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Treurniet, Henriëtte; Essink-Bot, M. L.; Mackenbach, Johan P.; Maas, P.J. van der

doi:10.1023/a:1018435427116

Cited by 25 publications

(4 citation statements)

References 29 publications

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“…HRQOL is an important outcome measure in clinical trials, clinical improvement assessment strategies and population-based health assessment strategies [21]. Our results showed that HRQOL scores of physical, emotional, social, school functioning and a summary scale among children with FC were significantly lower than those of healthy children.…”

Section: Discussionmentioning

confidence: 73%

Impact of Functional Constipation on Health-Related Quality of Life in Preschool Children and Their Families in Xi’an, China

et al. 2013

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AimFunctional constipation (FC) is one of the common diseases among children. The aim of this study was to investigate the health-related quality of life (HRQOL) in preschool children diagnosed with FC and the impact of the condition on affected families.MethodsIn this cross-sectional, case-control study, 152 children aged 3–6 years with FC, 176 healthy children aged 3–6 years without FC, and their primary caregivers were selected. Chinese versions of the PedsQLTM 4.0 Generic Core Scale and the Family Impact Module (FIM) were used to assess childhood HRQOL and the impact of FC on family members, respectively. HRQOL scores were compared between children with FC and healthy children. In addition, a multiple step-wise regression with demographic variables of children and their caregivers, family economic status, duration and symptoms of FC, as independent variables, was used to determine factors that influenced HRQOL in children and had impacted caregivers.ResultsScores of physical, emotional, social and school functions, and summary scales were significantly lower in children with FC than in healthy children (p < 0.05). Physical, emotional, social, cognitive, and communication scores for caregivers, as well as daily activities and relationships for families of children with FC, were significantly lower than those of caregivers and families with healthy children (p < 0.05). Children’s ages, duration of FC, symptoms of FC, the child-caregiver relationship, family economic status, and caregiver education level emerged as the main factors influencing HRQOL in children, caregivers, and family members. ConclusionsFC had a significant impact on HRQOL of affected children and their caregivers, as well as their family functions. Social characteristics of children and caregivers, duration and symptoms of FC and family economic status significantly affected HRQOL of children and caregivers, as well as family functions of children with FC.

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Section: Discussionmentioning

confidence: 73%

Impact of Functional Constipation on Health-Related Quality of Life in Preschool Children and Their Families in Xi’an, China

et al. 2013

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“…However, the actual purpose and sense of the palliative care is still debatable and known with little evidences. Palliative care is thought to be an indicator of the patient quality of care and improvements in life quality [ 31 ]. Previously, without the provision of palliative care the death or disease complications were thought to be the biological indicators.…”

Section: Palliative Care and Cancermentioning

confidence: 99%

“…In this way, the importance and outcomes of palliative care can be explored. Palliative care nursing in oncology is the integration of cancer-directed care along with the whole course of the disease condition, regardless of cancer stages, therapeutic options (chemotherapy, radiotherapy, or surgery), and other clinical complications [ 31 , 32 ].…”

Section: Palliative Care and Cancermentioning

confidence: 99%

Evolution of Oncology and Palliative Nursing in Meeting the Changing Landscape of Cancer Care

Zhou

2022

Journal of Healthcare Engineering

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Nursing is a vital health profession. In almost all clinical and hospital settings, nurses offer primary palliative care. Nurses are recognized for their strong philosophy of care for a wide spectrum of disorders. No matter the sickness, condition, or clinical situation, palliative care is considered essential in nursing practice. Palliative care nursing is the provision of palliative care services to cancer patients and their families, regardless of whether cancer can be cured or not. A large body of evidence shows that early palliative care nursing integration improves the quality of life and survival of cancer patients. Due to the intricacy of cancer, the landscape of cancer care is shifting. Cancer is a life-threatening disease with a high mortality rate. Oncology nurses’ skills and experience are vital in providing specialized patient care and fulfilling the needs of patients and their families. The current study examines the shifting environment of palliative care nursing in oncology. However, new palliative care nursing approaches are required to adapt to the evolving cancer scenario.

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“…However, QoL is an important indicator of quality of care and a major dimension when assessing patient reported outcomes. This particularly holds true for older people, regarding global outcome measures for interventions [ 8 , 9 ].…”

Section: Introductionmentioning

confidence: 99%

Item distribution, scalability and internal consistency of the QUALIDEM quality of life assessment for patients with dementia in acute hospital settings

Lüdecke

Dichter

Nickel

et al. 2023

Health Qual Life Outcomes

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Background Quality of life (QoL) of people with dementia (PwD) is an important indicator of quality of care. Studying the impact of acute hospital settings on PwD’s QoL requires assessment instruments that consider environmental factors. Until now, dementia-specific QoL instruments have not yet demonstrated their feasibility in acute hospitals because their use takes up too much time or their validity depends on observation periods that usually exceed the average length of hospital stays. Therefore, validated instruments to study QoL-outcomes of patients with dementia in hospitals are needed. Methods Data stem from a study that analyzed the impact of a special care concept on the QoL of patients with dementia in acute hospitals. Total sample size consisted of N = 526 patients. Study nurses were trained in using an assessment questionnaire and conducted the data collection from June 2016 to July 2017. QoL was assessed with the QUALIDEM. This instrument consists of nine subscales that can be applied to people with mild to severe dementia (N = 344), while six of the nine subscales are applicable for people with very severe dementia (N = 182). Scalability and internal consistency were tested with Mokken scale analysis. Results For people with mild to severe dementia, seven out of nine subscales were scalable (0.31 ≤ H ≤ 0.75). Five of these seven subscales were also internally consistent (ρ ≥ 0.69), while two had insufficient reliability scores (ρ = 0.53 and 0.52). The remaining two (positive self-image, feeling at home) subscales had rather low scalability (H = 0.17/0.16) and reliability scores (ρ = 0.35/0.36). For people with very severe dementia, all six subscales were scalable (0.34 ≤ H ≤ 0.71). Five out of six showed acceptable internal consistency (ρ = 0.65–0.91). Only the item social relations had insufficient reliability (ρ = 0.55). Conclusions In comparison with a previous evaluation of the QUALIDEM in a long-term care setting, the application in a hospital setting leads to very similar, acceptable results for people with mild to severe dementia. For people with very severe dementia, the QUALIDEM seems to fit even better in a hospital context. Results suggest either a revision of unsatisfactory items or a general reduction to six items for the QUALIDEM, for all PwD. In general, the QUALIDEM can be recommended as instrument to assess the QoL for PwD in the context of hospital research. Additionally, an investigation of the inter-rater reliability is necessary because the qualification of the nurses and the length of stay of the patients in the hospital differ from the previous investigations of the inter-rater reliability of QUALIDEM in the nursing home.

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Untitled

Cited by 25 publications

References 29 publications

Impact of Functional Constipation on Health-Related Quality of Life in Preschool Children and Their Families in Xi’an, China

Impact of Functional Constipation on Health-Related Quality of Life in Preschool Children and Their Families in Xi’an, China

Evolution of Oncology and Palliative Nursing in Meeting the Changing Landscape of Cancer Care

Item distribution, scalability and internal consistency of the QUALIDEM quality of life assessment for patients with dementia in acute hospital settings

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