A dementia-friendly church: How can the African American church support families affected by dementia?

Epps, Fayron; Heidbreder, Virginia; Alexander, Karah; Tomlinson, Audrey; Freeman, Valencia; Williams, Nancy

doi:10.1177/1471301219900416

Cited by 22 publications

(18 citation statements)

References 31 publications

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“…With the church serving as a place of refuge, it would be useful to provide culturally tailored dementia-friendly programs, education, and resources to point families in the right direction of obtaining similar help on a routine basis. The community forums and workshops offered by FVC will lead to creating a safer, more welcoming space for those living with dementia and their families to practice their faith (Epps et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

Promoting dementia awareness in African‐American faith communities

Epps

Alexander

Brewster

et al. 2020

Public Health Nursing

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Introduction Alzheimer's disease and other dementia‐related disorders are affecting the African‐American community at alarming rates. African‐American churches have traditionally been places of refuge where families go for support. However, many churches lack programs or resources to support families affected by dementia. In response, a nurse‐led interdisciplinary collaborative partnered with churches to promote dementia awareness through education. Purpose The purpose of this analysis was to (a) describe the demographics of those seeking dementia education in African‐American faith communities; (b) identify prior knowledge of dementia community resources; and (c) determine the preliminary usefulness of the education provided. Methods Over the course of 16 months, 202 individuals attended nine educational sessions hosted by five churches across metropolitan Atlanta. Quantitative surveys were used to collect demographics and evaluate the educational sessions. Results The majority of attendees were African‐American adults (91%), women (75%), and unaware of dementia resources (66%). Several attendees identified themselves as church leaders, community/church members, caregivers, and/or healthcare professionals. Attendees expressed the educational content was applicable to themselves or their families. Conclusion Results help identify ways to alter and/or strengthen the educational content and serve as a guide for developing culturally relevant, faith‐based community programs.

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Section: Discussionmentioning

confidence: 99%

Promoting dementia awareness in African‐American faith communities

Epps

Alexander

Brewster

et al. 2020

Public Health Nursing

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“…research but may also result in more culturally appropriate and effective services. [420][421][422][423][424][425][426][427][428][429][430][431][432] In addition, a greater understanding is needed of how multiple chronic diseases (multimorbidity) intersect with dementia among Black people, indigenous peoples and people of color. 433…”

Section: Race/ethnicity and Dementia Caregivingmentioning

confidence: 99%

“…This hinders the progress of all Alzheimer's disease caregiving research, and, by extension, if these individuals continue to lack representation in Alzheimer's research, they will not receive the benefits of prevention, treatment or care innovations 413 . Establishing stronger relationships with existing organizations and resources in Black communities, indigenous communities and communities of color offers the potential of research‐based partnerships that not only enhance representation in Alzheimer's disease research but may also result in more culturally appropriate and effective services 420–432 . In addition, a greater understanding is needed of how multiple chronic diseases (multimorbidity) intersect with dementia among Black people, indigenous peoples and people of color 433 …”

Section: Caregivingmentioning

confidence: 99%

2022 Alzheimer's disease facts and figures

2022

Alzheimer's & Dementia

1,424

664

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This article describes the public health impact of Alzheimer's disease (AD), including incidence and prevalence, mortality and morbidity, use and costs of care, and the overall impact on family caregivers, the dementia workforce and society. The Special Report discusses consumers' and primary care physicians' perspectives on awareness, diagnosis and treatment of mild cognitive impairment (MCI), including MCI due to Alzheimer's disease. An estimated 6.5 million Americans age 65 and older are living with Alzheimer's dementia today. This number could grow to 13.8 million by 2060 barring the development of medical breakthroughs to prevent, slow or cure AD. Official death certificates recorded 121,499 deaths from AD in 2019, the latest year for which data are available. Alzheimer's disease was officially listed as the sixth-leading cause of death in the United States in 2019 and the seventh-leading cause of death in 2020 and 2021, when COVID-19 entered the ranks of the top ten causes of death. Alzheimer's remains the fifth-leading cause of death among Americans age 65 and older. Between 2000 and 2019, deaths from stroke, heart disease and HIV decreased, whereas reported deaths from AD increased more than 145%. More than 11 million family members and other unpaid caregivers provided an estimated 16 billion hours of care to people with Alzheimer's or other dementias in 2021. These figures reflect a decline in the number of caregivers compared with a decade earlier, as well as an increase in the amount of care provided by each remaining caregiver. Unpaid dementia caregiving was valued at $271.6 billion in 2021. Its costs, however, extend to family caregivers' increased risk for emotional distress and negative mental and physical health outcomes -costs that have been aggravated by COVID-19. Members of the dementia care workforce have also been affected by COVID-19. As essential care workers, some have opted to change jobs to protect their own health and the health of their families. However, this occurs at a time when more members of the dementia care workforce are needed. Average per-person Medicare payments for services to beneficiaries age 65 and older with AD or other dementias are almost three times as great as payments for beneficiaries without these conditions, and Medicaid payments are more than 22 times as great. Total payments in 2022 for health care, long-term care and hospice services for people age 65 and older with dementia are estimated to be $321 billion. A recent survey commissioned by the Alzheimer's Association revealed several barriers to consumers' understanding of MCI. The survey showed low awareness of MCI among Americans, a reluctance among Americans to see their doctor after noticing MCI symptoms, and persistent challenges for primary care physicians in diagnosing MCI. Survey results indicate the need to improve MCI 700

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“…Our care partners' sources of support reflect the literature-family and clinicians, 16 church communities, 17 and VA services. 18 Additional community resources were noted by participants including American Legion and VFW.…”

Section: Discussionmentioning

confidence: 99%

Needs of care partners of older Veterans with serious illness

Boucher

Shapiro

Houtven

et al. 2022

J American Geriatrics Society

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Background: The quality of life of care partners and care recipients may be improved by programs that address unmet needs. The aim of this qualitative study was to identify care partners' social and practical needs as they care for Veterans (65 yo+) with serious illness.Methods: Semi-structured interviews with Veterans with serious illness and care partners of Veterans with serious illness. Interview question domains examined through care partner and Veteran perspectives included: types of support/services currently used, still needed, and anticipated as well as barriers to obtaining those supports/services. Qualitative analyses used an inductive descriptive content approach.Results: Seventeen care partners and 11 Veterans participated. Three main themes emerged from the data: (I) care partners' and Veterans' identified barriers to support (e.g., technology, rurality, awareness of services); (II) care partners' and Veterans' understanding of available supports and services (e.g., misunderstandings regarding VA role and services, heavy reliance on VA, identified sources of support); and (III) care partners' understanding of their caregiving roles (e.g., by tasks and self-identification). Conclusion:Results indicate that care partners experience barriers to supporting seriously ill Veterans including awareness, information, and access obstacles that can be addressed to improve access and utilization of available services and supports.

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A dementia-friendly church: How can the African American church support families affected by dementia?

Cited by 22 publications

References 31 publications

Promoting dementia awareness in African‐American faith communities

Promoting dementia awareness in African‐American faith communities

2022 Alzheimer's disease facts and figures

Needs of care partners of older Veterans with serious illness

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