A Concept Mapping Study to Understand Multilevel Resilience Resources Among African American/Black Adults Living with HIV in the Southern United States

Dulin, Akilah; Earnshaw, Valerie A.; Dale, Sannisha K.; Carey, Michael P.; Fava, Joseph L.; Wilson-Barthes, Marta; Mugavero, Michael J.; Dougherty-Sheff, Sarah; Johnson, Bernadette; Napravnik, Sonia; Howe, Chanelle J.

doi:10.1007/s10461-020-03042-6

Cited by 13 publications

(15 citation statements)

References 79 publications

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“…Participants weighted communication of information and resources and confidentiality and sensitivity to stigma as contributing strongly to their relationships with their healthcare providers. These findings align with previous studies that identified patient-provider communication as important for care engagement [ 31 , 32 ] and resilience, particularly for more marginalized populations living with HIV [ 33 ]. Interpersonal aspects of care that respond to known structural barriers to care for women living with HIV also emerged as significant.…”

Section: Discussionsupporting

confidence: 90%

Factors and Priorities Influencing Satisfaction with Care among Women Living with HIV in Canada: A Fuzzy Cognitive Mapping Study

Skerritt

Kaida

Savoie

et al. 2022

JPM

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Engagement along the HIV care cascade in Canada is lower among women compared to men. We used Fuzzy Cognitive Mapping (FCM), a participatory research method, to identify factors influencing satisfaction with HIV care, their causal pathways, and relative importance from the perspective of women living with HIV. Building from a map of factors derived from a mixed-studies review of the literature, 23 women living with HIV in Canada elaborated ten categories influencing their satisfaction with HIV care. The most central and influential category was “feeling safe and supported by clinics and healthcare providers”, followed by “accessible and coordinated services” and “healthcare provider expertise”. Participants identified factors that captured gendered social and health considerations not previously specified in the literature. These categories included “healthcare that considers women’s unique care needs and social contexts”, “gynecologic and pregnancy care”, and “family and partners included in care.” The findings contribute to our understanding of how gender shapes care needs and priorities among women living with HIV.

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Section: Discussionsupporting

confidence: 90%

Factors and Priorities Influencing Satisfaction with Care among Women Living with HIV in Canada: A Fuzzy Cognitive Mapping Study

Skerritt

Kaida

Savoie

et al. 2022

JPM

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“…HIV, age, race), which may be addressed in resilience interventions. Related, it is important to consider the context of geography and race when identifying opportunities for intervention, by examining resilience resources at both the community and neighborhood levels (Dulin et al, 2018(Dulin et al, , 2021. Given that our sample was predominantly African American PLWH living in the Deep South, a group that faces unique stressors (e.g.…”

Section: Implications For Practice and Researchmentioning

confidence: 99%

Psychological resilience is an independent correlate of health-related quality of life in middle-aged and older adults with HIV in the Deep South

et al. 2022

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Older people living with HIV (PLWH) are at risk for poorer health-related quality of life (HRQoL). Psychological resilience may protect HRQoL in this population. The sample included 174 predominately African American PLWH (age 40–73). Results indicated associations between resilience, socioeconomic status, cognitive performance, instrumental activities of daily living, personality, and depressive symptoms. HIV factors (e.g. viral load, duration of HIV) were not associated with resilience. Adjusting for confounders, resilience was associated with mental HRQoL. Understanding factors associated with resilience among older PLWH and the translation of resilience to HRQoL may inform interventions to improve well-being among individuals aging with HIV.

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“…This protocol offers a free, publicly available and user-friendly resource for generating measures of the neighborhood risk environment during multisite studies that rely on PHI. We effectively implemented this protocol in our prior work to identify multilevel resilience resources among African American/Black (AA/B) adults living with HIV [ 30 ]. We found in this prior work that despite the majority of study participants residing in more economically disadvantaged and higher crime neighborhoods compared to the US, AA/B adults living with HIV still identified resilience resources that helped them engage in care.…”

Section: Discussionmentioning

confidence: 99%

“…This protocol follows two main phases based on our work [ 30 ]. Phase 1 includes (1) geocoding patients’ residential addresses and joining geocoded addresses to census tracts, and (2) abstracting indicators of neighborhood crime and socioeconomic disadvantage at the census tract level.…”

Section: Methodsmentioning

confidence: 99%

“…The process of anonymizing census tracts via this protocol can enable analyses to be performed at the individual-level while ensuring a patient’s PHI is not linked to census-designated geoidentifiers. This protocol is informed by our prior experience [ 30 ] geocoding and linking patient data from two HIV clinic-based cohorts in the United States [ 31 – 33 ] and offers a standardized, user-friendly tool that can be adapted for future studies.…”

Section: Introductionmentioning

confidence: 99%

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Characterizing the neighborhood risk environment in multisite clinic-based cohort studies: A practical geocoding and data linkages protocol for protected health information

et al. 2022

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Background Maintaining patient privacy when geocoding and linking residential address information with neighborhood-level data can create challenges during research. Challenges may arise when study staff have limited training in geocoding and linking data, or when non-study staff with appropriate expertise have limited availability, are unfamiliar with a study’s population or objectives, or are not affordable for the study team. Opportunities for data breaches may also arise when working with non-study staff who are not on-site. We detail a free, user-friendly protocol for constructing indices of the neighborhood risk environment during multisite, clinic-based cohort studies that rely on participants’ protected health information. This protocol can be implemented by study staff who do not have prior training in Geographic Information Systems (GIS) and can help minimize the operational costs of integrating geographic data into public health projects. Methods This protocol demonstrates how to: (1) securely geocode patients’ residential addresses in a clinic setting and match geocoded addresses to census tracts using Geographic Information System software (Esri, Redlands, CA); (2) ascertain contextual variables of the risk environment from the American Community Survey and ArcGIS Business Analyst (Esri, Redlands, CA); (3) use geoidentifiers to link neighborhood risk data to census tracts containing geocoded addresses; and (4) assign randomly generated identifiers to census tracts and strip census tracts of their geoidentifiers to maintain patient confidentiality. Results Completion of this protocol generates three neighborhood risk indices (i.e., Neighborhood Disadvantage Index, Murder Rate Index, and Assault Rate Index) for patients’ coded census tract locations. Conclusions This protocol can be used by research personnel without prior GIS experience to easily create objective indices of the neighborhood risk environment while upholding patient confidentiality. Future studies can adapt this protocol to fit their specific patient populations and analytic objectives.

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A Concept Mapping Study to Understand Multilevel Resilience Resources Among African American/Black Adults Living with HIV in the Southern United States

Cited by 13 publications

References 79 publications

Factors and Priorities Influencing Satisfaction with Care among Women Living with HIV in Canada: A Fuzzy Cognitive Mapping Study

Factors and Priorities Influencing Satisfaction with Care among Women Living with HIV in Canada: A Fuzzy Cognitive Mapping Study

Psychological resilience is an independent correlate of health-related quality of life in middle-aged and older adults with HIV in the Deep South

Characterizing the neighborhood risk environment in multisite clinic-based cohort studies: A practical geocoding and data linkages protocol for protected health information

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