A Citizens' Coalition in Mental Health Advocacy: The Maryland Experience

Cromwell, Herbert S.; Howe, James W.; O'Rear, Grady

doi:10.1176/ps.39.9.959

Cited by 5 publications

(6 citation statements)

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“…These findings support the contention that bloc recruitment strategies expedite the development of coalitions (Johnson, 1983;Snow et al, 1980). The case studies of Cromwell et al (1988), Tefft (1987), and Trainor et al (1987) all provided evidence for the support of many diverse stakeholder groups in mental health coalitions. Once again, however, since this case study and previous case studies with strong bases of organizational support have reported differential degrees of success, other factors must also be important for influencing outcomes.…”

Section: Discussionsupporting

confidence: 59%

“…In the state of Maryland, major stakeholder groups were recruited and united towards the common goal of shifting resources into community mental health (Cromwell, Howe, & O'Rear, 1988). A family group (Alliance for the Mentally II1 of Maryland), a consumer group (On Our Own of Maryland), the state Mental Health Association, and the state association of psychosocial rehabilitation workers joined forces in 1983 to form a statewide coalition.…”

Section: Mental Health Advocacy Coalitionsmentioning

confidence: 99%

“…From these case studies, it appears that those coalitions that were unsuccessful in reaching their goals, at least initially, met with considerable resistance from elected politicians and government bureaucrats (Dowell & Farmer, 1992;Tefft, 1987;Wolf, 1990). On the other hand, it seems that coalitions that were more successful were characterized by at least some of the three factors resource mobilization theory considers necessary for change: (a) persistent advocacy efforts, (b) organizational bases of support, and (c) a favorable political climate (Carling et al, 1987;Cromwell et al, 1988;Trainor et al, 1987). However, data relevant to each of these three factors and outcome data were not systematically collected, and hence were not always reported.…”

Section: Mental Health Advocacy Coalitionsmentioning

confidence: 99%

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The development of a mental health coalition: A case study

Nelson

1994

American J of Comm Psychol

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Described the development of a local-level mental health coalition to advocate for housing and community support programs for psychiatric consumer/survivors. Resource mobilization theory was used as a framework from which to view and understand the origins, goals, tactics, and outcomes of the coalition. Data were presented indicating that the coalition played a role in obtaining increased funding for housing and community support programs. Also, there was an emphasis on consumer/survivor and family participation in the change process. Benefits and limitations of the coalition after 6 years of operation were reviewed and compared with other advocacy coalitions in mental health.

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Section: Discussionsupporting

confidence: 59%

Section: Mental Health Advocacy Coalitionsmentioning

confidence: 99%

Section: Mental Health Advocacy Coalitionsmentioning

confidence: 99%

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The development of a mental health coalition: A case study

Nelson

1994

American J of Comm Psychol

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“…In the British study, 85% of the POs had different coalitions through which co‐operation was made with decision‐makers, government, professionals and business 7–9 . In international studies, coalitions in mental health field and breast cancer field have been successful 28,29 . Crossing national borders is an international phenomenon.…”

Section: Discussionmentioning

confidence: 99%

“…[7][8][9] In international studies, coalitions in mental health field and breast cancer field have been successful. 28,29 Crossing national borders is an international phenomenon. US-based organizations are establishing offices in Europe and financing different activities with the aim of getting patient groups to promote activities (e.g.…”

Section: Activities and Co-operationmentioning

confidence: 99%

Patient organizations in Finland: increasing numbers and great variation

Toiviainen

Vuorenkoski²,

Hemminki

2010

Health Expectations

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Objective There is very little research on patient organizations (POs), even though their numbers and influence seem to be increasing. The purpose of this study was to describe the establishment, membership, size, organization, decision making and basic funding of national POs in Finland.Setting and participants National POs (n = 130) were identified from their umbrella organizations and by Internet searches. Data were collected from POsÕ web pages (87% of POs had one), FinlandÕs Slot Machine Association (RAY, an important public financier of POs), a relevant survey done by a local TV-company, and interviews and written materials of POs.Results and conclusions Some current national POs were established around the turn of the 19 th century. The rate of establishment of new POs increased from the 1970s and particularly in the 1990s when POs were characterized by increasing specialization. POs focused on different patient groups and diseases and were founded by philanthropists, physicians, patients, parents and the drug industry. Members could be patients, patient relatives, health-care professionals and organizations. POs widely varied in memberships (20-145 000, in 2002) and in number of paid personnel (0-1395, in 2002), organizational structure and decision making. Interest groups and financiers were often represented in decision-making organs. Activities included mutual support and service production, and, increasingly, informing and lobbying. POs had wide domestic and international co-operation and networking. Drug industry marketing was visible on PO web pages. Budget sizes varied (4000-15 million euros, in 2001). The main public financier was RAY. The old national POs were large and part of national social and health care, but newer ones were often established for mutual support and lobbying. National POs are not uniform but characterized by great variation. The number of national POs is increasing suggesting tighter competition for financing and visibility in the future.

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The residential needs and preferences of persons with serious mental illness: A comparison of consumers and family members

Rogers

Danley

Anthony

et al. 1994

The Journal of Mental Health Administration

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This study reports on a systematic statewide effort to determine the residential needs and preferences of two important groups: primary consumers of mental health services and family members of consumers. Two comparable surveys regarding the residential needs of consumers were conducted. In all, 314 consumers and 459 family members participated in the survey. A comparison of the preferences of family members and consumers suggests that family members more often prefer congregate living situations and more staff support than do consumers. Consumers more often express a desire to reside by themselves without staff and without other persons who are mentally ill. While the direct comparison of preferences from these two constituencies has limitations, these data do suggest significant variability in needs and preferences voiced by consumers and their family members; discrepancies that need to be addressed by mental health policymakers and planners.

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A Citizens' Coalition in Mental Health Advocacy: The Maryland Experience

Cited by 5 publications

References 0 publications

The development of a mental health coalition: A case study

The development of a mental health coalition: A case study

Patient organizations in Finland: increasing numbers and great variation

The residential needs and preferences of persons with serious mental illness: A comparison of consumers and family members

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