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Abstract

BackgroundThe Self-Perception and Relationships Tool (S-PRT) is intended to be a clinically responsive and holistic assessment of patients' experience of illness and subjective Health Related Quality of Life (HRQL).MethodsA diversity of patients were involved in two phases of this study. Patient samples included individuals involved with renal, cardiology, psychiatric, cancer, chronic pelvic pain, and sleep services. In Phase I, five patient focus groups generated 128 perceptual rating scales. These scales described important characteristics of illness-related experience within six life domains (i.e., Physical, Mental-Emotional, Interpersonal Receptiveness, Interpersonal Contribution, Transpersonal Receptiveness and Transpersonal Orientation). Item reduction was accomplished using Importance Q-sort and Importance Checklist methodologies with 150 patients across the participating services. In Phase II, a refined item pool (88 items) was administered along with measures of health status (SF-36) and spiritual beliefs (Spiritual Involvements and Beliefs Scale – SIBS) to 160 patients, of these 136 patients returned complete response sets.ResultsFactor analysis of S-PRT results produced a surprisingly clean five-factor solution (Eigen values> 2.0 explaining 73.5% of the pooled variance). Items with weaker or split loadings were removed leaving 36 items to form the final S-PRT rating scales; Intrapersonal Well-being (physical, mental & emotional items), Interpersonal Receptivity, Interpersonal Contribution, Transpersonal Receptivity and Transpersonal Orientation (Eigen values> 5.4 explaining 83.5% of the pooled variance). The internal consistency (Cronbach's Alpha) of these scales was very high (0.82–0.97). Good convergent correlations (0.40 to 0.67) were observed between the S-PRT scales and the Mental Health scales of the SF-36. Correlations between the S-PRT Intrapersonal Well-being scale and three of SF-36 Physical Health scales were moderate (0.30 to 0.46). The criterion-related validity of the S-PRT spiritual scales was supported by moderate convergence (0.40–0.49) with three SIBS scales.ConclusionEvidence supports the validity of the S-PRT as a generally applicable measure of perceived health status and HRQL. The test-retest reliability was found to be adequate for most scales, and there is some preliminary evidence that the S-PRT is responsive to patient-reported changes in determinants of their HRQL. Clinical uses and directions for future research are discussed.

Plant-Dominant Low-Protein Diet for Conservative Management of Chronic Kidney Disease

“…(3) Uremic symptoms questionnaire: This questionnaire is derived from the "Symptom Assessment Instrument" by Weisbord et al [140], which was created and validated in US veterans with stage 5 CKD. (4) Self-Perception and Relationship Questionnaire: This item will assess the psychosocial-spiritual well-being using the 28-item scale [141]. (5) Food Frequency Questionnaire (FFQ) [142]: this questionnaire has been developed by Kalantar-Zadeh et al using the Block FFQ from UC Berkeley, and can be used semi-annually to annually (see Table 5).…”

What Matters in Cancer Survivorship Research? A Suite of Stakeholder-Relevant Outcomes

“…Ore and Foli [28] recently published a concept analysis on reintegration post-cancer treatment that demonstrated the dynamic and evolving nature of this outcome, which involves a reorganization of roles and personal abilities to create a new normal and post-treatment identity. The authors provide some suggested tools to help assess this concept such as symptom scales as well as the Self-Perception and Relationships Tool [29] and the Reintegration to Normal Living Index [30]. The latter is a provider-reported tool used mainly in rehabilitation settings to assess the degree to which individuals who have experienced traumatic or incapacitating illness achieve reintegration into normal activities.…”

Reintegration for Post-treatment Cancer Survivors: A Concept Analysis

“…and "Are these changes something that you act upon?" The Self-Perception and Relationships Tool (Atkinson, Wishart, Wasil, & Robinson, 2004) is a holistic assessment used to measure self-perceptions throughout the health care process. Such an assessment could prove valuable across many cancer populations (Atkinson et al, 2004).…”

“…The Self-Perception and Relationships Tool (Atkinson, Wishart, Wasil, & Robinson, 2004) is a holistic assessment used to measure self-perceptions throughout the health care process. Such an assessment could prove valuable across many cancer populations (Atkinson et al, 2004). Quickly identifying survivors who are in the process of reorganizing or reevaluating aspects of their lives can assist nurses with early supportive interventions and drive more effective health care strategies.…”