A Comparison of Observers' and Self-Report Pain Ratings for Children With Cerebral Palsy

Hadden, Kellie L.; LeFort, Sandra; O’Brien, Michelle; Coyte, Peter C.; Guerriere, Denise N.

doi:10.1097/dbp.0000000000000118

Cited by 25 publications

(25 citation statements)

References 30 publications

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“… Costs of publicly and privately financed resources associated with ambulatory and home‐based care All care recipient populations 5 domains Used in Guerriere et al. (, ); Hadden, LeFort, O'Brien, Coyte, and Guerriere (); Yu, Guerriere, and Coyte, () …”

Section: Resultsmentioning

confidence: 99%

Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

Lin

Durbin

Guerriere

et al. 2018

Health Soc Care Community

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As mental health (MH) care has shifted from institutional settings to the community, families and friends are responsible for providing the majority of the care at home. The substantial literature on the adverse effects experienced by caregivers has focused mainly on psychological morbidity. Less attention has been paid to how caregivers for persons with MH disorders interact with larger social systems and the impacts of factors such as financial strain, lost time from leisure activities, and the availability of health and social services. We conducted a scoping review of MH and other caregiver questionnaires published between 1990 and 2016 to determine whether they addressed four key domains: caregiver work demands, resource needs, resource utilisation and costs. A range of health and social care databases were searched, including MEDLINE and Health and Psychosocial Instruments. After screening for relevance and quality, our search identified 14 instruments addressing elements related to one or more of our domains. Because these instruments covered only a small portion of our domains, we conducted a second targeted search of the general care-giving literature and consulted with experts, identifying an additional 18 instruments. A total of 32 questionnaires were reviewed, 14 specific to care-giving for mental health problems and 18 for other health conditions. Our search identified instruments or items within instruments that assess constructs in each of our domains, but no one instrument covered them completely. Additionally, some constructs were evaluated in detail and others only addressed by single items. While these instruments are helpful for moving measurement beyond the psychological impacts of care-giving, our results serve only as an initial guide. Additional methodological work is needed to more comprehensively measure the impact of care-giving for individuals with MH disorders and to contribute to the development of more meaningful and effective policies and programmes. K E Y W O R D Scare-giving, measurement, mental health, questionnaire, scoping review 2 | LIN et aL. | INTRODUCTIONAs the primary site of mental health (MH) care has shifted from the institutional setting to the community, the role of family members and friends in the care of individuals who have mental health problems has also shifted (Ohaeri, 2003). Most mental health problems begin before age 25 (Kessler et al., 2007) when parents and other family members are already negotiating multiple roles including parenting, supporting ageing parents and managing careers. Many individuals will achieve full recovery from their mental health problems. However, others will experience significant work and social sequelae and, depending on their specific illness, may require either ongoing or episodic help from family and friends throughout their lives. Systems of care exist and are being further developed to support people with mental health problems living in the community; however, the demands on family, friends and caregivers remain su...

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Section: Resultsmentioning

confidence: 99%

Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

Lin

Durbin

Guerriere

et al. 2018

Health Soc Care Community

View full text Add to dashboard Cite

show abstract

“…In the present cohort, seven of the 47 participants required their caregiver to report for them, at least in part. Some literature shows that parents or caregivers can adequately assess a non‐verbal individual’s pain accurately; however, other studies do not . For instance, up to 60% of children with CP who are able to self‐report pain, while 73% of parents of children with CP report that they have pain .…”

Section: Discussionmentioning

confidence: 99%

Spasticity and pain in adults with cerebral palsy

Flanigan

Gaebler‐Spira

Kocherginsky

et al. 2019

Develop Med Child Neuro

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AIM To evaluate whether spasticity measures are related to pain in adults with cerebral palsy (CP). METHOD This cross-sectional study recruited individuals aged 16 to 89 years with a diagnosis of CP. Participants completed the Penn Spasm Frequency Scale (PSFS), Brief Pain Inventory (BPI), and PROMIS Pain Interference measures. The Modified Ashworth Scale (MAS) and Tardieu spasticity angles of six joints were rated and summed to composite MAS and Tardieu scores for each participant. Associations between spasticity and pain measures were evaluated.RESULTS Forty-seven participants (27 females, 20 males) with a mean age of 35 years 7 months (range 18-77y) spanning all Gross Motor Function Classification System (GMFCS) levels were included. Twenty-six participants reported their average pain level on BPI as greater than 0 over the past week (median pain level 4.0). Median PSFS was 1.0 (range 0.0-1.0) and this correlated with average BPI and Pain Interference T scores (median 40.7; q=0.33 and q=0.31 respectively [both p=0.01]). When adjusted for pain medication use and age, MAS correlated with BPI (q=0.30; p=0.04). Other pain and spasticity measures, or GMFCS level, were not significantly related with pain interference or BPI rating. Age was weakly associated with BPI (slope=0.10; p<0.01).INTERPRETATION PROMIS Pain Interference was lower than population-based norms. Patientrated spasm frequency demonstrated better association with pain levels and interference than physician-rated MAS and Tardieu.

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“…Комплексное консервативное лечение, включающее ортезное сопровождение, кинезиотерапию, ботулинотерапию, способствует сохранению и количе-ственному развитию функциональных возможностей па-циента с ДЦП [17,19,39]. Сдерживающим фактором эф-фективной ранней и комплексной послеоперационной реабилитации является болевой синдром, устранение ко-торого может значительно повысить эффективность про-водимых мероприятий и ускорить восстановление двига-тельных возможностей пациента с ДЦП [14,15]. Много-численные исследования последних лет показали, что препараты ботулинического нейротоксина типа А облада-ют наряду с прямым миорелаксирующим действием, ан-тиноцицептивным эффектом, что может значительно улучшить качество жизни пациентов и повысить их моти-вацию к движению [16,41].…”

Section: Discussionunclassified

The results of single-event multilevel orthopedic surgeries and the early rehabilitation used in complex with botulinum toxin treatment in patients with spastic forms of cerebral palsy

Popkov

Zmanovskaya²,

Gubina

et al. 2015

Z. nevrol. psikhiatr. im. S.S. Korsakova

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A Comparison of Observers' and Self-Report Pain Ratings for Children With Cerebral Palsy

Abstract: The findings bring into question the accuracy of single-observer pain ratings for children with CP and possess implications for the management of pain in children with CP.

Cited by 25 publications

References 30 publications

Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

Assessing care-giving demands, resources and costs of family/friend caregivers for persons with mental health disorders: A scoping review

Spasticity and pain in adults with cerebral palsy

The results of single-event multilevel orthopedic surgeries and the early rehabilitation used in complex with botulinum toxin treatment in patients with spastic forms of cerebral palsy

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