A description of the personal and environmental determinants of participation several years post-stroke according to the views of people who have aphasia

Dorze, Guylaine Le; Salois-Bellerose, Émilie; Alepins, Marjolaine; Croteau, Claire; Hallé, Marie‐Christine

doi:10.1080/02687038.2013.869305

Cited by 75 publications

(93 citation statements)

References 31 publications

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“…PWA are at risk of reduced well-being and quality of life because of their communication impairment (Cruice, Worrall, Hickson, & Murison, 2005;Hilari, 2011;Hilari & Byng, 2009;LaPointe, 1999;Ross & Wertz, 2003), with close family members liable to 'third party disability' . Family members of PWA may experience negative changes to their own social participation possibly due to changes to their own identity (Le Dorze, Salois-Bellerose, Alepins, Croteau, & Hallé, 2014). For example a family member may adopt a care-giver role (Le Dorze & Signori, 2010); the PWA may no longer be able to support the family financially; or the family member may develop or experience deterioration of a health condition .…”

Section: Introductionmentioning

confidence: 99%

Towards an asset-based approach to promoting and sustaining well-being for people with aphasia and their families: an international exploratory study

et al. 2018

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Background: There is growing interest in interventions that promote positive outcomes and well-being for people with aphasia (PWA) and their families, but provision is inconsistent.An asset-based approach, based on the theory of salutogenesis, focuses on what makes you well rather than ill. This approach has been used successfully across a variety of research fields, including health and social care research and practice, and has the potential to provide coherent strategies to support people living successfully with aphasia.Aim: To explore the relevance and potential of an asset-based approach to promoting and sustaining well-being for PWA and their families, across contexts and cultures.Methods: Exploratory case studies were carried out in the United Kingdom (UK), Norway, Israel, Ireland and Denmark in a variety of settings. Following an interpretative paradigm, we used qualitative methods including: interviews; appreciative inquiry; group discussions; and participatory action research. Ninety five PWA and 25 family members were asked to identify assets within themselves and their communities that promote, sustain and maintain 2 well-being, by responding to: "What makes you feel good / well / healthy?" Data were analysed using thematic analysis.Findings: An asset-based approach proved to be a powerful means for PWA and family members to explore what helps them live well with aphasia. Key themes were identified: 1) personal journey; 2) helping others; 3) connecting to self; 4) connecting to others; 5) recreation; and 6) personal attributes. Self-identification of assets, within the person and their community, and connections to these, helped PWA and their family members to maintain well-being, overcome barriers and regain confidence. Using this approach, focusing on the person's recognition, activation and mobilisation of assets, could enhance the person's understanding and restore meaning around the stroke and onset of aphasia.Conclusion: This novel exploratory research demonstrates the relevance and potential across diverse cultural contexts of taking an asset-based approach to promoting and sustaining wellbeing for PWA and their families. Focusing on maintaining connections to these assets and developing meaning around the event, could prevent some of the negative sequela of stroke.The 'patient-professional' relationship must transform into a collaborative partnership, with time and flexibility needed to introduce this approach. Further research should examine how service providers and PWA could develop and operationalise an asset-based approach in clinical and community settings and identify if there is an optimum timing for introducing this approach along the stroke pathway.

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Section: Introductionmentioning

confidence: 99%

Towards an asset-based approach to promoting and sustaining well-being for people with aphasia and their families: an international exploratory study

et al. 2018

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“…The social participation outcome for people with aphasia (PWA) has been researched most extensively compared to other acquired communication impairments (Cruice, Worrall, & Hickson, 2006;Desrosiers et al, 2006;Le Dorze, Salois-Bellerose, Alepins, Croteau, & Hallé, 2014). Aphasia can result in restrictions in comprehension and production of language across written, auditory, verbal and gestural domains.…”

Section: Social Participation and Acquired Brain Injurymentioning

confidence: 99%

Social participation following right hemisphere stroke: influence of a cognitive-communication disorder

2017

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Dr Petrea Cornwell, as my primary PhD supervisor, your guidance and support has been invaluable. Thank you for sharing this research journey and my passion for the research topic. Thank you also to Professor David Shum, as my co-supervisor, your positive attitude and trust in my ability to complete the research was greatly appreciated. The combination of both Speech Pathology and Applied Psychology expertise that you generously shared has been extremely valuable. I would like to acknowledge the important contribution that all of the research participants made to this research-thank you for your time and for entrusting me with your personal stories of life changing events. Finally, thank you to my family, my work colleagues, and HDR peers for your encouragement and support throughout this process.

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“…they perceive themselves as incompetent, which is one of the barriers to participation (Le Dorze et al . ). In their review, including both quantitative and qualitative studies, Hilari et al .…”

Section: Introductionmentioning

confidence: 97%

The participants’ perspective: how biographic-narrative intervention influences identity negotiation and quality of life in aphasia

Corsten

Schimpf

Konradi

et al. 2015

INT J LANG COMMUN DISORD

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A description of the personal and environmental determinants of participation several years post-stroke according to the views of people who have aphasia

Cited by 75 publications

References 31 publications

Towards an asset-based approach to promoting and sustaining well-being for people with aphasia and their families: an international exploratory study

Towards an asset-based approach to promoting and sustaining well-being for people with aphasia and their families: an international exploratory study

Social participation following right hemisphere stroke: influence of a cognitive-communication disorder

The participants’ perspective: how biographic-narrative intervention influences identity negotiation and quality of life in aphasia

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