A conceptual definition of quality of life with a left ventricular assist device: Results from a qualitative study

Sandau, Kristin E.; Hoglund, Barbara A.; Weaver, C.E.; Boisjolie, Charlene R.; Feldman, David S.

doi:10.1016/j.hrtlng.2013.09.004

Cited by 50 publications

(50 citation statements)

References 39 publications

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“…7,18 All studies reported methods to maintain qualitative rigor as measured by the CASP, but the article by Sandau was most transparent, reporting attributes of the non-clinician interviewers and more details regarding the grounded theory approach (see Table 1). 7,8,18–22 Sample sizes ranged from 5-12 patients with a total of 59 patients included in the 7 studies (see Table 2). The mean age of participants was 52.3 years and 25% (n=15) were women.…”

Section: Resultsmentioning

confidence: 99%

“…The mean age of participants was 52.3 years and 25% (n=15) were women. Two of the studies were conducted in the United Kingdom 20,19 , four in the United States 7,18,21,22 and one in Denmark 8 . The two studies in the United Kingdom included participants’ recall of living with an LVAD after they had been explanted, meaning that at the time of the interview, the LVAD had been removed because of recovery or transplantation.…”

Section: Resultsmentioning

confidence: 99%

“…7,8,18–22 Previous roles and the personal identity were threatened by dependence. However, LVAD patients recognized their need for a caregiver and that learning to live with the device would be nearly impossible without their support.…”

Section: Coping and Adaptation In Lvad Patients: A Meta-synthesismentioning

confidence: 99%

“…7,8,18–22 They felt that learning to find normalcy while living with an LVAD was difficult, particularly if LVAD lifestyle changes were dissonant with developmental stage. 8,22 Finding a “new normal” was hampered by unexpected hospitalizations and poor outcomes (ie. gastro-intestinal bleeding, stroke or even vision loss).…”

Section: Coping and Adaptation In Lvad Patients: A Meta-synthesismentioning

confidence: 99%

“…gastro-intestinal bleeding, stroke or even vision loss). 20,22 In addition, LVAD patients were plagued with concerns that the LVAD itself would have device problems or that infection might develop. 8,19 They also had concerns about body image and difficulty with managing transplant expectations.…”

Section: Coping and Adaptation In Lvad Patients: A Meta-synthesismentioning

confidence: 99%

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Adaptation and coping in patients living with an LVAD: A metasynthesis

et al. 2016

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Background Left Ventricular Assist Device (LVAD) patients have shown improvements in measures of quality of life and functional status compared to those who are medically managed. Qualitative research has not yet been meaningfully integrated. Aim To synthesize and convey information to inform components of LVAD education programs that support the coping and adaptation of patients living with an LVAD and to identify opportunities for future interventions. Methods Qualitative meta-synthesis using Lazarus and Folkmans’ Transactional Model of stress and coping Results Four distinct stages of adaptation were identified: Pre-LVAD, Implant Hospitalization, Early Home Adaptation and Late Home Adaptation. Each stage includes tasks related to physical, psychological and social domains. Further, two themes emerged: 1) Primary Appraisal: Every stage is a new challenge and 2) Secondary Appraisal: Routines are achievable, emotions are more difficult. Conclusions The emotional challenges LVAD patients face including fear and anxiety related to living with a life limiting illness and changed social roles need to be honestly addressed. Individuals living with LVAD can achieve a sense of independence and enjoy social interactions and activities that are important to them through addressing practical and emotional problems to facilitate effective coping.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Coping and Adaptation In Lvad Patients: A Meta-synthesismentioning

confidence: 99%

Section: Coping and Adaptation In Lvad Patients: A Meta-synthesismentioning

confidence: 99%

Section: Coping and Adaptation In Lvad Patients: A Meta-synthesismentioning

confidence: 99%

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Adaptation and coping in patients living with an LVAD: A metasynthesis

et al. 2016

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TheLVADPatient Bridging to Wellness: Psychological Assessment and Rehabilitation

Dew

2023

Textbook of Transplantation and Mechanical Support for End‐Stage Heart and Lung Disease

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Economic aspects of long‐term left ventricular assist device treatment for chronic heart failure

Welp,

Sindermann,

Dell'Aquila

et al. 2024

ESC Heart Failure

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AimsTechnological advances and the current shortage of donor organs have contributed to an increase in the number of left ventricular assist device (LVAD) implantations in patients with end‐stage heart failure. Demographic change and medical progress might raise the number of these patients, resulting in a further increase in the number of LVAD implantations. The aim of this study was to evaluate the long‐term costs of LVAD therapy and identify diagnoses resulting in expensive stays.Methods and resultsIn this retrospective analysis of prospectively collected data, all patients after implantation of a second‐ or third‐generation LVAD by 31 March 2022 were included. In addition to demographic and survival data, revenues and case mix points were determined for each patient. Of the 163 patients included, 75.5% were male. The mean age at LVAD implantation was 52 ± 14 years. The mean survival was 1458 ± 127 days. During follow‐up, the total inpatient treatment time per patient was 70 ± 87 days. The average duration of outpatient treatment was 55.1%, based on the total duration of support. The average revenue per patient for the implant stay was $193 192.35 ± $111 801.29, for inpatient readmissions $52 068.96 ± $116 630.00, and for outpatient care $53 195.94 ± $62 363.53.ConclusionsLVAD implantation in patients with end‐stage heart failure leads to improved survival but a significant increase in treatment costs. Further multi‐centre studies are necessary in order to be able to assess the effects of long‐term LVAD treatment on the healthcare system.

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A conceptual definition of quality of life with a left ventricular assist device: Results from a qualitative study

Cited by 50 publications

References 39 publications

Adaptation and coping in patients living with an LVAD: A metasynthesis

Adaptation and coping in patients living with an LVAD: A metasynthesis

TheLVADPatient Bridging to Wellness: Psychological Assessment and Rehabilitation

Economic aspects of long‐term left ventricular assist device treatment for chronic heart failure

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