A cross-sectional analysis of trust of information and COVID-19 preventative practices among people with disabilities

Ipsen, Catherine; Myers, Andrew; Sage, Rayna

doi:10.1016/j.dhjo.2021.101062

Cited by 21 publications

(20 citation statements)

References 32 publications

(38 reference statements)

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“…While trust of information about COVID-19 is associated with preventive actions (i.e. wearing masks, social distancing), 33 people with disabilities can also experience barriers to accessing public health information. 34 Strategies to address these barriers should include translating scientific knowledge into plain language, especially for those with intellectual or developmental disabilities, providing communication through accessible formats (i.e.…”

Section: Discussionmentioning

confidence: 99%

“…large print, sign language, closed captioning), and ensuring that information is available both in-person and virtual platforms. 34 Ultimately, however, vaccination uptake relies on trust; another strategy may involve health educators and practitioners collaborating with established organizations within the disability community 33 such as the National Council on Independent Living, the ADA National Network, TASH, or the American Association of People with Disabilities, among many others.…”

Section: Discussionmentioning

confidence: 99%

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COVID-19 vaccination hesitancy among Americans with disabilities aged 18-65: An exploratory analysis

Myers

Ipsen

Lissau

2022

Disability and Health Journal

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Background It is important for people with disabilities to be vaccinated against COVID-19 because, as a group, they are at increased risk of severe outcomes. While there are multiple vaccines available to prevent COVID-19, a considerable proportion of Americans report some hesitancy to becoming vaccinated, including people with disabilities. Objective We conducted a study to explore what factors may contribute to COVID-19 vaccination hesitancy among Americans with disabilities. Methods We used Amazon's Mechanical Turk to survey 439 people with disabilities (ages 18+) about their concerns of the COVID-19 disease, vaccines, and hesitancy toward vaccination to learn more about factors that influence vaccination hesitancy. Concerns about vaccines were analyzed as a composite variable representing different dimensions such as: side effects, too new, developed too quickly, influenced by politics, and effectiveness. Results Results from a logistic regression indicate that concern about vaccines was the most significant predictor of hesitancy, even after considering demographic, economic, and geographic factors. Concerns about getting COVID-19, getting tested for COVID-19, trust in experts, education, and being a Democrat were negatively associated with hesitancy. Conclusions These findings indicate that some groups of individuals may be more vaccination hesitant because they are more concerned about vaccine safety than COVID-19 infection. Public health messaging that focuses on the risks of vaccines relative to the risks of COVID-19 might be one strategy to reduce hesitancy and increase vaccination uptake. Messaging should also be tailored to specific disabilities (i.e. physical, mental, sensory), written in plain language, and disseminated in accessible formats.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

COVID-19 vaccination hesitancy among Americans with disabilities aged 18-65: An exploratory analysis

Myers

Ipsen

Lissau

2022

Disability and Health Journal

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“…There is limited data on COVID-19 vaccine perceptions in the IDD community. Though a recent study reports on trust in health information among persons with disabilities, 26 to our knowledge, no data exist on the IDD community's COVID-19 vaccine preferences and reasons for those preferences. To inform a statewide effort in NYS that is responsive to community needs and concerns, we conducted a survey of vaccine perceptions in individuals with IDD, their family members (including those who may make decisions on their behalf), and those who work with people with IDD.…”

mentioning

confidence: 99%

COVID-19 vaccine perceptions in New York State's intellectual and developmental disabilities community

Iadarola

Siegel

Gao

et al. 2022

Disability and Health Journal

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Background People with intellectual and developmental disabilities (IDD) are at disproportionate risk for severe COVID-19 outcomes, particularly those living in congregate care settings. Yet, there is limited data on vaccine perceptions in the disability community. Objective To explore COVID-19 vaccine perceptions in individuals with IDD, their family members, and those who work with them, to inform a statewide vaccine information and messaging project. Methods A national survey, adapted in five languages for the IDD community, was distributed to a convenience sample of IDD organizations throughout New York State. Constructs included vaccine intention, reasons for vaccine hesitancy, and trusted sources of vaccine information. Zip code data were used to map respondent location and vaccine preferences. Results Of n = 825 respondents, approximately 75% intended to or had received the vaccine across roles (i.e., people with disabilities, family members, direct care workers) and racial/ethnic groups. Greater vaccine hesitancy was reported in younger individuals and those making decisions on behalf of a person with IDD. Concerns included side effects and the swiftness of vaccine development. Black and Hispanic participants had heightened concerns about being an “experiment” for the vaccine. Trusted sources of information included healthcare providers and family members. Respondents who intended to/received the vaccine were dispersed throughout the state. Conclusions Vaccine preferences in this New York State disability community sample align with national data. Identified concerns suggest the need for community education that addresses misperceptions. Age and race differences in perspectives highlight the need for tailored education, delivered by trusted messengers.

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“…When groups who have risk factors for low health literacy are inundated with constantly changing data and messages, it can cause conflicting health-related communication, resulting in people with hearing difficulty to use fewer preventive strategies as a result of a gap in communication ( Ipsen et al, 2021 ). Interestingly, we did not find that with our sample, as the participants who are deaf reported more COVID-19 prevention strategies compared to their peers who are hearing.…”

Section: Discussionmentioning

confidence: 99%

The Deaf Community's Experiences Navigating COVID-19 Pandemic Information

Panko¹,

Contreras²,

Postl³

et al. 2021

HLRP: Health Literacy Research and Practice

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Background: Users of American Sign Language (ASL) who are deaf often face barriers receiving health information, contributing to significant gaps in health knowledge and health literacy. To reduce the spread of coronavirus disease 2019 and its risk to the public, the government and health care providers have encouraged social distancing, use of face masks, hand hygiene, and quarantines. Unfortunately, COVID-19 information has rarely been available in ASL, which puts the deaf community at a disadvantage for accessing reliable COVID-19 information. Objective: This study's primary objective was to compare COVID-19-related information access between participants who are deaf and participants who are hearing. Methods: The study included 104 adults who are deaf and 74 adults who are hearing who had participated in a prior health literacy study. Surveys were conducted between April and July 2020 via video conference, smartphone apps, or phone calls. COVID-19 data were linked with preexisting data on demographic and health literacy data as measured by the Newest Vital Sign (NVS) and the ASL-NVS. Key Results: Neither group of participants differed in their ability to identify COVID-19 symptoms. Adults who are deaf were 4.7 times more likely to report difficulty accessing COVID-19 information (p = .011), yet reported using more preventive strategies overall. Simultaneously, adults who are deaf had 60% lower odds of staying home and calling their doctor versus seeking health care immediately or doing something else compared with participants who are hearing if they suspected that they had COVID-19 (p = .020). Conclusions: Additional education on recommended COVID-19 management and guidance on accessible health care navigation strategies are needed for the deaf community and health care providers. Public health officials should ensure that public service announcements are accessible to all audiences and should connect with trusted agents within the deaf community to help disseminate health information online in ASL through their social media channels.

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A cross-sectional analysis of trust of information and COVID-19 preventative practices among people with disabilities

Cited by 21 publications

References 32 publications

COVID-19 vaccination hesitancy among Americans with disabilities aged 18-65: An exploratory analysis

COVID-19 vaccination hesitancy among Americans with disabilities aged 18-65: An exploratory analysis

COVID-19 vaccine perceptions in New York State's intellectual and developmental disabilities community

The Deaf Community's Experiences Navigating COVID-19 Pandemic Information

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