A Delphi study to develop indicators of cancer patient experience for quality improvement

Williams, Kimberly; Sansoni, Janet; Morris, Darcy; Thompson, Cristina J

doi:10.1007/s00520-017-3823-4

Cited by 23 publications

(38 citation statements)

References 16 publications

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“…Despite the differences identi ed, these efforts are compromised by not containing items that assess aspects of care that may be key drivers of engagement with care for Indigenous people. This suggests the need for deeper enquiry to ensure that patient experience measures re ect what is important to cancer patients (7,8).…”

Section: Discussionmentioning

confidence: 99%

“…'Continuity and transition') (28), thematic areas (e.g. 'information provision') (7,29), or stage in the cancer pathway (e.g. 'Finding out what was wrong') (30).…”

Section: Methodsmentioning

confidence: 99%

“…The cancerspeci c survey (Comparator D) also examined relationships with health staff as a facilitator of communication, however this was not as evident in the other comparators. Comparator B ranked 'excellent communication' as a high priority (7) and considered this to include patients' needs and preferences, as well as treating patients with respect and dignity. There were consistent gaps regarding communication with family and the presence and impact of unconscious bias on communication.…”

Section: Effective Communication and Educationmentioning

confidence: 99%

“…Patient-reported experiences are routinely used as a key indicator of the quality of health care, along with patient-reported outcome measures, safety measures and clinical outcomes (1)(2)(3). However, there are concerns that many mechanisms used to collect patient experience data produce large amounts of super cial data, while missing deeper, more nuanced information that is meaningful to the patient (4,5), and that insu cient attention is paid to whether the information is used to inform health care provision (6,7). In addition, gaps have been identi ed in understanding the experiences of underserved groups, whose interactions with health services may be markedly different to general patient populations (8).…”

Section: Introductionmentioning

confidence: 99%

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Measuring Health Care Experiences that Matter to Indigenous People in Australia with Cancer: Identifying Critical Gaps in Existing Tools

Green

Cunningham

Anderson

et al. 2020

Preprint

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Background: The measurement of patients’ experiences of healthcare is increasingly used as an indicator of the quality of care. There are concerns that many mechanisms used to collect patient experience data produce large amounts of superficial data, while missing deeper, more nuanced information that is meaningful to the patient, and that insufficient attention is paid to whether the information is used to make a difference to health care. This is particularly so for Indigenous people in Australia, whose health care experience is impacted by the context of colonisation and discordance between Indigenous understandings of health and the biomedical health system. The aim of this study was to assess the extent to which existing patient experience measures currently in use in Australia collect information about the most critical aspects of cancer care, as identified by Indigenous people affected by cancer and their health care providers in previous research. Methods: A two-stage process was used to examine the adequacy of existing patient experience measures for Indigenous people in Australia: (1) relevant tools and measures were identified and assessed, and four measures were selected as suitable comparators; (2) the comparators were examined in detail and mapped against the topics identified in our earlier research as important to Indigenous people affected by cancer. Gaps in topic coverage in the comparators were identified. Results: No comparators completely captured the critical aspects of cancer care identified by Indigenous people with cancer and their health care providers. The number of topics ‘partially’ captured by the four comparators ranged from 4 to 7 out of 9. While most topics were at least partially covered, the lack of questions around culture and cultural safety was notable. Conclusions: Existing patient experience measurement tools are likely to miss some key aspects of Indigenous peoples’ experiences of cancer care in Australia. Failure to adequately assess experiences of care related to cultural safety may compromise efforts to improve health outcomes. Addressing the gaps requires the development of experience measures that are strengths-based, reflect an Indigenous world view and measure aspects of experience that are relevant to Indigenous people.

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Section: Discussionmentioning

confidence: 99%

“…'Continuity and transition') (28), thematic areas (e.g. 'information provision') (7,29), or stage in the cancer pathway (e.g. 'Finding out what was wrong') (30).…”

Section: Methodsmentioning

confidence: 99%

Section: Effective Communication and Educationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Measuring Health Care Experiences that Matter to Indigenous People in Australia with Cancer: Identifying Critical Gaps in Existing Tools

Green

Cunningham

Anderson

et al. 2020

Preprint

View full text Add to dashboard Cite

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“…21 Expert opinion has also been solicited in an attempt to identify components of patient experience thought to be most important to medical oncology patients. 22 Only one study has aimed to improve patient satisfaction in the subspecialty of pediatric hematology-oncology (PHO). 23 Although improvement in patient experience was demonstrated, the key drivers most associated with favorable physician and practice ratings were not elucidated.…”

Section: Introductionmentioning

confidence: 99%

Determination of Key Drivers of Patient Experience in a Midsize Pediatric Hematology-Oncology Ambulatory Clinic

Fustino

Wohlfeil

Smith

2018

TOJ

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Background: Patient perception of care is positively associated with better medical outcomes, clinician job satisfaction, and fewer malpractice claims and also has significant downstream economic impact for healthcare organizations. A sparse amount of data exists regarding provider and practice characteristics driving high levels of patient experience in the pediatric hematology-oncology (PHO) ambulatory setting. The aims of this study were to determine key drivers of high care provider ratings and of the likelihood of recommending our ambulatory PHO practice. Methods: Patient experience was measured using the Consumer Assessment of Healthcare Providers and Systems Clinician & Group Survey (CG-CAHPS). The study outcomes were to determine the survey items most associated with top-box scores for "Rate This Provider" and for "Likelihood of Your Recommending Our Practice to Others." Results: The survey items Explanations the care provider gave you about your problem or condition and Concern the care provider showed for your questions or worries were most strongly correlated with high provider ratings. How well the staff worked together to care for you and Friendliness/courtesy of nurse/assistant were most strongly correlated with the likelihood of recommending the practice. Conclusion: High provider ratings were most associated with the physician's ability to explain problems and conditions to families. Staff teamwork and nursing attitude were most associated with patient recommendations of the PHO practice. By identifying key drivers of high provider and practice ratings by patients in the PHO ambulatory setting, a targeted approach with a focus on physician-specific communication attributes, teamwork, and nursing attitude can be deployed to improve the patient experience.

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Implementing Measurement-Based Care in Behavioral Health

et al. 2019

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A Delphi study to develop indicators of cancer patient experience for quality improvement

Abstract: Experts identified priorities with a high level of consensus, providing a rigorous foundation for developing prioritised indicators of quality in cancer patient experience.

Cited by 23 publications

References 16 publications

Measuring Health Care Experiences that Matter to Indigenous People in Australia with Cancer: Identifying Critical Gaps in Existing Tools

Measuring Health Care Experiences that Matter to Indigenous People in Australia with Cancer: Identifying Critical Gaps in Existing Tools

Determination of Key Drivers of Patient Experience in a Midsize Pediatric Hematology-Oncology Ambulatory Clinic

Implementing Measurement-Based Care in Behavioral Health

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