A cohort study on psychosocial adjustment and psychopathology in adolescents and young adults with congenital heart disease

Freitas, Isabel Maria Bodas; Castro, Marta; Sarmento, Sofia; Moura, Cláudia; Viana, Víctor; Areias, José Carlos; Areias, Maria Emília

doi:10.1136/bmjopen-2012-001138

Cited by 49 publications

(40 citation statements)

References 20 publications

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“…The average annual incidence of depression is 9.3% (Lichtman, Bigger, & Blumenthal, 2008); however, this depends on the type of disease, for example, after coronary artery bypass graft, major depression occurs in 20%, and depressive symptoms in 32-43% of patients (Hawkes, Nowak, Bidstrup, & Speare, 2006). Both in the case of cancers and cardiac diseases, women have a higher severity of anxiety/depressive symptoms than men (Freitas et al, 2013).…”

Section: Introductionmentioning

confidence: 97%

The role of social support in women’s health and recovery processes

Malicka

Kozłowska

Woźniewski

et al. 2015

Psychology, Health & Medicine

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The aim of this study was to assess the psychological state of women who have undergone surgery for breast cancer or cardiac surgery, including examination of the role of social support in both groups. The study included 48 women (mean age: 66.04 ± 8.3 years). They were divided into two groups according to diagnosis: 23 women (mean age: 69.2 ± 8.6 years) who underwent heart surgery (cardiac group, CG) and 25 women (mean age: 63.2 ± 7.0 years) treated for breast cancer and associated with the Women After Mastectomy Club (oncology group, OG). In addition to the assessment of socio-demographic variables, the following self-report questionnaires were administered: Satisfaction with Life Scale, Acceptance of Illness Scale, Beck Depression Inventory, Spielberger State-Trait Anxiety Inventory as well as Berlin Social Support Scale. In the CG, the severity of depressive symptoms was two times higher than in OG (p = .003). In both groups, there was a high percentage (80%) of women with severe symptoms of anxiety (p = .37). In both groups, the level of life satisfaction was similar (p = .58), but OG was characterized by a higher level of acceptance of the disease (p = .003). The correlation analysis showed that in both groups, social support was related differently to the parameters of emotional state. Women treated for breast cancer were in a better mental condition than women treated for heart disease. The support coming from other women in similar circumstances (Women After Mastectomy Club) seems to be more effective than the support coming from the patient's immediate environment. The results for social support ought to be interpreted not only through the prism of mean values of received support, but also with regard to the information on the sources of support.

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Section: Introductionmentioning

confidence: 97%

The role of social support in women’s health and recovery processes

Malicka

Kozłowska

Woźniewski

et al. 2015

Psychology, Health & Medicine

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“…442 This list includes factors related to medical care (eg, ongoing medical surveillance, transitioning from pediatric to adult care, adjusting to implanted cardiac devices, making treatment decisions, preparing for repeat intervention, declining physical health), cognitive challenges (eg, lower academic abilities and achievement, negative thinking), and social functioning (eg, loneliness, social anxiety, parental overprotection, body image concerns, autonomy). 414,430,431,[442][443][444][445][446][447] No definitive conclusions can be drawn with regard to whether psychosocial distress differs by age, sex, or defect complexity. 430 Perceptions of health might be more germane to emotional well-being than objective health status.…”

Section: Pathogenesismentioning

confidence: 99%

Diagnosis and Management of Noncardiac Complications in Adults With Congenital Heart Disease: A Scientific Statement From the American Heart Association

Lui¹,

Saïdi²,

Bhatt³

et al. 2017

Circulation

176

136

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ABSTRACT:Life expectancy and quality of life for those born with congenital heart disease (CHD) have greatly improved over the past 3 decades. While representing a great advance for these patients, who have been able to move from childhood to successful adult lives in increasing numbers, this development has resulted in an epidemiological shift and a generation of patients who are at risk of developing chronic multisystem disease in adulthood. Noncardiac complications significantly contribute to the morbidity and mortality of adults with CHD. Reduced survival has been documented in patients with CHD with renal dysfunction, restrictive lung disease, anemia, and cirrhosis. Furthermore, as this population ages, atherosclerotic cardiovascular disease and its risk factors are becoming increasingly prevalent. Disorders of psychosocial and cognitive development are key factors affecting the quality of life of these individuals. It is incumbent on physicians who care for patients with CHD to be mindful of the effects that disease of organs other than the heart may have on the well-being of adults with CHD. Further research is needed to understand how these noncardiac complications may affect the long-term outcome in these patients and what modifiable factors can be targeted for preventive intervention.

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“…In a large United States study, the National Comorbidity Survey, 29% of the general population had evidence of mental disorders of any kind [20] . While a direct comparison would not be valid, the rate of 36% abnormal results on the HADS questionnaire in adults with ing a direct comparison between studies difficult [1][2][3][4][5][6][7][8][9] . Some studies contract a cohort of patients operated at a single surgical center while others used a sample of convenience from an outpatient clinic.…”

Section: Studies Contradicting a Higher Risk For Depression In Adult Chdmentioning

confidence: 99%

“…In addition, it even appears that things get better as they age: Their "social isolation" decreased during follow up based on the Rotterdam study [38] . However, there the good outcome in the Dutch and German experience may not be representative for the universal experience as studies from other countries now indicate a significant increase in depressive symptoms in diverse populations [1][2][3][4][5][6][7][8][9] .…”

Section: Are Adults With Chd At Risk For Depression?mentioning

confidence: 99%

“…In another Swedish cohort of 1274 patients (with a mean age of 33 years) 29.8% of the participants self-reported symptoms of anxiety or depression [4] . In Portugal, Freitas et al [5] documented a 21.8% lifetime prevalence of psychopathology in a cohort of 110 CHD patients. A Korean study examined 210 Korean 19 years old males of military draft age to 300 controls and found an increased incidence of psychological abnormalities [6] .…”

Section: Introductionmentioning

confidence: 99%

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Depression in adults with congenital heart disease-public health challenge in a rapidly expanding new patient population

Pauliks¹

2013

WJC

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There is a growing population of adults with congenital heart disease (CHD) due to improved survival beyond childhood. It has been suggested that adults with CHD may be at increased risk for mental health problems, particularly depression. The reported incidence of depression in CHD varies from 9% to 30%. This review examines the evidence for a higher depression rate in CHD vs general population. Possible explanations are offered from a variety of disease models, ranging from brain injury to the psychoanalytical approach. Risk factors for an abnormal emotional adjustment and depression include early exposure to stress from illness and medical interventions in infancy, separation from the parents during hospitalizations and brain organic syndromes. Later in life, patients often have to cope with physical limitations. Recent improvements in care may be protective. Current patients may benefit from an earlier age at first surgical intervention, fewer reoperations and inclusion to the mainstream schooling, among other factors. At this point, there is little systematic knowledge about evidence-based therapeutic interventions for depression in adults with CHD. Health care providers of patients with CHD should be aware of mental health challenges and may take a more proactive approach to identifying patients at risk for depression.

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A cohort study on psychosocial adjustment and psychopathology in adolescents and young adults with congenital heart disease

Cited by 49 publications

References 20 publications

The role of social support in women’s health and recovery processes

The role of social support in women’s health and recovery processes

Diagnosis and Management of Noncardiac Complications in Adults With Congenital Heart Disease: A Scientific Statement From the American Heart Association

Depression in adults with congenital heart disease-public health challenge in a rapidly expanding new patient population

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