A Family’s Difficulties in Caring for a Cancer Patient at the End of Life at Home in Japan

Ishii, Yoko; Sato, Kazuki; Ozawa, Taketoshi

doi:10.1016/j.jpainsymman.2011.10.011

Cited by 31 publications

(31 citation statements)

References 21 publications

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“…Some categories of this concept, that is, patient-related stress, concern about future, stress, depression and grief, financial and physical problems, family challenges, sleep-related changes, psychological functional problems, loneliness and caregiving pressure are consistent with some research (4,7,8,(14)(15)(16)(17)(18). However, two sub-categories, namely, annoying and dysfunctional beliefs and resentment from the relatives are not seen in prior research.…”

Section: Discussionsupporting

confidence: 63%

Explaining the Experiences and Consequences of Care Among Family Caregivers of Patients with Cancer in the Terminal Phase: A Qualitative Research

2017

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Background: Cancer is a disease which affects both the patient and family members. Family caregivers of these individuals have been recognized as the undercover patients, the problems and experiences of whom should be evaluated. The present research has been aimed to provide a deep understanding of the experiences and consequences of care in family caregivers of patients with cancer in the terminal phase. Methods: The present research has been conducted by a qualitative content analysis method. The sampling method was purposeful and it was progressed until data saturation. The data were gathered through in-depth semi-structured interviews, and then, were analyzed via content analysis. Results: From the total 18 interviews, 413 initial concepts (codes) were obtained. Finally, three main concepts (categories) were extracted after data analysis, including: 1, inhibition; 2, challenges and consequences of care; and 3, supportive-palliative factors. Conclusions: According to the family caregivers' condition in Iran, that is, caring overload, informational and emotional inhibition, and spirituality as a way of alleviation and adaptability, the emergent need for counseling and psychological-socialinformational-spiritual support particular to this culture, seems to be necessary.

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Section: Discussionsupporting

confidence: 63%

Explaining the Experiences and Consequences of Care Among Family Caregivers of Patients with Cancer in the Terminal Phase: A Qualitative Research

2017

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“…2,[8][9] However, this opinion is not unanimous and may be related to the economy of each country, this can be seen in a study 23 which showed that the patients present better results when hospitalized, due to the government providing the treatment. Such results in the hospital environment may be related to the food shortage faced by patients when they are in their homes.…”

Section: ] At Home Privileging Those Related To Health Promotion Tmentioning

confidence: 99%

“…We justify the term "counter" because we understand that, as health professionals, we are considered state agents 6-7 who perform bio political interventions that guarantee the lives of people. Instead of saying that it is "better at home", as the studies say, [2][3][8][9] this study of genealogical inspiration placed the question of genesis and continuities under suspension, not definitively refusing them, but shaking the stillness from which we accept them, in addition to showing that they are not self-justifiable but that they are the effect of a construction whose rules must be known and the justifications controlled. 10 In view of this, we pretended with this study to problematize the home care proposed by the Melhor em Casa Program as a security tool/device, to understand the knowledge and the conditions of possibility that support its discursive network.…”

mentioning

confidence: 95%

Better Off at Home: Safety Device

Oliveira

Kruse

2017

Texto contexto - enferm.

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Objetive: to problematize the home care proposed by the Melhor em Casa Program as a safety device for understanding knowledge and conditions of possibility that support its discoursive network.Method: it is a study of genealogical inspiration about home care. The empirical material was constituted by legal documents about the theme, published in the Diário Oficial. The extracts that supposingly had the power to extract truth were organized in a spreadsheet. The analytic units were constructed, and instruments proposed by Foucault, such as power, biopolitics and device, were used for document analysis.Results: two analytic categories were elaborated: "From hospital to home", and "Home care: safety for the patient or for the State?". Conclusion:Home care, as a security device, proposes home as a safer and better place for the patient, who is close to the family, with no risk of hospital infection, cared by the health team, with the necessary technology. DESCRIPTORS:Home care services. Nursing. Documents. MELHOR EM CASA: DISPOSITIVO DE SEGURANÇA RESUMOObjetivo: problematizar a atenção domiciliar como dispositivo de segurança, proposta pelo Programa Melhor em Casa como dispositivo de segurança, para conhecer os saberes e as condições de possibilidade que sustentam sua rede discursiva.Método: estudo de inspiração genealógica sobre a atenção domiciliar. O material empírico foi constituído por documentos legais sobre o tema, publicados no Diário Oficial. Os excertos que teriam poder de fazer circular verdades foram organizados em planilha eletrônica. As unidades analíticas foram construídas, sendo utilizadas para a análise documental ferramentas propostas por Foucault, tais como: poder, biopolítica e dispositivo.Resultados: foram elaboradas duas categorias analíticas: "Do hospital para o domicílio" e "atenção domiciliar: segurança para o paciente ou ao Estado?" ConclusãoA atenção domiciliar como dispositivo de segurança constitui a casa como um lugar mais seguro e melhor para o paciente que fica próximo da família, sem risco de infecção hospitalar, recebendo atendimento de equipe que propiciará a tecnologia necessária. DESCRITORES: Serviços de assistência domiciliar. Enfermagem. Documentos. MEJOR EM CASA: DISPOSITIVO DE SEGURIDAD RESUMENObjetivo: discutir la atención domiciliaria como dispositivo de seguridad, propuesto por el Programa Melhor em Casa como un dispositivo de seguridad, para obtener información sobre los conocimientos y las condiciones de posibilidad que sustentan su red discursiva.Método: estudio de inspiración genealógica sobre la atención domiciliar. El material empírico fue constituido por documentos legales sobre el tema, publicados en el Diario Oficial. Los fragmentos que tendrían el poder de hacer circular verdades fueron organizados en una planilla electrónica. Las unidades analíticas fueron construidas, siendo utilizadas para el análisis documental herramientas propuestas por Foucault, tales como: poder, biopolítica y dispositivo.Resultados: fueron elaboradas dos categorías analíticas "De...

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“…Pårørende har mange roller og får ofte ansvaret for oppfølging av symptomlindring, komplekse omsorgsbehov, behandling og psykososial støtte (22). Pårørende blir derfor sentrale personer for å ivareta pasientens omfattende behov for omsorg og hjelp hjemme (22)(23)(24).…”

Section: )Pårørendes Perspektiv På Hjemmedødunclassified

Ansvarlig og avhengig – Pårørendes erfaringer med forestående død i hjemmet - Responsible and dependent – Relatives’ experience with expected death at home

Sørhus¹,

Landmark²,

Grov³

2016

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A Family’s Difficulties in Caring for a Cancer Patient at the End of Life at Home in Japan

Abstract: This study indicates that it is important for home care providers to introduce services to reduce care burden. In addition, a thorough explanation of the patient's symptoms and condition is necessary to reduce distress and anxiety for family caregivers.

Cited by 31 publications

References 21 publications

Explaining the Experiences and Consequences of Care Among Family Caregivers of Patients with Cancer in the Terminal Phase: A Qualitative Research

Explaining the Experiences and Consequences of Care Among Family Caregivers of Patients with Cancer in the Terminal Phase: A Qualitative Research

Better Off at Home: Safety Device

Ansvarlig og avhengig – Pårørendes erfaringer med forestående død i hjemmet - Responsible and dependent – Relatives’ experience with expected death at home

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