A family‐focused intervention for heart failure self‐care: conceptual underpinnings of a culturally appropriate intervention

Deek, Hiba; Noureddine, Samar; Newton, Phillip J.; Inglis, Sally C.; Macdonald, Peter S.; Davidson, Patricia M.

doi:10.1111/jan.12768

Cited by 24 publications

(20 citation statements)

References 80 publications

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“…In these situations, patients may not feel responsible or adequate to make decisions about self-care. Although the majority of studies is reported from westernized countries, an increasing number of studies examine culturally specific education programs such as those recently reported from Thailand, Japan, and Lebanon [24–26]. …”

Section: Cultural Beliefs and Valuesmentioning

confidence: 99%

Factors Related to Self-Care in Heart Failure Patients According to the Middle-Range Theory of Self-Care of Chronic Illness: a Literature Update

Jaarsma

Cameron

Riegel

et al. 2017

Curr Heart Fail Rep

178

177

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Purpose of the ReviewAs described in the theory of self-care in chronic illness, there is a wide range of factors that can influence self-care behavior. The purpose of this paper is to summarize the recent heart failure literature on these related factors in order to provide an overview on which factors might be suitable to be considered to make self-care interventions more successful.Recent FindingsRecent studies in heart failure patients confirm that factors described in the theory of self-care of chronic illness are relevant for heart failure patients.SummaryExperiences and skills, motivation, habits, cultural beliefs and values, functional and cognitive abilities, confidence, and support and access to care are all important to consider when developing or improving interventions for patients with heart failure and their families. Additional personal and contextual factors that might influence self-care need to be explored and included in future studies and theory development efforts.

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Section: Cultural Beliefs and Valuesmentioning

confidence: 99%

Factors Related to Self-Care in Heart Failure Patients According to the Middle-Range Theory of Self-Care of Chronic Illness: a Literature Update

Jaarsma

Cameron

Riegel

et al. 2017

Curr Heart Fail Rep

178

177

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“…Varios estudios de autores como Hwang 2 , Dunbar 3 , Deek 4 , han evidenciado la asociación entre el apoyo del cuidador familiar y la mejoría en la adherencia al tratamiento; por otro lado destacan que el cuidador se convierte en uno de los actores capaz de brindar apoyo social para alcanzar conductas de autocuidado y de esta manera se puede disminuir significativamente el número de reingresos derivados por descompensaciones de su enfermedad por una inadecuada adherencia y déficit de autocuidado;…”

Section: Introductionunclassified

Competencia de los cuidadores familiares para cuidar a los pacientes con falla cardíaca

Saldaña

Sánchez

Castro³

et al. 2017

Rev Cuid

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Universidad de Santander. Este es un artículo de acceso abierto, distribuido bajo los términos de la licencia Creative CommonsAttribution , que permite el uso ilimitado, distribución y reproducción en cualquier medio, siempre que el autor original y la fuente sean debidamente citados.http: //dx.doi.org/10.15649/cuidarte.v8i3.407 Resumen Introducción: El cuidador familiar es la fuente más importante de apoyo social y requiere desarrollar habilidades para reforzar las conductas de autocuidado en su familiar. El objetivo de este estudio fue determinar la competencia de cuidado de los cuidadores familiares de los pacientes con falla cardiaca (FC) en una institución de cuarto nivel de complejidad. Materiales y Métodos: Estudio descriptivo de corte transversal. Con un tamaño de muestra de 41 cuidadores familiares de personas con FC que asisten al programa de FC en una institución de salud de cuarto nivel, durante el segundo semestre del 2016. Para la recolección de la información se utilizó el instrumento "CUIDAR" que cuenta con pruebas de validez de constructo y consistencia interna con un alfa de Cronbach de 0.93. Se realizó un análisis descriptivo con distribución de frecuencias absolutas y relativas. Resultados: El nivel de competencia global para el cuidado en el hogar de los cuidadores familiares de los pacientes con FC fue medio y alto. Las dimensiones que alcanzaron un nivel más alto de competencia fueron Disfrutar e Instrumental y Procedimental. Discusión: Una adecuada competencia para el cuidado en los cuidadores se convierte en un factor que puede influir de manera positiva en el manejo de la persona. Conclusiones: Una adecuada competencia del cuidador familiar va a permitir una mejor adaptación a los nuevos requerimientos de la vida del paciente con su enfermedad y pueden ayudar a prevenir las descompensaciones. Palabras clave: Cuidadores; Insuficiencia Cardíaca; Competencia Clínica; Pacientes. Abstract Introduction: The family caretaker is the most important source of social support and requires developing skills to reinforce self-care conducts in their relatives. The aim of this study was to determine the care skills of family caretakers of patients with heart failure (HF) in an institution with tier IV level of complexity. Materials and Methods: This was a cross-sectional descriptive study, with a sample size of 41 family caretakers of people with HF attending the HF program in a tier IV health institution, during the second semester of 2016. The 'CUIDAR' instrument was used to collect information. Said instrument has construct validity and internal consistency tests with Cronbach's alpha of 0.93. A descriptive analysis was performed with absolute and relative distribution frequencies. Results: The global skill level for homecare of family caretakers of patients with HF was medium and high. The dimensions reaching the highest level of skills were enjoyment, instrumental, and procedural. Discussion: An adequate care skill in caretakers becomes a factor that can positively influence upon managing a per...

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“…This choice is always preferred to someone coming “from the outside.” 21 Therefore, this strong family foundation can be used to begin a discussion of EOL issues. 25 Overall, 80% of African Americans consider themselves to be religious and to always seek spiritual guidance. A survey of African Americans revealed that 70% attend religious services at least a few times a month, 80% pray nearly every day, 27% read religious books, and 21% watch or listen to religious programming on television or radio daily.…”

Section: Synthesis Of the Literature And Preliminary Studiesmentioning

confidence: 99%

“…12 These themes are aligned with literature addressing the cultural challenges among African Americans. 25 …”

Section: Synthesis Of the Literature And Preliminary Studiesmentioning

confidence: 99%

Designing and Testing an End-of-Life Discussion Intervention for African American Patients With Heart Failure and Their Families

Piamjariyakul

Smith

Werkowitch

et al. 2016

J Hosp Palliat Nurs

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There is an escalating prevalence of heart failure (HF) with high mortality. Compared with other races, African Americans face a higher incidence of HF at earlier age of onset, with more rapid progression, and with increased family care burden and greater care costs and disparity in health care services at the end of life (EOL). Concomitant out-of-pocket HF costs and care demands indicate the need for early discussion of palliative and EOL care needs. We therefore developed and pilot tested a culturally sensitive intervention specific to the needs of African American HF patients and their families at the EOL. Our pilot study findings encompass patient and caregiver perspectives and align with the state of EOL science. The ultimate long-term goal of this intervention strategy is to translate into practice the preferred, culturally sensitive, and most cost-efficient EOL care recommendations for HF patients and families.

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A family‐focused intervention for heart failure self‐care: conceptual underpinnings of a culturally appropriate intervention

Abstract: As the burden of chronic diseases increases globally, particularly in emerging economies, developing models of intervention that are appropriate to both the individual and the socio-cultural context are necessary.

Cited by 24 publications

References 80 publications

Factors Related to Self-Care in Heart Failure Patients According to the Middle-Range Theory of Self-Care of Chronic Illness: a Literature Update

Factors Related to Self-Care in Heart Failure Patients According to the Middle-Range Theory of Self-Care of Chronic Illness: a Literature Update

Competencia de los cuidadores familiares para cuidar a los pacientes con falla cardíaca

Designing and Testing an End-of-Life Discussion Intervention for African American Patients With Heart Failure and Their Families

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