A cross-sectional study of sexual function and fertility status in adults with congenital genitourinary abnormalities in a U.S. tertiary care centre

McCloskey, Hannah; Kaviani, Aaron; Pande, Rashmi; Boone, Timothy B.; Khavari, Rose

doi:10.5489/cuaj.5374

Cited by 3 publications

(12 citation statements)

References 20 publications

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“…Most of the included studies that assessed readiness and experience in the transitional process were focused on spina bifida patients, with two studies 15,16 that also included other congenital urologic conditions (i.e., Complex hypospadias, urethral strictures, Cloaca, or Exstrophy‐Epispadias complex). Four studies used the Transition Readiness Assessment Questionnaire (TRAQ) to assess readiness and their relevant domain outcomes 5,17–19 .…”

Section: Resultsmentioning

confidence: 99%

“…Approximately 77%–85% of patients were satisfied or felt that the existing transitional care was beneficial and would recommend it to other adolescents with similar conditions 8,16 . However, fertility and sexual counseling were insufficient; approximately 34% desired more comprehensible discussions with their providers 8,15 . Only 26% of the responders identified no barriers to the transition, 9 while 5%–11% stated that some needs were unmet after attending a transitional clinic or the transition care was not beneficial 16 .…”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

“…McCloskey et al 15 from Houston Methodist Hospital reported the experience with patients who visited their transitional urology care clinic. A cross‐sectional study surveyed 167 adult patients with congenital genitourinary abnormalities (CGUA) who were referred to the transition care clinic from February 2014 to May 2017 15 . A total of 60 participants responded to the questionnaire; only one patient had received prior fertility counseling, while 20 (34%) wanted to learn more about sexuality and or fertility.…”

Section: Resultsmentioning

confidence: 99%

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Scoping review of neurogenic bladder patient‐reported readiness and experience following care in a transitional urology clinic

Chua

Tse

Silangcruz

et al. 2022

Neurourology and Urodynamics

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To generate a scoping review that summarizes thematically on all reported patient perceptions on readiness and experiences during transitional urologic care for patients with neurogenic bladder and or congenital genitourinary conditions that require continuity of care into adulthood.Methods: A systematic literature search was performed in October 2021. Records were screened and identified for studies relevant to reported readiness and experience in urologic transitional care among patients needing life-long urologic care. The methodological quality of the cross-sectional studies was assessed using AXIS. The included studies were clustered according to patient readiness in transition and patient experience-satisfaction in the urologic transition process. This scoping review was part of a systematic review registered on PROSPERO CRD42022306229 and was conducted in compliance with the PRISMA extension for scoping reviews.Results: A total of 12 articles were included that assessed patients with neurogenic bladder that reported either readiness or patient experience following the transitional care process. The patient readiness was assessed in six studies, determined using the TRAQ score with a range of 3-4/5. Older age, high health literacy, and parental or families' transition process awareness were associated with readiness. Generally, patients experience better satisfaction with pediatric care than with adult care facilities. Most patients felt that sexuality and fertility were not adequately tackled during the transition. The reported barriers to successful transition were patient, provider, and system factors, including lack of insurance coverage/financial management, patient preference, long-term bond with the pediatric providers, and communication by the adult provider. Based on AXIS, all of the studies identified for this scoping review did not determine the sample size, and most of the studies did not categorize the responders, which could introduce bias to the interpretation of their results.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Scoping review of neurogenic bladder patient‐reported readiness and experience following care in a transitional urology clinic

Chua

Tse

Silangcruz

et al. 2022

Neurourology and Urodynamics

View full text Add to dashboard Cite

show abstract

“…When focusing specifically on sexual function and satisfaction in the growing child with chronic conditions, the effect of transitional healthcare clinics is rarely assessed. McCloskey et al [30] evaluated the sexual function, knowledge and fertility status of adults with various genital abnormalities that visited a dedicated urological transition clinic. For this purpose, they used the validated Sexual Health Inventory for Men and Brief Index of Sexual Functioning for Women supplemented with self-chosen questions.…”

Section: Effects Of Previous Clinical Modelsmentioning

confidence: 99%