6) Communication in genetic counselling

Hof, Johan; Kopinsky, Sarina

doi:10.1016/0738-3991(83)90072-1

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“…Apart from checking the recollection of the essential facts of genetic counselling, it is difficult to evaluate its success. Many writers (Silverberg & Godmilov 1979, Op't Hof & Kopinsky 1982 have pointed out that if the non-directive counselling method is used, success cannot be measured by counting the number of affected children after counselling. The purpose of genetic counselling, in addition to delivering information, is to help the families.…”

Section: S O M E R Et a Lmentioning

confidence: 99%

Evaluation of genetic counselling: recall of information, post‐counselling reproduction, and attitude of the counsellees

1988

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Of the families who had received genetic counselling between 1972 and 1981, 791 replied to a questionnaire which covered recall of information, post‐counselling reproduction and attitudes towards counselling and prenatal diagnosis. Eighty percent had adequate knowledge of mode of inheritance and 74% of recurrence risk. Knowledge of mode of inheritance was poorest in multifactorial transmission (63%) and knowledge of recurrence risk in X‐chromosomal disorders (61%). Forty‐five per cent of the families had started a pregnancy after the counselling. The variation was between 57% (risk –<5%) and 31% (risk >25%). Early lethality of the disorder and feasibility of a prenatal study contributed to positive reproductive decisions. Nine per cent of the children born after the counselling were affected by the disorder in question. The observed risks tended to match well with the expected ones. Sixty‐two per cent of the respondents felt that the counselling had had a great or moderate impact on their reproductive plans. Forty‐two per cent expressed a wish to hear the counsellor's opinion in addition to the facts. This was more common when the disorder was severe. Although most couples (53%) wished to have a prenatal study, if feasible, and abort an affected foetus, 16% were against abortion in such a case and 31% wished to have the study but were ambiguous about an abortion.

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Section: S O M E R Et a Lmentioning

confidence: 99%