Consensus statements on the information to deliver after a febrile seizure

Loussouarn, Anthony; Devlin, Anita; Bast, Thomas; Benoist, G.; Corrard, F.; Cross, Helen; Ferretti, Alessandro; Viguer, Fernando Garcia-Sala; Guerrini, Renzo; Klepper, Joerg; Meißner, Thomas; Milh, Mathieu; Poltorak, Violeta; Raucci, Umberto; Antonio‐Arce, Victoria San; Sie, Adrian; Smeyers, P; Specchio, Nicola; Sutcliffe, Alastair; Trauffler, Adeline; Dozières‐Puyravel, Blandine; Auvin, Stéphane

doi:10.1007/s00431-021-04067-2

Cited by 14 publications

(18 citation statements)

References 19 publications

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“…Lack of parents’ knowledge about febrile seizures was also shown in earlier studies and might enhance anxiety and hinder parents from undertaking appropriate actions to manage the seizure [ 13 ]. A recent consensus statement on the information that should be delivered when a child has a febrile seizure recommended addressing definition, parental stress, the commonness of febrile seizures, measures to be taken when a seizure occurs, and prognosis [ 17 ]. Asked what specific information they received, two-thirds of affected parents in our study said they received information about measures to be taken if their child had another febrile seizure.…”

Section: Discussionmentioning

confidence: 99%

“…A high share of parents in both groups expressed willingness to administer an available anti-seizure rescue medication. The parents should be told that most febrile seizures do not last longer than 2 to 3 min and do not require any treatment [ 17 ]. They should, however, be encouraged to administer an anti-seizure rescue medication for seizures lasting longer than 5 min, to reduce the risk of a prolonged seizure and its complications [ 12 , 31 ].…”

Section: Discussionmentioning

confidence: 99%

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Febrile seizures: perceptions and knowledge of parents of affected and unaffected children

et al. 2021

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Febrile seizures (FS) in children are common, but little is known about parents’ perceptions and knowledge of FS. We interviewed parents of children aged 6 months to 6 years affected by FS (FS group, 65 parents) or unaffected (control group, 54 parents). In the FS group, 32% said they knew their child had an FS when the first event occurred, and 89% described fear when the child had a seizure, with a median intensity of 10/10 (Q25/Q75: 9/10). Related to follow-up, 77% in the FS group (will) observe their child more carefully after the first seizure happened, and 63% (will) give antipyretics earlier at a median temperature of 38.2 °C (100.8 °F). In the FS group, 62% were unaware of FS before the first event (54% of control group did not know about FS thus far, n.s.). In the FS group, 20% would put a solid object in the mouth of a child having a seizure (control group, 39%, p = 0.030), and 92% would administer an available anti-seizure rescue medication (control group, 78%, p = 0.019). In the FS group, 71% feared that children with FS might suffocate (control group, 70%, n.s.).Conclusion: Information about FS and their management should be more available to improve parents’ coping and patient safety. What is Known:• Febrile seizures in children are common.• The prognosis of children suffering from febrile seizures is usually rather good. What is New:• Over half of parents had not informed themselves about febrile seizures so far; and only 32% of parents realized their child had a febrile seizure when it occurred.• Most parents described own fear with a median intensity of 10/10; and 63% (will) give antipyretics earlier at a median temperature of 38.2 °C (100.8 °F).

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Febrile seizures: perceptions and knowledge of parents of affected and unaffected children

et al. 2021

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“…Lack of parents' knowledge on febrile seizures was also shown in earlier studies and might enhance anxiety and hinder parents from undertaking appropriate actions to manage the seizure [13]. A recent consensus statement on the information that should be delivered when a child has a febrile seizure recommended that de nition, parental stress, the commonness of febrile seizures, measures to be taken when a seizure occurs, and prognosis should be addressed [17]. Asked for speci c information they got, two thirds of affected parents in our study said they received information about measures to be taken if their child had another febrile seizure.…”

Section: Discussionmentioning

confidence: 97%

“…Thus, at least parents whose child already had experienced a febrile seizure should optimally receive such a training. However, the parents should be told that most febrile seizures do not last longer than two to three minutes and do not require any treatment [17]. For seizures lasting longer than ve minutes, an anti-seizure rescue medication should be administered to reduce the risk of a prolonged seizure and its complications [12,27].…”

Section: Discussionmentioning

confidence: 99%

“…This is probably one of the main reasons for the extremely high level of anxiety of parents whose child had a febrile seizure. It seems important to educate parents on measures to be taken during a seizure such as keeping calm, securing the site, applying stable site position, and not putting anything into the child's mouth [17]. Besides, parents should be assured that suffocation in a febrile seizure is extremely unlikely.…”

Section: Discussionmentioning

confidence: 99%

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Febrile Seizures: Perceptions and Knowledge of Parents of Affected and Unaffected Children

Rice¹,

Müller²,

Jeschke³

et al. 2021

Preprint

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Febrile seizures (FS) in children are common. Little is known on parents’ perceptions and knowledge of FS. We interviewed parents of children aged 6 months to 6 years affected (FS-group, 65 parents) or unaffected by FS (unaffected group, 54 parents). Of the FS-group, 32% said they knew their child had a FS when the first event occurred. Of the FS-group, 89% described fear when the child had a seizure with a median intensity of 10/10 (Q25/Q75: 9/10). Of the FS-group, 77% said they (will) observe their child more carefully since the first seizure had happened, 63% (will) give antipyretics earlier at a median temperature of 38.2°C (100.8°F). Of the FS-group, 62% had not informed themselves about FS before the first event occurred (unaffected group: 54% had not informed themselves about FS so far). Of the FS-group, 20% would put a solid object in the mouth of a child having a seizure (unaffected group 39%), and 92% would administer an available anti-seizure rescue medication (unaffected group 78%). Of the FS-group, 71% stated children with FS might suffocate (unaffected group 70%). Conclusion: Information about FS and its management should be more widespread to improve parents’ coping and patient safety.

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Management of children with febrile seizures: a Greek nationwide survey

Kopsidas,

Dasoula,

Kourkouni

et al. 2023

Eur J Pediatr

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The purpose of this study was to investigate knowledge, principles, and practices concerning the management of children with febrile seizures among pediatricians in Greece. A cross-sectional study was performed across Greece. Pediatricians completed an anonymous and voluntary 11-item questionnaire about their knowledge, attitudes, and practices with respect to the management of febrile seizures; the survey also collected demographic data. It was first administered in paper form in October 2017. This was followed by an online survey performed between June and August of 2018 and publicized by medical boards across Greece. Descriptive statistics and comparisons between groups were conducted with the significance level set at p ≤ 0.05. We recorded 457 responses. Pediatricians admitted to modifying their advice to the parents of children with febrile seizures by suggesting more “aggressive” fever management at low temperatures or systematically (63%), referral to a specialist after any episode of febrile seizures (63%), or hospitalization in a subsequent episode (67%), even though 72% admitted these practices were of no efficacy. Almost one in three pediatricians (28%) believed aggressive management of fever could delay the onset of febrile seizures; increasing age was associated with this perception. A minority (28%) would make parents aware of febrile seizures before a first episode regardless of family history; 38% would do so in the event of family history.Conclusions: Several pediatricians in Greece use outdated and ineffective practices for the management of febrile seizures, despite the availability of updated evidence-based guidelines. Further training of practitioners is needed to bridge this gap. What is Known:•Aggressive management of fever at low temperatures with antipyretics, referral to a neurologist, and hospitalization are not supported by evidence or recent guidelines on childhood febrile seizures.•Febrile seizures are especially disturbing to uninformed parents, who may be inclined to pursue aggressive but ineffective treatments as a result. What is New:•Pediatricians in Greece use non-evidence-based practices for the management of febrile seizures, even when they are aware that these practices are not effective.•Older age increases the likelihood that a pediatrician will pursue guideline non-compliant practices in Greece. At the same time, physicians with over 20 years of experience are more likely to inform parents in advance about febrile seizures.

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Consensus statements on the information to deliver after a febrile seizure

Cited by 14 publications

References 19 publications

Febrile seizures: perceptions and knowledge of parents of affected and unaffected children

Febrile seizures: perceptions and knowledge of parents of affected and unaffected children

Febrile Seizures: Perceptions and Knowledge of Parents of Affected and Unaffected Children

Management of children with febrile seizures: a Greek nationwide survey

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