A Breast Cancer Education Program for D/deaf Women

Abstract

Barriers to obtaining breast cancer prevention knowledge and breast cancer screening have been noted among D/deaf women. A randomized controlled trial (RCT) is described that tested a culturally and linguistically tailored breast cancer education program conducted among a racially/ethnically diverse sample of 209 D/deaf women age 40 years or older. The study focused on D/deaf women with no more than a secondary education, a population at relatively high risk for incomplete breast health knowledge and services. This population's inadequate breast cancer knowledge and screening practices and the value of the education program were confirmed. Knowledge increased from -baseline to 12-month follow-up in the intervention group, and in some instances the control group; increased intention to get a mammogram was observed in the intervention group. Possible reasons for the few significant intervention/control group differences at 12 months were examined. Materials from the RCT are available online.

Older Women’s Perspectives Driving Mammography Screening Use and Overuse: a Narrative Review of Mixed-Methods Studies

“…Access barriers, such as cost/lack of insurance, lack of transportation, and difficulty making an appointment, were also commonly reported across quantitative and qualitative studies [42,50,52,54,63,72,[74][75][76][77]. Additional barriers to mammography screening include concerns around radiation exposure, competing demands/time, and women not being aware of or told by their provider to get a mammogram [46,47,51,52,54,56,63,71,72,74,75,77]. Overall, perceived barriers represented a consistent group of drivers of mammography screening behavior, with women reporting more barriers being less likely to receive a mammogram [40, 42, 43, 45, 48•, 53, 61, 62, 66].…”

Breast self‐examination training video with the sign language for deaf women: An interventional study

“…Key finding from this study concerns the effectiveness of the sign language training video for improving the BSE skills of deaf women. As explained above, hearing impaired women cannot benefit from healthcare services sufficiently, so they lack knowledge about BSE and cancer screening programs (Berman et al, 2013;Cumberland et al, 2018;Koçak et al, 2019), which are necessary for early diagnosis of breast cancer (Koçak et al, 2019). In Turkey, 60. while none of the participating hearing impaired women with a mean age of 50-61.7 years had done so.…”

Assessing and Providing Culturally Competent Care in Radiation Oncology for Deaf Cancer Patients

“…For example, multiple interventional studies in our series conducted preintervention surveys and found that deaf adults consistently had statistically significant lower baseline scores for cancer-specific knowledge and were more likely to not understand the value of or recognize cancer-specific screening tests. 4,[11][12][13][14][15][16][17][18][19][20][21] In the most extreme example, a focus group interview study reported that a breast cancer survivor stated she did not know what cancer was when asked, despite being a survivor. 21 However, other variables, beyond deafness, may also be in play such as socioeconomic status, level of education, language preference, and so forth.…”

“…Moreover, those same studies showed that accessible programs can lead to better adherence to cancer-specific screening recommendations or avoidance of carcinogens such as tobacco use in deaf youth. 4,[11][12][13][14][15][16][17][18][19][20][21] The third barrier was deaf patients' frustration with the health care system and the lack of linguistically and culturally competent health care providers. A survey of ASL interpreters showed that multiple providers did not understand what effective communication with deaf patients entailed and thought inferior methods such as lipreading were acceptable forms of communication.…”