Sleep and asthma management in youth with poorly-controlled asthma and their caregivers: a qualitative approach

Evans, Corinne; Fidler, Andrea; Baker, Dawn; Wagner, Mary H.; Fedele, David A.

doi:10.1080/02770903.2021.1914650

Cited by 4 publications

(1 citation statement)

References 45 publications

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“…Caring for the child and remaining vigilant regarding their health or HMV can negatively affect a family caregiver’s (FC) physical and psychological health (Chandran et al, 2021; González et al, 2017; Keilty et al, 2015), including their sleep quality (Keilty et al, 2015; Spratling & Lee, 2020; Westwood et al, 2019). Caring for a child with a disease at home, including those with a tracheostomy or HMV, means that a caregiver must provide nighttime care as needed (Evans et al, 2022; Meltzer & Moore, 2008; Van Name et al, 2018), which easily results in more sleep deprivation and disturbance than would be experienced by parents of healthy children (Hopkins et al, 2009; Meltzer & Booster, 2016; Paddeu et al, 2015). A caregiver’s sleep can often be disturbed by clearing the child’s airway, preventing nocturnal choking, managing device alarms, and dealing with symptoms specific to the child’s underlying diseases (Chandran et al, 2021; Keilty et al, 2015; Spratling & Lee, 2020).…”

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confidence: 99%

Sleep Quality of Family Caregivers of Children With Tracheostomies or Home Ventilators: A Scoping Review

Lee

Lim

2023

J Fam Nurs

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Family caregivers of children with tracheostomies or home ventilators are more likely to experience poor sleep quality when undertaking the full responsibility of caring for fragile children. This scoping review aimed to identify the sleep quality, related factors, and their impact on the health of family caregivers of children with tracheostomies or home ventilators. The included studies ( N = 16) were retrieved through PubMed, CINAHL, Cochrane Library, Embase, PsycINFO, and Web of Science. Family caregivers’ sleep were low in quality, frequently disturbed, and insufficient. Their sleep quality was related to fatigue, anxiety, depression, family functioning, and health-related quality of life. The sleep disturbing factors were classified as child, caregiver, or environment-related, which were mutually interrelated. This review emphasizes the need to develop nursing interventions to both improve the sleep quality of family caregivers and the health of children with tracheostomies or home ventilators based on an in-depth understanding of the family’s context.

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confidence: 99%

Sleep Quality of Family Caregivers of Children With Tracheostomies or Home Ventilators: A Scoping Review

Lee

Lim

2023

J Fam Nurs

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Profiles of Maternal-Child Interactions and their Association with Children’s External Resilience Resources

Hasselle,

Howell,

Napier

et al. 2024

J Child Fam Stud

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Strengths-Based Factors Related to Post-Traumatic Stress Problems in Black Youth with High Body Weights

Campbell

Howell

Napier

et al. 2023

Journal of Pediatric Psychology

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Objective Black youth with high body weights [BYHW; Body Mass Index (BMI)≥95th percentile] endure unique stressors (e.g., exposure to discrimination due to race and size) that may contribute to psychopathology. Factors that decrease mental health problems associated with these stressors have been underexamined in BYHW. The current study assessed how multisystemic resilience, weight-related quality of life (QOL), and discrimination were associated with post-traumatic stress problems in BYHW from the perspective of youth and their caregivers. Methods A total of 93 BYHW and one of their primary caregivers were recruited from a Midsouth children’s hospital. Youth ranged in age from 11 to 17 years (Mage=13.94, SD = 1.89), were mostly girls (61.3%), and had CDC-defined BMI scores above the 95th percentile. Nearly all caregivers were mothers (91.4%; Mage=41.73 years, SD = 8.08). Youth and their caregivers completed measures of resilience, discrimination, weight-related QOL, and post-traumatic stress problems. Results Utilizing linear regression modeling, the youth model was significant [F(3, 89)=31.63, p<.001, Adj. R2=.50], with higher resilience (β=−.23; p=.01) and lower discrimination (β=.52; p<.001) associated with fewer post-traumatic stress problems. The caregiver regression model was also significant [F(2, 90)=10.45, p<.001, Adj. R2=.17], with higher weight-related QOL associated with lower post-traumatic stress problems (β=−.37; p<.001). Conclusions Findings illustrate differences in youth and caregiver perceptions of factors related to post-traumatic stress problems in BYHW. Youth emphasized both internal and external contributors to stress, while caregivers focused on internal variables. Such knowledge could be harnessed to develop strengths-based interventions that address health and well-being among BYHW.

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Sleep and asthma management in youth with poorly-controlled asthma and their caregivers: a qualitative approach

Cited by 4 publications

References 45 publications

Sleep Quality of Family Caregivers of Children With Tracheostomies or Home Ventilators: A Scoping Review

Sleep Quality of Family Caregivers of Children With Tracheostomies or Home Ventilators: A Scoping Review

Profiles of Maternal-Child Interactions and their Association with Children’s External Resilience Resources

Strengths-Based Factors Related to Post-Traumatic Stress Problems in Black Youth with High Body Weights

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