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Bayliss, Martha; Espindle, Derek; Buchner, Deborah; Blaiss, Michael S.; Ware, John E.

doi:10.1023/a:1008939328060

Cited by 31 publications

(7 citation statements)

References 17 publications

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“…15 This measure has been shown to have good cross-sectional construct validity and reproducibility 16,27 and to predict asthma severity, work days missed and to be responsive to changes in pulmonary function. 8 …”

Section: Methodsmentioning

confidence: 99%

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Assessing the validity of the RAND Negative Impact of Asthma on Quality of Life Short Forms

Sherbourne

Stucky

Edelen

et al. 2014

Journal of Allergy and Clinical Immunology

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Background In response to recommendations from the 2010 NIH Asthma Outcomes Workshop, we developed a system for measuring the negative impact of asthma on Quality of Life (QoL), referred to as the RAND Negative Impact of Asthma on Quality of Life (RAND-IAQL) item bank. The bank contains 65 items that focus on the patient’s perception of the impact or bother of asthma on his or her life. Objective Evidence for the validity of two short-forms, The RAND-IAQL-4 and 12, from the bank is presented. Methods Using a sample of 2032 adults with asthma, we validated our short-forms against the Marks Asthma Quality of Life Questionnaire (M-AQLQ); The Asthma Control Test; and generic measures of QoL developed by PROMIS®. Discriminant validity was examined by comparing scores of respondents who differed according to multiple health indicators. Results Our sample ranged in age from 18–99 (mean of 43), 14% of whom were Hispanic, 11% Asian, 19% African American and 56% non-Hispanic White. Men had significantly worse impact of asthma on QoL than women. Impact of asthma on QoL was greatest in African Americans and Hispanics compared to non-Hispanic Whites. Our measures correlated highly with Marks AQLQ and more strongly with the PROMIS® global physical than mental scale. They differentiated between adults with asthma according to their perceived severity, level of control, presence or absence of exacerbations and physical comorbidity. Conclusion The RAND-IAQL item bank, measuring the impact of asthma on QoL, will complement other patient-reported outcomes such as measures of asthma symptoms, functioning and control.

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Section: Methodsmentioning

confidence: 99%

“…We expected the impact of asthma on QoL would be greater in persons with indicators of more uncontrolled asthma and more work days missed 8 and in persons with greater health care utilization (more emergency room visits and hospitalizations for asthma during the past year and more frequent use of controller medications).…”

Section: Methodsmentioning

confidence: 99%

Assessing the validity of the RAND Negative Impact of Asthma on Quality of Life Short Forms

Sherbourne

Stucky

Edelen

et al. 2014

Journal of Allergy and Clinical Immunology

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“…3 It has been used in a number of studies over the years within and outside the United States. 3,5,20–29 …”

Section: Methodsmentioning

confidence: 99%

Correspondence Between the RAND–Negative Impact of Asthma on Quality of Life Item Bank and the Marks Asthma Quality of Life Questionnaire

Edelen¹,

Stucky²,

Sherbourne³

et al. 2014

Clinical Therapeutics

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Purpose In many research and clinical settings where patient reported outcomes (PRO) measures are used, it is often desirable to link scores across disparate measures, or use scores from one measure to describe scores on a separate measure. However, PRO measures are scored using a variety of metrics, making such comparisons difficult. In this paper, we provide an example of how to transform scores across disparate measures (the Marks Asthma Quality of Life Questionnaire (AQLQ-Marks) and the newly developed RAND-Negative Impact of Asthma on Quality of Life item bank (RAND-IAQL-Bank)) using an IRT-based linking method Methods Our sample of adults with asthma (N=2032) completed two measures of asthma-specific quality of life: the AQLQ-Marks and the RAND-IAQL-Bank. We use item response theory- (IRT) based co-calibration of the two measures to provide a linkage, or a common metric between the two. Co-calibration refers to the process of using IRT to estimate item parameters that describe the responses to the scales’ items according to a common metric, in this case a normal distribution transformed to a T-scale with a mean of 50 and a standard deviation of 10. Findings Results indicated that the scales measured highly similar constructs and were sufficiently unidimensional for IRT co-calibration. Once linked, scores from the two measures were invariant across subgroups. A crosswalk is provided that allows researchers and clinicians using AQLQ-Marks to crosswalk to the RAND-IAQL toolkit. Implications The ability to translate scores from the RAND-IAQL toolkit to other ‘legacy’ measures increases the value of the new toolkit, aids in interpretation, and hopefully will facilitate adoption by asthma researchers and clinicians. More generally, the techniques we illustrate can be applied to other newly developed or existing measures in the PRO research field to obtain crosswalks with widely used traditional, legacy instruments.

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“…The US review identified 9 instruments for adults, the ABP [14], the Asthma Impact Survey [15], the AQLQ-J-s [11], the mini AQLQ-J [12], the LWAQ [16], the modified AQLQ-S [17], the Asthma Short Form [18], the SGRQ [6,7] and the AQ-20 [17]. …”

Section: Introductionmentioning

confidence: 99%

Measurement properties of asthma-specific quality-of-life measures: protocol for a systematic review

et al. 2014

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BackgroundAsthma is a frequent chronic inflammatory disease of the airways, and the assessment of health-related quality of life (HrQoL) is important in both research and routine care. Various asthma-specific measures of HrQoL exist but there is uncertainty which measures are best suited for use in research and routine care. Therefore, the aim of the proposed research is a comprehensive systematic assessment of the measurement properties of the existing measures that were developed to measure asthma-specific quality of life.Methods/designThis study is a systematic review of the measurement properties of asthma-specific measures of health-related quality of life. PubMed and Embase will be searched using a selection of relevant search terms. Eligible studies will be primary empirical studies evaluating, describing or comparing measurement properties of asthma-specific HRQL tools. Eligibility assessment and data abstraction will be performed independently by two reviewers. Evidence tables will be generated for study characteristics, instrument characteristics, measurement properties and interpretability. The quality of the measurement properties will be assessed using predefined criteria. Methodological quality of studies will be assessed using the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) checklist. A best evidence synthesis will be undertaken if more than one study have investigated a particular measurement property.DiscussionThe proposed systematic review will produce a comprehensive assessment of measurement properties of existing measures of asthma-specific health-related quality of life. We also aim to derive recommendations in order to help researchers and practitioners alike in the choice of instrument.Trial registrationPROSPERO registration number: CRD42014010491.

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Abstract: Development of the ITG-ASF was a data-driven process maximizing measurement precision and breadth while minimizing burden. The ITG-ASF is a brief, comprehensive and empirically valid tool that complements traditional markers of the outcomes of asthma care.

Cited by 31 publications

References 17 publications

Assessing the validity of the RAND Negative Impact of Asthma on Quality of Life Short Forms

Assessing the validity of the RAND Negative Impact of Asthma on Quality of Life Short Forms

Correspondence Between the RAND–Negative Impact of Asthma on Quality of Life Item Bank and the Marks Asthma Quality of Life Questionnaire

Measurement properties of asthma-specific quality-of-life measures: protocol for a systematic review

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