A comparison of five transition programmes for youth with chronic illness in Canada

Grant, Christina; Pan, Jason

doi:10.1111/j.1365-2214.2011.01322.x

Cited by 65 publications

(42 citation statements)

References 13 publications

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“…Some work has been accomplished in the YSHCN population that should be adapted and applied to youth with ASD and their families. 39,40 Practitioners across disciplines should strive to incorporate successful HCT practices with similar efforts in educational, vocational, and community settings to maximize social integration and quality of life for individuals with ASD and for all YSHCN.…”

Section: Discussionmentioning

confidence: 99%

Disparities in Transition Planning for Youth With Autism Spectrum Disorder

Cheak‐Zamora¹,

Yang²,

Farmer

et al. 2013

Pediatrics

109

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WHAT'S KNOWN ON THIS SUBJECT: Health care transition services assist youth with special health care needs (YSHCN) in transitioning to adult care without gaps in services or health insurance coverage. Less than half of YSHCN receive anticipatory assistance in this transition; receipt of these services for youth with autism spectrum disorder is unknown. WHAT THIS STUDY ADDS:Youth with autism spectrum disorder receive transition services half as often as youth with special health care needs. Quality of health care is associated with increased receipt of health care transition services. Presence of comorbid conditions decreased receipt of transition services. abstract OBJECTIVE: Little is known about accessibility to health care transition (HCT) services for youth with autism spectrum disorder (ASD). This study expands our understanding by examining the receipt of HCT services in youth with ASD compared with youth with other special health care needs (OSHCN). METHODS:We used the 2005-2006 National Survey of Children with Special Health Care Needs to examine receipt of HCT services for youth (aged 12-17 years) with ASD and youth with OSHCN. Logistic regression analyses explored whether individual, family, or health system factors were associated with receipt of HCT services for youth with ASD. RESULTS:Whereas half of youth with OSHCN received HCT services, less than a quarter of youth with ASD did. Only 14% of youth with ASD had a discussion with their pediatrician about transitioning to an adult provider, less than a quarter had a discussion about health insurance retention, and just under half discussed adult health care needs or were encouraged to take on appropriate responsibility. Logistic regression analyses indicated that having a developmental disability or multiple health conditions in addition to ASD and quality of health care were strong predictors of HCT, whereas demographic and family variables accounted for little variance. CONCLUSIONS:Youth with ASD experience disparities in access to HCT services. Youth with comorbid conditions are at greatest risk for poor access to HCT services and increased quality of care has a positive effect. Research is needed to understand barriers to care and develop policy and practice guidelines tailored for youth with ASD. Pediatrics 2013;131:447-454

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Section: Discussionmentioning

confidence: 99%

Disparities in Transition Planning for Youth With Autism Spectrum Disorder

Cheak‐Zamora¹,

Yang²,

Farmer

et al. 2013

Pediatrics

109

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“…Grant et al discuss the numerous transition models that are employed by different hospitals across Canada, such as the Good2Go model at The Hospital for Sick Children in Toronto and the ON TRAC model used at the Children's and Women's Health Centre in BC. 7 Although foundationally these models share many similar features to satisfy the recommendations set forth by the Canadian Pediatric Society and the Society of Adolescent Health and Medicine, there still persists an overall lack of standardization across Canada with regards to the specific transition programs used for individuals who suffer from chronic illnesses. Seventy-five percent of participants felt that transition adult clinics should be the norm and should parallel the pediatric multidisciplinary clinics.…”

Section: Discussionmentioning

confidence: 99%

The transition process of spina bifida patients to adult-centred care: An assessment of the Canadian urology landscape

Wajchendler¹,

Anderson²,

Koyle³

2017

CUAJ

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Introduction: Due to medical advances over the past three decades, the vast majority of children with spina bifida (SB) now survive into adulthood. As a result, there is a need to implement a well-defined urological transition process for these patients from the pediatric to adult environment. The objective of this study was to identify and analyze the current medical practices employed and the attitudes regarding transition by Canadian pediatric urologists caring for the SB population. Methods: A survey consisting of 14 questions pertaining to physician demographics, current practice, and attitudes towards the transition process of SB patients was distributed at the 2015 annual Pediatric Urologists of Canada (PUC) conference. The survey respondents remained anonymous, and the data were collected and analyzed. Results: A total of 28 surveys were collected from urologists across Canada (25 full-time pediatric, three also providing adult care), representing a >75% response rate. The transition process was suggested to begin at the age of 18 or older by 43% (12/28) of pediatric urologists. The majority, 86% (24/28), do not currently use a questionnaire or a checklist to determine transition readiness of patients. Forty-six percent (13/28) of pediatric urologists do not provide ongoing urological care to their patients after referral has been made to adult-centred care. In the province of Ontario, in which 39% (11/28) of the pediatric urologists practice, 82% (9/11) are full-time pediatric urologists and 78% (7/9) do not provide ongoing care to SB patients after the age of 18. Conclusions: A significant minority of Canadian pediatric urologists perceive that the transition process should begin at the age of 18 or older. As such, it can be inferred that transfer of care and transition are synonymous, not independent. Simplistically, this suggests that transition represents an event rather than a longitudinal process. The fact there is no defined ongoing urological care as a component of this process, suggests the potential for substandard quality of care after these patients graduate to the adult sector. Different provincial healthcare systems and funding plans may further hinder this transition of care by denying provider continuity based on reimbursement plans.

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“…A few areas standout, for example, literature reviews on interventions aimed at addressing developmental transitions have been published in relation to youth with physical disabilities (Kingsnorth et al 2007) and learning disabilities (Cronin 1996). A clear gap is a review of the published literature to describe specific developmental transition interventions and their outcomes for youth with mental health disorders (Stewart et al 2006;Crowley et al 2011;Grant & Pan 2011;Paul et al 2014).…”

Section: Introductionmentioning

confidence: 98%

A scoping review of evaluated interventions addressing developmental transitions for youth with mental health disorders

Rezze

Nguyen

Mulvale

et al. 2015

Child

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Evaluated interventions described in the transitions literature for youth with mental health disorders predominantly focus on vocational needs. The least studied areas were the personal and interpersonal domains. These domains were only incorporated within interventions addressing multiple domains of developmental transitions. These insights can be helpful in guiding evidence-based practice and policy development, as well as informing gaps for future research programmes.

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A comparison of five transition programmes for youth with chronic illness in Canada

Cited by 65 publications

References 13 publications

Disparities in Transition Planning for Youth With Autism Spectrum Disorder

Disparities in Transition Planning for Youth With Autism Spectrum Disorder

The transition process of spina bifida patients to adult-centred care: An assessment of the Canadian urology landscape

A scoping review of evaluated interventions addressing developmental transitions for youth with mental health disorders

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