was a sequential, multi-method study that utilized an electronic survey informed by the literature followed by semi-structured interviews to comprehensively evaluate the experience of participating in a global research-capacity building collaboration between Nepal and U.S. clinicians and investigators. De-identified quantitative survey were analyzed to calculate descriptive and summary statistics, along with crosstabs of each variable by group. Groups were defined based on country-of-origin and Chi Square statistics calculated to assess for statistically significant differences (p<0.05) between groups. Interviews were analyzed using a descriptive qualitative approach to develop an overall thematic map. 22 survey responses (52.4% response rate) were analyzed; 13 (59.1%) from Nepal, 9 (40.9%) from the U.S. Eight participants (4 Nepal; 4 U.S.) were interviewed. Over the course of the project, all participants reported gaining experience and confidence with research. The majority of participants “strongly agreed” there was a shared understanding of goals, priorities and strategies (Nepal, 58.3%, n = 7; U.S., 88.9%, n = 8;) and that power was shared equally (Nepal, 58.3%, n = 7; U.S., 55.6%, n = 5). The over-arching theme that emerged from the interviews was the importance of ‘establishing community’ which participants discussed within the broader context of COVID-19. Overall, team members reported strong bi-directional benefit and a greater emphasis on perceived benefits versus challenges. Our survey tool and interview guide, designed to holistically evaluate the impact of a global partnership across various levels of the Social Ecological Model, with particular attention to power dynamics and equity, can be adapted and used by others engaged in similar research capacity collaborations.

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Co-constructing collaboration: An evidence-based approach to advance and evaluate equitable global public health research partnerships

Amos,

LeBaron,

Chuong

et al. 2023

PLOS Glob Public Health

Self Cite

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Overcoming barriers to mHealth co-design in low- and middle-income countries: a research toolkit

Poulsen,

Hickie,

Alam

et al. 2024

Information Technology for Development

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Building a ‘Virtual Library’: continuing a global collaboration to strengthen research capacity within Nepal and other low- and middle-income countries

Elmore

Acharya

Dulal

et al. 2022

Global Health Action

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To fill the gap in health research capacity-building efforts, we created the ‘Virtual Library’ (VL) – a web-based repository of context-relevant resources for health researchers in low- and middle-income countries (LMICs). This paper describes the participatory process used to systematically develop the VL, and describes how our interprofessional team – representing both an LMIC (Nepal) and a high-income country (HIC) (USA, US) – engaged in shared meaning-making. A team of researchers and clinicians representing a range of subdisciplines from Nepal and the US created a replicable search strategy and standardized Resource Screening Guide (RSG) to systematically assess resources to be included within the VL. Descriptive methods were used to summarize findings from the RSG and lessons learned from the collaborative process. Collectively, 14 team members reviewed 564 potential resources (mean = 40, SD = 22.7). Mean RSG score was 7.02/10 (SD = 2). More than 76% of resources met each of the four quality criteria (relevant; reputable, accessible; understandable). Within the published VL, 298 resources were included, organized by 15 topics and 45 sub-topics. Of these, 223 resources were evaluated by the RSG; 75 were identified by team member expertise. The collaborative process involved regular meetings, iterative document revisions, and peer review. Resource quality was better than expected, perhaps because best practices/principles related to health research are universally relevant, regardless of context. While the RSG was essential to systematize our search and ensure reproducibility, team member expertise was valuable. Pairing team members during peer-review led to bi-directional knowledge sharing and was particularly successful. This work reflects a highly collaborative global partnership and offers a model for future health research capacity-building efforts. We invite engagement with the Virtual Library < https://lmicresearch.org > as one supportive pillar of infrastructure to develop individual and institutional research capacity.

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A Global Collaboration to Develop and Pilot Test a Mobile Application to Improve Cancer Pain Management in Nepal

Cited by 4 publications

References 71 publications

Co-constructing collaboration: An evidence-based approach to advance and evaluate equitable global public health research partnerships

Co-constructing collaboration: An evidence-based approach to advance and evaluate equitable global public health research partnerships

Overcoming barriers to mHealth co-design in low- and middle-income countries: a research toolkit

Building a ‘Virtual Library’: continuing a global collaboration to strengthen research capacity within Nepal and other low- and middle-income countries

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