A Burden of Choice: The Ripple Effect: Parents’ Grief and the Role of Family and Friends

Bindeman, Julie

doi:10.1007/978-3-319-18911-6_15

Cited by 3 publications

(1 citation statement)

References 13 publications

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“…16 The role of family and friends in providing support to grieving individuals is already well described. 17 Examining ways this could be further encouraged or explored with families may likewise be helpful.…”

Section: Discussionmentioning

confidence: 99%

Needs analysis of parents following sudden cardiac death in the young

et al. 2020

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ObjectiveThe sudden cardiac death (SCD) of a young person is a devastating event for any parent. Inherited heart disease is often either identified or assumed to be the cause. Few studies have explored the psychosocial impact to the surviving at-risk family members. We sought to investigate the needs of parents who have experienced the SCD of their child (≤45 years).MethodsA quantitative needs analysis questionnaire was developed based on semistructured interviews, including one focus group and a review of relevant literature. Eligible participants were invited to participate in this cross-sectional survey study.ResultsThere were 38 parents who completed a quantitative survey. Parents’ perceived needs for information and support spanned medical, psychosocial, spiritual and financial domains. Of the support and information needs assessed, medical needs were identified as the most important domain, followed by psychosocial, spiritual and financial. Importantly, psychosocial information and support needs were reported as the most unmet need, endorsed by 54% of parents. Medical information and support needs were reported as unmet by almost one third of parents. The two most endorsed needs were ‘To have the option of whether or not you would pursue genetic testing for yourself or family members’ and ‘To understand what happened’.ConclusionsThis work demonstrates for the first time, the multifactorial needs of parents after SCD in the young. With the greatest unmet need reported as psychosocial needs, there is clear necessity to find ways of integrating psychological support in to the care of families after SCD in the young.

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Section: Discussionmentioning

confidence: 99%

Needs analysis of parents following sudden cardiac death in the young

et al. 2020

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Counseling Women Who Have Terminated a Pregnancy Due to Fetal Anomaly (TOPFA): The ACCEPT Model

Hyatt

Danya²

2019

Clin Soc Work J

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A Needs Analysis of Parents Following Sudden Cardiac Death in the Young

McDonald

Sharpe

Yeates

et al. 2019

Preprint

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The sudden cardiac death (SCD) of a young person is a devastating event for any parent. Inherited heart disease is often either identified or assumed to be the cause. Few studies have explored the psychosocial impact to the surviving at-risk family members. We sought to investigate the needs of parents who have experienced the SCD of their child (≤45 years). A quantitative needs analysis questionnaire was developed based on semi-structured interviews, including one focus group, and a review of relevant literature. There were 38 parents who completed a cross-sectional quantitative survey. Parents perceived needs for information and support spanned medical, psychosocial, spiritual and financial domains. Medical information and support needs were identified as the most important domains, followed by psychosocial, spiritual and financial information and support needs. Importantly, psychosocial information and support needs were reported as the most unmet need, endorsed by 54% of parents. Medical information and support needs were reported as unmet by almost one third of parents. The two most endorsed needs were ″To have the option of whether or not you would pursue genetic testing for yourself or family members″ and ″To understand what happened″. This work demonstrates for the first time, the multifactorial needs of parents after SCD in the young. With the greatest unmet need reported as psychosocial needs, there is clear necessity to find ways of integrating psychological support in to the care of families after SCD in the young.

show abstract

A Burden of Choice: The Ripple Effect: Parents’ Grief and the Role of Family and Friends

Cited by 3 publications

References 13 publications

Needs analysis of parents following sudden cardiac death in the young

Needs analysis of parents following sudden cardiac death in the young

Counseling Women Who Have Terminated a Pregnancy Due to Fetal Anomaly (TOPFA): The ACCEPT Model

A Needs Analysis of Parents Following Sudden Cardiac Death in the Young

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