Abstract:A chart review was performed of all patients diagnosed with infantile hemangioma in the pediatric dermatology clinic to determine whether distance traveled by the patient affected adherence to follow-up and treatment plans. An increase in distance was associated with an increase in likelihood of nonadherence to treatment or follow-up plans. Compared to patients who lived within 10 miles of a pediatric dermatologist, families who lived farther away were less likely to adhere to treatment plans. Families who tra… Show more
“…Given that poor access to dermatologists can lead to delays in care and worse dermatologic disease outcomes, it is critical to improve patients' access to pediatric dermatologists 7,8,25 . Therefore, while the SPD continues to develop and implement strategies to increase the pediatric dermatology workforce, efforts should also be made to improve the distribution of the current workforce.…”
Section: Discussionmentioning
confidence: 99%
“…Given that poor access to dermatologists can lead to delays in care and worse dermatologic disease outcomes, it is critical to improve patients' access to pediatric dermatologists. 7,8,25 Jennifer T. Huang https://orcid.org/0000-0001-6191-7486…”
Section: Materials S and Me Thodsmentioning
confidence: 99%
“…Studies have cited that longer travel distances and less specialist access decrease patients' adherence to treatment plans, increase non-attendance rates for follow-up visits, and worsen patients' clinical outcomes. [7][8][9][10] Furthermore, children with unmet specialist-care needs tend to also be the most vulnerable members of society:…”
Section: Introductionmentioning
confidence: 99%
“…Although the pediatric dermatologist undersupply is well‐documented, 1 little is known about the geographic distribution of pediatric dermatologists across the US relative to the population of children and pediatric generalists, both of which may serve as proxies for areas with the greatest need for pediatric dermatologists. Studies have cited that longer travel distances and less specialist access decrease patients' adherence to treatment plans, increase non‐attendance rates for follow‐up visits, and worsen patients' clinical outcomes 7‐10 . Furthermore, children with unmet specialist‐care needs tend to also be the most vulnerable members of society: Compared to nonpoor children, children who live below the federal poverty level or are uninsured have 2.5 times and 4.3 times higher likelihood of reporting unmet need for pediatric subspecialty care, respectively 11 .…”
Background /Objectives: Although 82% of pediatricians report that their patients have difficulty accessing pediatric dermatologists, the regions with greatest need for the specialty are not well-defined. We aimed to determine the geographic distribution of pediatric dermatologists relative to the number of children and pediatric generalists. Methods: We performed a cross-sectional study of all US board-certified pediatric dermatologists, generalists (defined as pediatricians and family medicine physicians), and children in 2020. Data were obtained from the Society for Pediatric Dermatology, American Board of Pediatrics, Centers for Medicare and Medicaid, and US Census Bureau. Number of children, pediatric dermatologists, and pediatric generalists were tabulated in each county and state, and the distributions of pediatric dermatologists and generalists relative to the population of children were quantified with the Gini coefficient. Results: Of 317 pediatric dermatologists, 243 (76.7%) were women and 311 (98.1%) worked in a metropolitan county. A pediatric dermatologist was present in 41/50 (82%) states and 142/3228 (4.4%) counties. Not a single pediatric dermatologist was found in 54/92 (58.7%) counties with 100 000-199 999 children, 15/53 (28.3%) counties with 200 000-499 999 children, and 4/13 (30.8%) counties with ≥500 000 children. The Gini coefficient for the state-level distribution of pediatric dermatologists relative to population of children was 0.488 compared to 0.132 for that of pediatric generalists. Conclusion: There is a maldistribution of pediatric dermatologists, resulting in children with unmet dermatologic needs in nine states and 96 heavily populated counties. These results can inform initiatives to recruit pediatric dermatologists and to expand telehealth access to specific high-density areas.
“…Given that poor access to dermatologists can lead to delays in care and worse dermatologic disease outcomes, it is critical to improve patients' access to pediatric dermatologists 7,8,25 . Therefore, while the SPD continues to develop and implement strategies to increase the pediatric dermatology workforce, efforts should also be made to improve the distribution of the current workforce.…”
Section: Discussionmentioning
confidence: 99%
“…Given that poor access to dermatologists can lead to delays in care and worse dermatologic disease outcomes, it is critical to improve patients' access to pediatric dermatologists. 7,8,25 Jennifer T. Huang https://orcid.org/0000-0001-6191-7486…”
Section: Materials S and Me Thodsmentioning
confidence: 99%
“…Studies have cited that longer travel distances and less specialist access decrease patients' adherence to treatment plans, increase non-attendance rates for follow-up visits, and worsen patients' clinical outcomes. [7][8][9][10] Furthermore, children with unmet specialist-care needs tend to also be the most vulnerable members of society:…”
Section: Introductionmentioning
confidence: 99%
“…Although the pediatric dermatologist undersupply is well‐documented, 1 little is known about the geographic distribution of pediatric dermatologists across the US relative to the population of children and pediatric generalists, both of which may serve as proxies for areas with the greatest need for pediatric dermatologists. Studies have cited that longer travel distances and less specialist access decrease patients' adherence to treatment plans, increase non‐attendance rates for follow‐up visits, and worsen patients' clinical outcomes 7‐10 . Furthermore, children with unmet specialist‐care needs tend to also be the most vulnerable members of society: Compared to nonpoor children, children who live below the federal poverty level or are uninsured have 2.5 times and 4.3 times higher likelihood of reporting unmet need for pediatric subspecialty care, respectively 11 .…”
Background /Objectives: Although 82% of pediatricians report that their patients have difficulty accessing pediatric dermatologists, the regions with greatest need for the specialty are not well-defined. We aimed to determine the geographic distribution of pediatric dermatologists relative to the number of children and pediatric generalists. Methods: We performed a cross-sectional study of all US board-certified pediatric dermatologists, generalists (defined as pediatricians and family medicine physicians), and children in 2020. Data were obtained from the Society for Pediatric Dermatology, American Board of Pediatrics, Centers for Medicare and Medicaid, and US Census Bureau. Number of children, pediatric dermatologists, and pediatric generalists were tabulated in each county and state, and the distributions of pediatric dermatologists and generalists relative to the population of children were quantified with the Gini coefficient. Results: Of 317 pediatric dermatologists, 243 (76.7%) were women and 311 (98.1%) worked in a metropolitan county. A pediatric dermatologist was present in 41/50 (82%) states and 142/3228 (4.4%) counties. Not a single pediatric dermatologist was found in 54/92 (58.7%) counties with 100 000-199 999 children, 15/53 (28.3%) counties with 200 000-499 999 children, and 4/13 (30.8%) counties with ≥500 000 children. The Gini coefficient for the state-level distribution of pediatric dermatologists relative to population of children was 0.488 compared to 0.132 for that of pediatric generalists. Conclusion: There is a maldistribution of pediatric dermatologists, resulting in children with unmet dermatologic needs in nine states and 96 heavily populated counties. These results can inform initiatives to recruit pediatric dermatologists and to expand telehealth access to specific high-density areas.
“…Owing to dermatologist shortages in rural areas, studies have shown that rural residents travel longer distances to see specialists, experience longer wait times, and suffer higher mortality rates from melanoma and Merkel cell carcinoma compared with urban residents [1][2][3][4]. In turn, longer travel distances to dermatologists lead to decreased treatment adherence and higher non-attendance rates [5]. Recent data have highlighted that younger dermatologists are increasingly practicing in urban settings, suggesting that the urban-rural workforce gap will continue to widen if strategies to recruit rural dermatologists are not implemented [1].…”
Purpose
To improve the understanding of adherence as one major factor of disease control in acromegaly patients, we systematically assessed patients’ motivations to adhere to advised follow-up schedules and recommended medication for acromegaly.
Methods
Cross-sectional, postal questionnaire study on adult patients with acromegaly, operated upon a growth hormone producing pituitary adenoma more than 1 year ago in two tertiary treatment centers. We assessed demographic and clinical characteristics, disease status, adherence to acromegaly medication and/or aftercare, and the five dimensions defined by the World Health Organization influencing adherence. Wherever applicable, we included validated short scales. The answers of 63 patients (33 f, 30 m; mean age 56.1 y) were analyzed.
Results
Patients with problems in adherence to aftercare had a significantly lower subjective symptomload than those adherent to aftercare (p = 0.026) and a lower perceived need for treatment (p = 0.045). Patients with adherence problems to medication had a higher subjective symptomload than those without (p = 0.056). They also tended to have shorter consultations, were significantly more often dissatisfied with the duration of their medical consultations (42% vs 4.8%, p = 0.019) and tended to find that their physician explained potential difficulties with adherence less well than patients without adherence problems (p = 0.089).
Conclusions
To our knowledge, this is the first study which explored adherence to medication and aftercare in patients with acromegaly, taking into account potential influencing factors from all areas defined by the WHO model of adherence. Of the modifiable factors of adherence, patient–doctor relationship seemed to play a crucial role and could be one leverage point to improve adherence.
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