A beginner’s guide to data stewardship and data sharing

Abstract

Study design A narrative review of principles, benefits and disadvantages, as well as methods of research data sharing. Objectives To assist prospective Spinal Cord authors and others with understanding and implementing data sharing, so that various benefits of such sharing can accrue to all spinal cord injury research stakeholders. Setting International. Methods The medical research and health care services literature was reviewed nonsystematically for relevant articles, and web sites were explored for information and services offered by various pertinent organizations. Results Grant makers, professional organizations, research journals, publishers, and other entities in the research field increasingly stress the ethics as well as societal and practical benefits of data sharing, and require researchers to do so within a reasonable time after data collection ends. Sharing data, retrospectively, generally requires much time and resources, but when a data management plan is part of a research proposal from the start, costs are limited, and grant makers allow these costs to be part of a budget. There are many organizations that offer information on or even assist with preparing data for sharing and actual deposit in a data repository. Conclusions The requirement of data sharing is not likely to go away, and researchers interested in submitting their reports to Spinal Cord would do well to familiarize themselves with the myriad practical issues involved in preparing data for sharing.

Reduce, reuse, recycle: good stewardship of research data

“…Spinal Cord now also makes it clear in its decision letters that suitability for publication will be influenced by authors' willingness to share data. This issue of Spinal Cord contains an article addressing in detail the why and how of making one's data available, without infringing on the rights of privacy and confidentiality of research participants and patients [5]. It is hoped that over 2019 and 2020 we will see a further improvement in authors' willingness to embrace this important initiative.…”

Gestión de datos de investigación y bibliotecas: preservando los nuevos bienes científicos

“…• Conocimiento de los aspectos legales y éticos de la gestión de datos (Dijkers, 2019;Jansen et al, 2019;Mons, 2018).…”

“…• Quehacer directo con nuevos flujos de trabajo y nuevos desarrollos de infraestructura para el área (Dijkers, 2019;Verheul et al, 2019).…”

Implementação de serviços institucionais de administração de dados | Implementation of Institutional Data Stewardship Services

“…A seguir, no Quadro 1, comparam-se as competências e tarefas dos três profissionais de dados mais vinculados ao âmbito acadêmico. Habilidades comunicativas e didáticas (KENNAN, 2016) et al, MONS, 2018) Conhecimento dos aspectos legais e éticos da gestão de dados (JANSEN et al, 2019;DIJKERS, 2019;MONS, 2018) Trabalho direto com novos fluxos de trabalho e novos desenvolvimentos de infraestrutura para a área (DIJKERS, 2019;VERHEUL et al, 2019) Análise dos dados dentro do projeto.…”