A decision tool to guide the ethics review of a challenging breed of emerging genomic projects

Joly, Yann; So, Derek; Osien, Gladys; Crimi, Laura; Bobrow, Martin; Chalmers, Don; Wallace, Susan; Zeps, Nikolajs; Knoppers, Bartha Maria

doi:10.1038/ejhg.2015.279

Cited by 2 publications

(2 citation statements)

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“…Évaluation de programme : La présente étude peut être rattachée à la notion « d'évaluation de programme » (Joly et al, 2016). La recherche fondamentale, commune dans le milieu universitaire, vise la création de connaissances originales.…”

Section: Méthodologieunclassified

Innovations en soins et services à domicile au Québec : barrières normatives et de gouvernance

Bourassa Forcier,

Gauthier,

Prévosto

et al. 2023

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En mars 2022, le gouvernement du Québec a mandaté le Commissaire à la santé et au bien-être (CSBE) pour « examiner la performance des services de soutien à domicile (SAD), l’efficacité des programmes et leur équité ». Dans le cadre de ce mandat, le CSBE a demandé au Centre interuniversitaire de recherche en analyse des organisations (CIRANO) de se pencher plus spécifiquement sur certaines innovations en soins et services à domicile (SSAD) au Québec afin d’identifier les barrières normatives et de gouvernance à leur déploiement, de mesurer leurs coûts et bénéfices et de proposer des pistes de solutions pour leur développement et leur pérennisation. Nous avons identifié cinq (5) innovations SSAD, au sujet desquelles nous avons effectué une étude qualitative approfondie. Nous avons également repéré plusieurs autres innovations SSAD au Québec et noté une émergence considérable du financement de démarrage d’innovations technologiques destinées à favoriser le maintien à domicile des personnes aînées. Nous présentons dans ce rapport nos constats et des pistes de solutions à considérer pour maximiser le déploiement et la pérennisation des innovations SSAD au Québec.

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Section: Méthodologieunclassified

Innovations en soins et services à domicile au Québec : barrières normatives et de gouvernance

Bourassa Forcier,

Gauthier,

Prévosto

et al. 2023

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show abstract

“…In addition, the authors introduce a variety of pedagogical strategies; however, they may have overestimated the importance of synthesizing the approaches. Joly et al (2016) argue the importance of developing a consistent method while selecting the review process for genomics and bioinformatics projects. Another important issue of the paper claims that several ethics review policies are not enough to determine the appropriate level of a review.…”

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confidence: 99%

Views of Advisors About Students’ Knowledge on Scientific Research Ethics an Example from Sakarya University

Hamutoğlu¹,

Akgün²,

Yıldız³

2016

SUJE

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In this study the views of graduate thesis advisors at Sakarya University, Institute of Educational Sciences (5 Male, 4 Female) are analysed regarding their students' knowledge on scientific research ethics (SRE). This was done via phenomenology, one of the qualitative research methods. The data were collected with structured interview questions and also additional probe questions when needed. The questions were written by the researchers after performing a comprehensive literature study. Expert opinions were asked for after the interview form was prepared. The experts evaluated the suitability of the questions in terms of scope and language and found them to be sufficient. Moreover, three advisors were chosen randomly among the target group to be asked the questions in order to check clarity and expediency before data collection. The findings of the research showed that knowledge about the SRE of most of the students was insufficient, and the educational need for this matter was provided by the advisors. It was also reported by the advisors that most of the students' knowledge about the SRE was learnt by direct experiences while preparing their thesis and their levels of awareness about the importance of the subject were very low before the thesis stage. The advisors also mentioned that the curricula do not directly include a course on the scientific research ethics; a limited content is taught within the research methods course. It was stated that real life cases, examples and experiences might be effective in enhancing students' awareness levels regarding the SRE. Developing empathy was mentioned as an important technique for creating awareness. Consequently it is thought that taking the findings of this study into account may improve students' levels of awareness on codes of ethics. Research teams could be created within universities and they could focus on providing research and writing support to the students who are at thesis stage. Regarding systematic approach, the awareness regarding plagiarism should be increased from the undergraduate level to post graduate studies.

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A decision tool to guide the ethics review of a challenging breed of emerging genomic projects

Cited by 2 publications

References 50 publications

Innovations en soins et services à domicile au Québec : barrières normatives et de gouvernance

Innovations en soins et services à domicile au Québec : barrières normatives et de gouvernance

Views of Advisors About Students’ Knowledge on Scientific Research Ethics an Example from Sakarya University

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