A 3-day ‘stroke camp’ addressed chronic disease self-management elements and perceived stress of survivors of stroke and their caregivers reduced: Survey results from the 14 US camps

Community- and Patient-Partner Engagement in Women’s Cardiovascular Disease Research: A Rapid Review of the Evidence

“…In addition, 12 published manuscripts were identified from a specific citation search; these were included as a compendium to the original record identified in the search (ie, full-text papers to support conference abstracts). In total, 35 records 62 , 63 , 67 , 68 , 69 , 70 , 71 , 72 , 73 , 74 , 75 , 76 , 77 , 78 , 79 , 80 , 81 , 82 , 83 , 84 , 85 , 86 , 87 , 88 , 89 , 90 , 91 , 92 , 93 , 94 , 95 , 96 , 97 , 98 were included in the final review.

Figure 1 Preferred Reporting Items for Systematic Reviews and Meta-Analyses ( PRISMA) 2020 flow diagram.

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“…The 35 records represent data from 474 community and patient partners 62 , 63 , 67 , 68 , 70 , 71 , 73 , 74 , 75 , 76 , 77 , 78 , 80 , 81 , 82 , 83 , 84 , 85 , 86 , 87 , 89 , 90 , 91 , 96 , 97 , 98 , 99 who completed studies, including a total of 417 (88%) female partners. Of the 35 papers, the majority originated in the US (n = 16; 46%), 68 , 71 , 72 , 73 , 76 , 77 , 79 , 81 , 83 , 84 , 87 , 90 , 93 , 94 , 95 , 96 Canada ( n = 7; 20%), 62 , 63 , 69 , 70 , 74 , 75 , 98 and the UK (n = 6; 17%). 67 , 80 , 82 , 85 , 92 , 97 The remaining papers originated in Ireland (n = 1; 2%), 78 Sweden (n = 1; 2%), 86 Turkey (n = 1; 2%), 88 Germany (n = 1; 2%), 89 Denmark (n = 1; 2%), 91 and Greece (n = 1; 2%).…”

“… 67 , 80 , 82 , 85 , 92 , 97 The remaining papers originated in Ireland (n = 1; 2%), 78 Sweden (n = 1; 2%), 86 Turkey (n = 1; 2%), 88 Germany (n = 1; 2%), 89 Denmark (n = 1; 2%), 91 and Greece (n = 1; 2%). 99 Patient engagement focused on women with cerebrovascular disease and stroke (n = 19; 54.2%), 63 , 67 , 68 , 76 , 78 , 79 , 82 , 83 , 85 , 86 , 87 , 89 , 90 , 93 , 94 , 95 , 96 , 97 , 99 heart disease and myocardial infarction (n = 10; 28.6%), 62 , 63 , 73 , 74 , 76 , 80 , 84 , 91 , 94 , 98 and CVD and heart failure (n = 10; 28.6%). 69 , 70 , 71 , 72 , 75 , 77 , 81 , 83 , 88 , 92 Four were randomized controlled trials (RCTs), 69 , 84 .…”

Lessons From the Field. Chronic disease: Action for post‐pandemic wellness and health

“…Other tasks important to chronic disease self-management are problem-solving, goal-setting, decision-making, collaborating with health care professionals, and assessing and utilizing resources (e.g., Internet websites, community resource guides, and taking action; Schwertfeger et al, 2023). Community-based Chronic Disease Self-Management Programs (CDSMPs) are one way in which individuals can learn and practice self-management tasks (CDC, 2021).…”

“…Community-based Chronic Disease Self-Management Programs (CDSMPs) are one way in which individuals can learn and practice self-management tasks (CDC, 2021). For example, a camp for persons with stroke and their caregivers included training on core selfmanagement tasks (Schwertfeger et al, 2023). Researchers examined whether the CDMSP tasks were used during the camp and whether camp activities were associated with decreased stress among the campers.…”